I haven't posted before but have been an occasional reader.A little background I have Hep C Genotype 1a. I believe I have had since the late 70s.First I was on the interferon ribavirin treatment. I had an initial large drop in viral load but it came back during treatment. I was taken of the meds. Next I...
I just completed my 6 months test and they called to say the results came back UND and I am now considered cured :) (and I do realize that the word cured isn't usually used, but she said it, and I loved hearing, so I am going with that). They said they don't need to see me for another year at which time they wi...
Hi All, Just an intro from my biography....contracted HCV in Feb 91 (from anti-D, I'm Rhesus Negative), told in UK in 95 (it was non-A/non-B then.) Moved to Ireland in 97, treated by Prof. Hegarty at St.Vincent's hospital Dublin. Was one of the first people in Europe to use Ribavirin/Pegylated Inte...
Patient Assistance Programs, updated - an updated Fact Sheet from the HCV Advocate website, September 2013.Many Americans do not have insurance and/or prescription coverage for healthcare services. In addition, some Americans have insurance coverage that has high deductibles. For these r...
Was origionally going to start on Victrelis, and after I started my 4 week lead in my dr decided the Incivic would be better. So am starting it next week, which will be end of 4 week lead in. She is VA doc and said they have been using Victrelis until now and has limited experience with Incivic. Had high AFP...
I have achieved SVR, I am 6 1/2 months post treatment. I am having difficulty saying the right words at times during conversations. My husband said it's like a stroke victim. Its scary and embarrassing. This happen while on treatment and has really been happening the last few days. Could it be from ex...
just took my 23rd injection along w/ the precious procrit. am now taking 2 vials of the magic drug/wk to prevent hemo dipping any lower. i'm so thankful to have the support & wisdom of everyone on this forum and to still be UND!!!!!!! what a joyous thanksgiving this will be for many of us. sandy,ucbg...
Happy Thanksgiving to all the Hepsters out there. it has been a pleasure to be a part of this wonderful forum and I feel like you are all a part of my life in the most positive way. Have a great day and may your sx be few. Keep moving forward and drink water!........:)
Nov 26th, Ingelheim, Germany - The application for European marketing authorisation of faldaprevir a potent second generation oral protease inhibitor, has been fully validated and granted accelerated assessment by the European Medicines Agency. Boehringer Ingelheim is seeking marketing a...
Hey all We have an opportunity to give written input to the FDA regarding HCV treatment from the viewpoint of the patient in the future treatments with DAA's. This our chance to give real world input from our standpoint not just the drugs company's. If you ever wished or wanted them to consider your vie...
(Well, we knew it wasn`t going to be cheap!)`November 26 2013 - Janssen's hepatitis C drug Olysio (simeprevir) scored FDA approval Friday evening, kicking off a new wave of hepatitis C drugs. It offers modest benefit over standard of care, but a subgroup of patients has encountered resistance, an...
I just got back from my Hepa's office and I got the information that we all work so hard to hear. While I'm not finished with treatment, I think one week is pretty darn close! After the exam and the chance to discuss what has gone on over the last 6 months, I heard something I wasn't expecting today, but welc...
hi i met the guy that i always dreamed of two months ago, and he told me few days ago that he has hepititis C and hemophilia , i am so worry about him and about my self. we had sex without any protection and once he bite my lips while kissing , i don't remember if i bled or not, but iam sure he didnt bleed.we shared...
22 Nov. 2013 - The European Medicines Agency`s Committee for Medicinal Products for Human Use (CHMP) has given an opinion on the use of daclatasvir in combination with sofosbuvir in the treatment of chronic (long-term) hepatitis C virus (HCV) infection, in a compassionate-use programme.The rec...
Hi everyone I'm Eliza & I'm new here. I've come to this forum to look for some answers and hopefully find that I'm not alone. I finished Hep C combination treatment in March this year so it's been about 8 months. I had a horrid time with side effects whilst on treatment some of which have had a lastin...
Medivir AB has announced that Health Canada has approved simeprevir for the treatment of chronic hepatitis C (CHC) genotype 1 infection, in combination with peginterferon alfa and ribavirin in adults with compensated liver disease, including cirrhosis, who are treatment-naïve or who have fai...
November 22, 2013 - `OLYSIO` (simeprevir) Receives FDA Approval for Combination Treatment of Chronic Hepatitis C OLYSIO is the first once-daily protease inhibitor approved for the treatment of chronic hepatitis C in a combination antiviral regimen for adults with compensated liver disease T...
Hey All as noted by SuziQ Committee for Medicinal Products for Human Use (CHMP), the scientific committee of the European Medicines Agency (EMA), has adopted a positive opinion on sofosbuvir. This will have great ramifications for all upcoming and existing/ current competing Meds. The Gilead s...
Hi folks, one of our members has alerted me to the fact that they are not receiving updated RSS feeds. Is anyone else experiencing this problem? Thanks!
As my husband and I were awaiting his viral load test for his 3 month post treatment, we soon found out today that the blood lab put the wrong code and did an HIV test instead! I was so upset. We had to drive to the blood lab and repeat the viral load test today. So, I did call his primary doctor and asked her w...
Just curious. I work in the schools and so does my wife. Needless to say we are especially exposed to colds/flu viruses and lots of sick kids. (Esp my wife who works with preschoolers) During my treatment - 47 weeks now - I have not gotten sick with any colds or flu. Despite feeling lousy on most days...
The PA at my doctors office has told me that the side effects of PEGINF/RIB/VICTRELLIS tend to lessen after about week 25. Has anyone else experienced this?
I was thinking today about the data for Genotype 3 non-responders using Sofosbuvir, Ribaviren, and Interferon. It was 90% plus. This was only a three month treatment plan. Shouldn't this be a first option for treatment naive as this is a very high percentage and a shorter treatment time compared to 6...
So, since we all have to get regular bloodwork I wondered if anyone had a similar issue? I get bloodwork on Sundays, usually- and most labs are closed so the one I go to the woman is always so horrible! Always bruise and she has the move the needle in my arm to hit the vein. It always hurts and I mean other tech...
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