As my husband and I were awaiting his viral load test for his 3 month post treatment, we soon found out today that the blood lab put the wrong code and did an HIV test instead! I was so upset. We had to drive to the blood lab and repeat the viral load test today. So, I did call his primary doctor and asked her w...
Just curious. I work in the schools and so does my wife. Needless to say we are especially exposed to colds/flu viruses and lots of sick kids. (Esp my wife who works with preschoolers) During my treatment - 47 weeks now - I have not gotten sick with any colds or flu. Despite feeling lousy on most days...
The PA at my doctors office has told me that the side effects of PEGINF/RIB/VICTRELLIS tend to lessen after about week 25. Has anyone else experienced this?
I was thinking today about the data for Genotype 3 non-responders using Sofosbuvir, Ribaviren, and Interferon. It was 90% plus. This was only a three month treatment plan. Shouldn't this be a first option for treatment naive as this is a very high percentage and a shorter treatment time compared to 6...
So, since we all have to get regular bloodwork I wondered if anyone had a similar issue? I get bloodwork on Sundays, usually- and most labs are closed so the one I go to the woman is always so horrible! Always bruise and she has the move the needle in my arm to hit the vein. It always hurts and I mean other tech...
Just a posting from my "biography", introducing myself. HCV over 35 years, liver cancer survivor, triple therapy patient (Interferon, ribavirin, victrelis) one week to go to end of treatment, 48 weeks - genotype 1a. Viral load from 5 million+ to non-detectable by week 8, been that way...
So here's the latest update- after my hemoglobin dropped on Sunday the dr made me lower my ribo to 400mg in the morning and 400mg at night still. So they just took one 200 pill out for now and made me get a CBC on thursday. The hemoglobin went back to 10.5! So that was a relief. But I asked my dr to please not cha...
Hi folks, the HCV Advocate website has brought out a new fact sheet which recommends that people living with Hep C or on treatment should get a flu shot, and I thought this would be a good time to bring the subject up again. Many doctors are in favour of flu shots, while on the other hand I know that quite a f...
I can't believe tomorrow will mark 12 weeks of treatment and my last day of eating fat every time my alarm goes off!!! Got my 12 week VL and I am still UNDETECTED!!! Thank God for making me one of the lucky ones!!!
Just happened to see a new clinical trial for the latest new innovation while cruising thru clinicaltrials.com for a friend. It is trial # NCT 01899092. It is a first time trial on people. Check it out and dream of what may be possible. I had only read about it as a Duke University study. These new me...
Hi - this is my first time posting so I'm hoping I'm including everything you need to give me some advice. I started treatment with Pegatron on Sept. 6 for what I had hoped was 24 weeks. I have genotype 3 and my liver is a stage 2. I was told I have a 70-80% chance of a cure. My starting viral load was low at...
Am on infer/Riba 24 wks. Geno 3. Friday nights I take my interferon injection but Saturdays and most of Sunday I lay around and do nothing. I feel weak and tired, but at the same time so guilty about not doing anything. Just finished injection #9 of 24 yesterday. Is there something I should be doing s...
Hi, I'm new to this forum, but I have questions regarding Hep C. First off, I'm a male, 24 years old. Last year I began using heroin and prescription pain medication. i then started to IV the drugs, which led to me being diagnosed with Hep C (about a year ago from this past October). I regularly visited my d...
I was wondering if you have family members with type 2 diabetes if there is any genetic relation to being disposed to it? I read that Hep C can make chances of becoming diabetetic much higher. I don't know if I was tested as there was a range of tests and I was too overwhelmed to ask at the time. Would that hav...
My doctor just told me that the protocol for Victrellis has recently changed. I'm in week 9 of the Vic and was told I would only take it for 12 weeks. Now that's been changed and I have to take it for the remainder of my 48 weeks! Anyone else been told this? My Hgb is at 10 now and the Vic has been much more dif...
Hi everyone, Just got my 12wk VL results: Undetected!!! Yayyyyyyyyyyyyyyyyyy!!! I'm very happy! All my other blood work has been in the low normal range which is expected being on treatment. I would like to thank all my fellow friends here at the forum for all your encouraging, supportive and compas...
I just finished my Abbott trial on 6/26/13(last night I took meds) and was wondering how everyone is feeling off of the meds? My first day off meds I had to go in and turn in all empty med sleeves and bottle of riba and had a blood draw and EKG. But I noticed later that evening how friggen tired I was. I mean lik...
Hello Everyone, Sorry i have not been around recently. Have been reading but as ive no news to report didn't seem much point in posting. Still no news on when treatment will start for hubby but must be getting close. Been thinking of diet and times to eat with the new meds. I know there is a lot on here...
Hi all, I am new here. Nice to have a great resource like this. I have read over some of the posts and other people's experiences - It's nice to know I'm not the only one with this. I had a few questions for the vets/anyone with experience Incivek. I just started the triple therapy and the interferon wa...
So last Friday night I start getting this really severe abdominal cramping. I mean this is a 10 on the scale of 1-10 for pain. I wait for it to pass. Nope - it just sits there. Finally at 0330 I wake my husband and we go to the er. After 8 hours, an abdominal, contrast CT scan, and heavy pain meds, they tell me...
Hi guys,As an open Forum, we have had problems with trolls and spammers in the past. The Moderators are on the lookout for suspicious posts and we can check IP addresses and check the large number of blacklist databases.Most are harmless but often have researched HCV . Sooner or later we find that they...
http://hepatitiscnewdrugs.blogspot.co.uk/2013/11/aasld-sofosbuvirsimeprevir-what-is.html-- Edited by Karen on Wednesday 13th of November 2013 02:07:00 PM
Currently have stage 4 cirrhosis, and am on first week of triple therapy with boceprevir after initial start with ribo and interferon. Seeing how close the new drugs are would I would I be better off not starting bocep and waiting for sofosbuvir? Don't think a month or so would be critical but a year m...
Fixed-dose sofosbuvir/ledipasvir with or without ribavirin cures most genotype 1 hepatitis C patients, LONESTAR study shows`At least 95% of newly treated people with genotype 1 hepatitis C and prior non-responders achieved sustained virological response using a fixed-dose combination of s...
My Dr. at the VA wants me to start the latest and whats supposed to be the most effective drug Sofosbuvir shortly after its approved by the FDA. It was endorsed by all 15 members on Oct. 23, 2013 and is all but certain to be approved in early Dec. I am type 1a so I will be taking it in combination with Ribavir...
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