Hello to all! My name is Hillary I'm 24 years old- diagnosed with hep C about 2 years ago.. Cleaned myself up got prepared and tried to educate myself as much as possible on this illness. I'm not as familiar with my numbers and levels as I see everyone else is on here. I stress a millions things and wonder is...
May 31st I took my last injection of Interferon/Ribaviron and 2 experimental drugs. I was told that 12 weeks after taking the medicine all side effects would be gone. 16 mos later I am so much worse than before I ever started. Symptoms are weakness, I have about 15% of the strength that I use to have a...
have had moderate swelling due to the "rheumethroid arthritis" since aug.1st. was using compression stockings & 2 naproxen daily for 3 wks to no avail. i actually had to go up 1/2 shoe size and felt like a 100 yr. old.... in 1 week here's my new stategy.am back into my own shoe size and fe...
I was informed today that my partners father will be coming to visit next week & will be staying for a few days.. Now, I usually enjoy his company (sort of) and have never complained about his visits but this time I just dont need it. It has really upset me, for a few reasons.. Firstly because his first...
Hi all, I am 3 months EOT now, will have a blood test next Tuesday to know if I am still UND 12 weeks EOT. However, things are not for the best : I ended the Turquoise Trial (30 June 2013) with a nice 210 plaquettes (I had only 131 when I started the treatment). Then about 10 days after EOT, I started to have pet...
Just got some good news, still UND 12 weeks post tx. ALT 45 High AST 43 High Platlets 139 Low All other CBC normal. Thanks again to this site and all the members for the support.
Hi again, all! I am about a week away from my EOT + 6 months blood test. I've been UND so far, but maybe not anymore. About a month ago, I was stuck in the thumb by a dirty needle belonging to the person who originally infected me, my ex-boyfriend. I know it can take months for the antibody test to show posi...
Hi, I've only been on triple therapy for a week. I tried doing a search on this topic but didn't find anything. The directions for incivek say to eat a meal containing 20g of fat within 30 min of taking the pill. Does that mean that I should wait until 20-30 minutes after I eat to take the pills, to maximize...
I am stage 2.5 with moderate fibrosis. any word on new treatment dates? I failed telaprivar last time around. I can't seem to find a study in Los angeles!!
GSK receives marketing authorisation from the European Commission for additional Revolade (eltrombopag) indication as the first approved treatment for chronic hepatitis C-associated thrombocytopeniaGlaxoSmithKline plc announced today, 24th September, that the European Commission ha...
I have to start with a gripe! This board is logging me out, showing my updated bio in one box but not the editing box, etc! Trying to present a complete bio to answer questions, haha. I'm going to do treatment in the next few months. Quit once several years ago, though I was responding, see bio! Have a bette...
Hi Guys,Just got my EOT + 28 week results. Still <15 TND (Undet. for my Lab.) so I'm now happy to call that SVR baby.My doc was happy to call me SVR after my EOT + 12w. Undet. but I'm a bit old-fashioned. My heartfelt thanks to all my fellow Forum Members and my gorgeous wife who helped me get through Rx and...
I was on a BMS trial for 24 weeks (the AI452-020 study) testing either Peg Interferon Alpha or Lambda, and either a protease or a polymerase inhibitor and Ribavirin. . I had to go off the trial in Dec 2011 (I started in July) due to another, unrelated, health issue. I was pretty tired in the beginning but...
Hi.. Ive been on hep c treatment with Victrilous for 12 weeks now, and have been undetected since week 4.I also have cirrhosis and portal hypertension with slightly swollen spleen...The first 9 weeks my AST and ALT levels cosistently went down and my ALT even fell into normal range. My AST is slightl...
Hello all. I have been reading some of the posts about sofosbuvir getting ready to be approved. I see that some say it will be ready as soon as December. Anyone know this for a fact? Once approved, will it be available for immediate use to the general public? I ask because I am STILL waiting to start tx. My...
I didn't experience RIBA rage on treatment. Has anyone experienced it post tx? As I mentioned in a prior post, I've been overwhelmed lately and experiencing feelings / frustration that make me wonder if it isn't a little bit of RIBA rage. What do you think? I know RIBA lingers in the blood cells for abou...
Hi all, It's me Laura. Took Tom back to Mt Sinai for his first three month liver scan. Great news, the chemo is working. There is NO sign of any growth in his liver. And to really make our day, his surgeon reports the new Hep C medication will be approved by the FDA in December. I told him I read that on thi...
have mentioned in earlier posts i was suffering from knee &ankle swelling. it became uncomfortable and started naproxen i month ago. well since then my alt/ast haven't gone down at all. started at 122/199 and am now at wk 14 only at 55/65. also iron saturation went from 32% to 80% but am still u...
Hi all,My doc has lost interest in me now, so I had my last visit today. I'll miss my up-to-dates. He's given me my follow-up regime, and I'll call him if I've got any worries. I got the latest info out of him so here goes. Remember it's only his opinion, and that of his group of Hepatologists.Ankle oedema:...
Sorry I just read this but I can't find it again, got so excited I lost my spot.... Stupid drugs are making me stupid...I want this blood test, and adjust my riba intake if necessary. Such good news!!!! Timothy
I just got a call from my Hepa in regards to my viral load and she said the HCV RNA is UNDETECTED in my blood and my blood levels are all normal!!! I'm so excited!! Does anyone have any experience with this? God is the healer of all things!!!!
Hey all, I just wanted to check in with a week 22 update - 2 weeks to go on this. I'll do my last shot on 9/25 and then my last riba the pm of 9/29. It's like time is going very slowly now. I'm still not able to go back to work because of a separate issue and that's a blessing and a curse together. I've got insomnia s...
I just got a phone call from my hepa's office. My CBC has dropped low enough that he has ordered my specialty pharmacy to overnight ship me the Neupogen injectable. I'm not sure if it will be once or twice a week. But most certainly will be until my WBC comes up. I have read that Neupogen stings on injection...
First visit with the doc since week 4 results (VL 318, down from 9.4 mil at start) Week 8 VL UND, Week 12 VL UND. All other blood chemistry within normal range, WBC dropped a few points, but still normal. (Brain fog, walked out of the office with out getting copies of my labs.) Doc said to get standard CBC la...
Hi Everyone,We've had quite a few enquiries about how the forum is funded and a few people have offered donations towards the cost of running the forum. With this in mind, we now have a “Donate” option. We would like to stress that we don't want members feeling obliged to donate money, as we're well awa...
Hello. I have hepc 1a. Recently decided to go in for testing again to help me decide if I should do the treatment now. Ten years ago I was 757,000 iu/ml. Today I am 3,900,000 iu/ml so clearly the virus has increased. I am 30 years old, just purchased my first home and want to have a baby so badly. I decided now...
Hi all, Gene testing continues, and there is no doubt that treatment and likelihood of response to Rx can be predicted for some diseases. There is still conflicting evidence about particular genes, so I'll talk about 2 that have been mentioned on the Forum.COMT (Catechol-O-Methyltransferase) ge...
Ok so since my husband is not seeing a specialist now ur doctor is going to run some more test to see where he stands with this disease so can yall tell me what kind of test he needs to run so I can take my list when we go to see the doctor? We ran the AST/ALT which were 27 and 34 on 9/4/13. If these test come...
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