We were told in April 2008 that my husband had Hep C at that point he decided not to get treatment until 2009 he has portal hypertension he had very high iron he had to have a pint of blood taken out for 2 months every two weeks to get it out of him no he didn't have the gene In 2009 mu husband took at the time stand...
I am new to all this. What causes relapse? Does it just go undetected after treatment and then show up again? How do you know you are negative for good?
Tuesday, October 29, 2013 - FDA approved changes to the Incivek (telaprevir) product labeling to include results from trial C211 (OPTIMIZE) to support a twice daily dosing regimen. In addition new contraindications were added for anticonvulsant medications (carbamazepine, phenobarbital a...
I believe I've discovered a serious error on my Hepa's part and would appreciate your opinion on this. First I thought that due to his failure to perform the VL at week 8 that I would have to take treatment out to 48 weeks. Well my week 12 was UND and the decision was made to end treatment at week 24 anyway. I q...
Wk 12... I have started to develop weird skin spots almost like clear moles?? Related to meds? They weren't really bothing me but i noticed today a few on my face:/ now i'm getting worried... Also i always feel like there is something crawling on me:( again could this be another side effect?? Thx in Adv...
Just blasted my week 10 shot on triple Tx with Incivek. 2 weeks of fat grams left and I will be so happy to get rid of these hemroids!!! Been scratching like an old flea infested hound dog!!! Fighting the Dragon is tuff but we are all in if together!!!
Greetings to all, Long time no speak. Received my 3 month post-treatment blood work results last week and I am very happy to report that all is good. Undetected, blood counts returning to normal and side effects have minimized. I feel stronger every day, my energy level is greatly increased, and I am...
Today I feel really depressed, last week I decided not to treat with dual therapy, because there area % 50 of healing in genothype 1a. As you now, in Spain,at the moment I can´t take another way. Yesterday I started to beat myself about it. Now I´m thinking here the new therapies will not arrive a...
Hello! I was diagnosed in 2002. 1b. Liver in relatively good shape, hope to start new drug treatment next summer... I'm looking for support and community. Thanks... Lida Rose -- Edited by Lida Rose on Friday 25th of October 2013 02:29:05 AM
Cartwheel time It's offical Friday was my 6 month POST treatment check up.. I kicked the dragon's butt..!! Still dealing with some sides.. but life is good... I couldn't have done it without this forum and some very special folks, the advice & encourgement helped me hold fast in the darkest hou...
Merck Receives Breakthrough Therapy Designation for MK-5172/MK-8742This is one of the fast rising new HCV drug combos that will likely be the next most studied 2nd generation DAA that has high resistants to mutations. The MK-1572 is made up of NS3/4A protease inhibitor, and MK-8742, an investig...
Oct. 24, 2013 - Janssen Research & Development, LLC (Janssen) announced today that the Antiviral Drugs Advisory Committee of the U.S. Food and Drug Administration (FDA) voted unanimously (19 to 0) to recommend approval of the investigational protease inhibitor simeprevir (TMC435) admini...
Anyone here ever have experience with this? I'm not taking interferon trearment, but platelets are dropping... Also red pin dots on shins. ankles, recurring small bruises... I will see a hepatologist in a couple weeks, but I'm curious to know if anyone else has ever dealt with this... Thanks. Lida -...
Good evening everyone Haven't been to the forum in a while as I'm still dealing with my dads passing from cancer 4 months ago. It's been 6 months since I finished my '48' week treatment. I gotta say that I'm feeling great. Most of the side effects have gone, still have trouble sleeping. The Dr. called tod...
Hello everyone! So, I haven't started treatment yet-just waiting on insurance to come through! Anyhow, my doctor took one more set of labs before I start treatment. My first viral load (in August) was 1,020,000. This time (about 10 days ago) it was 750! Is this a normal change without treatment, or d...
A doctor told me that 50% of hep c patients don't develop liver damage, especially the ones who have had the infection a long time. Of the lower 50%, he said 25% develop some liver damage but don't get the more severe damage (cancer, etc.). Of the lowest 25%, some develop cirrosis and about 5% cancer. ...
Very tired and very fatigued. Seen the doc yesterday and I will be the very first one to have complete the treatment. Many players have or had to quit ether of the triple combos. I'm on Victerlais and they had me reduce my riba by 1 one tab to 5 a day and I have to do Eprex every week as well. I guess they had...
This small study was carried out in Australia to determine how people felt after their treatment. The issues that people face post-tx have not been given much attention and there isn't much help or follow-up care available - a case of "bye bye, now get on with your life". For anyone experie...
A new report, published today by The Hepatitis C Trust, has found that hepatitis C is grossly under-prioritised in England. Despite it being curable, only 3% of people receive treatment each year.Charles Gore, Chief Executive of The Hepatitis C Trust, said: "There must be no more excuses for the r...
I finally got to see the specialist again. I was ready to start treatment in August but for some reason they were dragging their feet with it. I'm kind of glad they did because I want to see if sofosbuvir is going to make it's way to the public in a few months. The doctor said there is no reason why I can't wait...
Hi, I finally got my 8wk results today. It was <15 det. I have my 12wk done Oct 30th. So, I'm really happy with that I was a little worried as the 4wk still showed quite a high vl. So, that's a good sign the treatment is working!!! Also, I have an itch that's driving me crazy. It feels like pins and needles e...
I am haveing a biopsy done next week and I am very nervous, my genotype is 2b and they are comeing out with a new treatment after the first of the year to treat my specific genotype that dosent affect anxiety or depression because I suffer from both.......my liver tests are always normal and my viral load...
Greetings I recently made the decision to start treatment. I got the results of my biopsy, Hep C genotype 1...Stage II Cirrosis. Happy to find a support network and I'm sure i'll be using you guys advice alot. I'm scared to death from all the horror stories I've heard about treatment but I'm 38 years old...
Probably being paranoid but I have this weird foaming in my eyes:/ also a LOT OF White stuff in corners of eyes:/ not thick. Betwwen the weird sores and my eyes i'm starting to freak out:( i'm at wk 16.
Hello everyone,As you know I live in Spain so, at the moment I can only access the dual therapy. Next december, I have an appointment with the hepatologist, and I have to decide.My status:50 yo. Genotype 1a.VL 800.000. Fibroscan, in June 2013, (7.4.) F2 (in beginning of F2 ). IL28B CC genotype. I hav...
Well isn't this nice? I was wondering what was going on around my month. Not on my lips, just the area around it and at the creases. It started about 2 weeks ago. I thought it was just dry irritated flaky skin, nope, I looked at some pics online of it. Now its tingling and red, as well as flaky. Ho...
Hello everyone, as weeks pass from the day my husband stopped treatment, remembering all he went through seems like a distand bad dream! We just got the results from his blood work done on 10/12 and although many things have gone back to normal or improved, the VIRUS IS BACK! When he started treatment h...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
I was wondering what was going on around my month. Not on my lips, just the area around it and at the creases. It started about 2 weeks ago. I thought it was just dry irritated flaky skin, nope, I looked at some pics online of it. Now its tingling and red, as well as flaky. Ho...