Greetings I recently made the decision to start treatment. I got the results of my biopsy, Hep C genotype 1...Stage II Cirrosis. Happy to find a support network and I'm sure i'll be using you guys advice alot. I'm scared to death from all the horror stories I've heard about treatment but I'm 38 years old...
Probably being paranoid but I have this weird foaming in my eyes:/ also a LOT OF White stuff in corners of eyes:/ not thick. Betwwen the weird sores and my eyes i'm starting to freak out:( i'm at wk 16.
Hello everyone,As you know I live in Spain so, at the moment I can only access the dual therapy. Next december, I have an appointment with the hepatologist, and I have to decide.My status:50 yo. Genotype 1a.VL 800.000. Fibroscan, in June 2013, (7.4.) F2 (in beginning of F2 ). IL28B CC genotype. I hav...
Well isn't this nice? I was wondering what was going on around my month. Not on my lips, just the area around it and at the creases. It started about 2 weeks ago. I thought it was just dry irritated flaky skin, nope, I looked at some pics online of it. Now its tingling and red, as well as flaky. Ho...
Hello everyone, as weeks pass from the day my husband stopped treatment, remembering all he went through seems like a distand bad dream! We just got the results from his blood work done on 10/12 and although many things have gone back to normal or improved, the VIRUS IS BACK! When he started treatment h...
Hi, My wife Julia was just diagnosed with Hep C (genotype 1B). She hasn't started treatment yet. We are waiting to see if the new medicines come out soon. In the meantime, what are the foods (or vitamins) she should be taking that are good for the liver? Thanks. Gerald and Julia
Hello all, I want to sharea very strong feelingand verybad forme. I´m 50 years old. When I was 23, I tried intravenous heroine,3 or 4 time, I left this world without any problem. I studied and I got a good job. Now I have a couple and a good life. In 1993,20 years ago, my doctor detected the virus. I have nev...
Hi, went to Dr today and was told new interferon free tx out soon. She said goverment/drug companies are being so secretive ,that even drs dont know much yet. I was told here in , the drs she knows are holding off starting pts on tx until end of year when new tx is available to pts. not much info, but it sound...
Hey everybody, its been several weeks since I've been on! So I saw my GI specialist on Tuesday. I am going to start triple therapy with Incivek. Insurance takes from 1-21 days to come through, and my medications will be delivered as soon as that happens. Excited, nervous, ready!
I have this tattoo- an awful reminder or a person and time I'd much rather forget- so I have been wanting to just have it touched up and maybe a color change so it's just a little different. So I'm wondering if I should wait until after tx or if I'd be fine to have it fixed now?? Anyone know? Or have any input? I...
Nine weeks into triple tx incivek. I was on a trial about ten years ago, back when you had to mix the inter. I was about 190lbs and could bench 300lbs typical 1970's biker. You know the look that gave hep c its bad name hahaha. Only side effect I had was the first shot. I didn't respond well so tx was stopped....
I have been off treatment a week today and I actually feel worse..this is crazy!!! I am not sleeping-wake in the middle of the night with my hands twitching, tightness in my jaw and spasms in the legs. I have to lay on my hands to settle them down, teeth hurt from clutching and legs just go nuts...I feel an...
Hello all, Have been away from forum for quite a while, during which time I completed the 48 week of treatment, since that time I was advised that my liver was basically shot and that a transplant would be down the road, on 5/31 I met with a hepatologist and plans were set in motion to to begin al the requir...
New blood work: Iron 29 high 8-25 I don't take Vitamin supplement. what food I can't eat in my daily diet? Any suggestion -- Edited by lucy on Wednesday 10th of July 2013 08:06:22 PM-- Edited by lucy on Wednesday 10th of July 2013 08:21:38 PM-- Edited by lucy on Wednesday 10th of July 2013 08:35:30 PM
If this answer is posted somewhere else. Forgive my redundancy. When I look at different post i see people are taking about relapse and are doing treatments again. My doctor told me that I could be reinfected by blood, drugs etc. I am under the impression that the pega and riba can cause false UD whi...
I have this cracked sore at the corner of my mouth that would not go away for two weeks. I thought it was a cold sore and got abreeva. Just read online that these are called Angular Chellitis and they appear when you are anemic. I know my hb and hematocrit is low but not critical. Anyone experienced that and...
Well it's official for now - 24 weeks of triple = UND It was at week 17 since we last checked. I was a bit worried for nuttin. My NP keeps saying I'm going to feel worse before I feel better, not sure about that. I already feel clearer in mind and skin. My WBC is already up to 2.0 and mature wbc's are up to .86 alr...
i have 2 more months left of tx,but a 3 month supply of ribo left. my old dr. had me on ribo for 2 weeks and severe reduction for 3 weeks due to low hemoglobin,rbc and wbc. am i correct in assuming i will be taking them & making my eot 7 months,not 6? if dr says i don't need to do so,should i insist along w/ re...
This week a friend stopped by, took one look at me-laid their hand on my leg and said, "you are in need of touch". I busted into tears!! The next day another friend said, "let me give you a big hug", I resisted, they insisted. As they held me, I again started to sob. Two days later...
THIS SUCKS!! I mean, im trying to stay positive, but it is NOT easy. I am on peg & riba and I have 4 more injections left....hard to believe I have already done 20!!! I knew it would be hard, and since I am already a pretty emotional person, I had a feeling the mental side effects would effect me the worst...
Well my 4th week labs were drawn on Sunday- had a Dr apt today to decide on Victrelis or end treatment but the labs still weren't done? So I'm still waiting.. I have Victrelis in my fridge I can't seem to think about much else.. Oh ya except that my dr told me in the beginning that I had About a six month ride...
Hi folks! i have been offline for few days... just got back from full body check and talked with my hepa...blood counts are back fully (RBC,WBC,etc), but then scary thing showedup. ALT levels are back to it's pre tx numbers. ALT 53 (48 upper limit). I have had 45-70 ALT past 6 years, and while on tx i hade 2...
Hi, I just had my 10th shot on Wednesday night. This time I had alot fever. It started Thurs. morning and again Thurs night about 6pm and lasted basically all night till Fri. morning. I took 2 tylenol extra strength a few times, but only gave minor relief. I spent 16hrs in bed, except to eat something and t...
I finished up all of my treatment last week and tomorrow I see my doctor. I remember when I started in January the nurse mentioned to me (when we were alone) that the doctor usually orders blood work at 6 months, but that I could request a 12 week check after treatment. Should I do this? Is it worth while?...
This is an interesting article as it discusses results for the over 65's. Note that the IL28B gene test is quoted, but only using the SNP rs8099917, rather than rs12979860 (commonly used in the USA). See my article on Gene testing in General Information. Also note that all patients were Genotype 1b....
Well here I am in the middle of week 11. I had to transfuse again. Last time was at week 7. When I left the Hos. back then my red cells where 9.4 not great but better than they were 7.4. In the mean time my Doc had to order and get my procrit ok'ed. That took untill week 10. So by then I was a little low for the procri...
Hi folks, ...I had some dental work 2 days ago, they removed a real old filling, (with mercury) prepping for a crown. I asked for a dental dam and he said it wasn't necessary. Yesterday and today I feel like crap, think it is related? BB, Iris
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I was wondering what was going on around my month. Not on my lips, just the area around it and at the creases. It started about 2 weeks ago. I thought it was just dry irritated flaky skin, nope, I looked at some pics online of it. Now its tingling and red, as well as flaky. Ho...