Hi, As I wrote before, there is a special way for people living in France to get medicamentation not on the market yet if their doc explain to the Health Department their patient is in danger or so. It's called ATU (temparary authorization of use). Normally labs says yes as French Goverment pay for it a...
I am getting ready to take shot #10 and I can't help but feel that I may be just wasting my time. The doc said I may have to go off therapy if my VL is not at least 1000 or lower or better yet UND....AND MY RESULTS ARE NOT READY!! Sooooooooooo will this be my last shot? Will I be laying on the couch tomorrow with...
Hello again its been a while since I have been on here. I did get my husband to go to the doctor and they blood work results not in however, I did talk to his doctor and he said about the yellowing if it stays then worry but if it comes and goes and that is what I see then he is ok. Has anyone else experienced...
Fibrosis, steatosis and insulin resistance was improved with exercise, low-fat or low-calorie diets in people with HCV according to a recent study in the 2013 August issue of Nutrition Journal.The study establishes the benefits of the low-calorie diet and low-fat diet in management of patient...
I started treatment in March 2012.Now the Dr.'s are bringing up an issue with my thyriod. They say that I havehyperthyroidism as well as being anemic (?) spelling?They are even thinking of taking me out of treatment program, which I am not happy about as I have come this far. My viral load is 'negative'...
Let's see....Angelo stopped TX on August 16 ( 7 weeks into TX) due to very low Hgb 8.5 and Hepatocrit 25.9 levels. platelets 42 The blood transfusion and 1 injection of procrit only minimally increased the levels . So to avoid other unwanted complications NO MORE TX! Since 8/16 I gave him 2 more proc...
Hi everyone. My name is Kayla. I am 22 years old. I've been reading through some posts for the past couple of days and decided to join! Three days ago I got a phonecall saying that I was positive for Hepatitis C. I saw my doctor that day who reviewed my lab results and confirmed the diagnosis. He said that...
So I finally got my husband to go to the doctor no results back yet but is his blood pressure is up does that come from headaches or is it something to do with his liver?
greetings, thought i'd post my recent progress. old dr. called w/cbs's yesterday. hemo went from 9.5 2nd wk. of august to 7.8 as of 8/30. his advice,only 200mg of ribo/day&maybe increase procrit dosage . am still 0/und and have only 5 Days of incivek left. alt & ast is getting better&...
Yes today was especially special, got notification that I cleared the virus from blood work August 19 AST level was 35 and ALT level was 69. Also got letters from Specialists that they never detected state where I was going to cause harm to me or others, was just sufferring from lack of support and med...
Went to the doc today for my blood test results, and everything came in except the VL, which will determine if I continue on the therapy I have been totally stressed out all day over this and when he told me the results did not come in.....well disappointment does not really touch how I felt. He wouldn'...
I am overwhelmed with all the info about participating in a clinical trial. I am genotype 1a and am so tired of all the symptoms. i'd love to get into a trial soon with the new drugs without interferon. Anyone know of one upcoming in the U.S? Thanks in advance! Marcy
Hi, I am from Brisbane Australia. I gave my blood for screening test last Thursday (22nd Aug) for Clinical Trial. I just want to know how long it will take for the report to come for initial screening test. Clinic informed me that report will come from Singapore as a part of trial. My GT 1a and liver f...
Being as to how I am starting my 40th week of treatment, I can't help but be curious as to how many people have been able to succeed in completion of of treatment. What I have found suggests it is less than 25%. Of course that is an old study done by the VA many years ago. Does any one have more current informat...
I know sleep problems are not uncommon with interferon treatment but i'm pissed. Excuse me please. 2 weeks ago I was told if I still had issues sleeping I would get some support medicines to assist with the problem. Go to my appointment yesterday and am told they can't / won't help. I have been on SSRI's...
Hi everyone, So I am 6 weeks post. Went back to work full time 3 weeks ago. Overwhelming stress and pressure. I've been doing this job for almost 30 years and while some stress, it was never anything I couldn't handle. Stress magnified right now due to husband and I am actually staying at hotel this weeke...
Called this afternoon by abt sapphire trial coordinator. "hey man he said, next bus leaves next morning 8.30 Cet, destination Hcv UNDETECTION station. Uhm ..... What's the ticket price I asked.... well.... a few Cl of blood.... eCG... And a few pills... Those are daily....for at least 3 month...
Hey y'all This is a topic that needs to be understood by all people entering treatment for HCV. Its taken from the hepatitiscnewdrugs blog spot the full article can be read there this is just a excerpt. HCV education appears to improve adherence to HCV therapy.[27, 28]However, there are only limit...
Well I made it to a year post and all's well. All blood #s are normal, und and looking forward to my 60th birthday. I'm commuting 9 miles one way on my bike to work, climbing again, all the stuff which I put on hold to get through treatment. Life is blessed if we are willing to receive the blessing.
I have called the pharmacy yesterday and they said it was shipped out and I should receive it today by noon, Well its almost 2pm and I am sort of freaking out here...I do not have any meds for tomorrow..So I called the pharm again and I get voice mail.......... I can't imagine after 9 weeks and now things...
Has anyone done any research on how the liver repairs itself, or if it does, when the Hep-C virus is cleared? I've heard that the liver is capable of regenerating itself, healing itself, etc. but I'm curious if this is the same for Hep-C patients. No alcohol or drugs except those prescribed by my doct...
Just got a call from my GI Dr and my viral load came in. It is actully higher then my 4 week VL, it is currently 805,000. So, I failed treatment, go figure, its just my luck. So, I have been told to stop all my meds. My Liver enzymes are also the highest that it has ever been. My Dr wants to check it again in a month...
Hello and best blessings .. I got a few questions had and still have chronic Hep c for ten years going just had a recent transplant Dec 10th 2012 tried ribosphere and pegentron twice .. Before transplant .. found to be intolerant .. approx 5 years ago was blessed with a 16 year olds liver dec 12th and now 8 m...
Hi all, My friend would need some advice from all of you to tell her what could be the best Trial for her. First she lives in France. She had a blood transfusion 30 years ago and she is GENO 1a, A3/F4 (cirrhosis). She had had 3 treatments, all with interferon. She did not answer at all for the first 2, then...
If I had been treatment naive, I would have been done 3 months ago. I have passed every milestone for the 24 week program, but because of my non-responder status, they say I must go 48 weeks. I don't feel I can go another 3 months, this has really taken a toll on my physical health, not to mention mental hea...
Had a liver biopsy b/c I was having lots of weird symptoms. Had Hep C for 35years. Liver appears to be good (0-1). No RA was found, yet I continue to experience extreme fatigue and pain and stiffness in joints. Do any of you have these? I assume the virus is the cause, even if liver is fine. Any suggest...
Hi! I finished triple therapy in July 2013. I had bad anaemia during tx that kept me in bed most of the time but I didn't mind as I was not in pain or discomfort. Had no itching, rash, nausea, aching, gastro issues so was thankful for that. Am just wondering how long it will take for the brain fog to clear. Am g...
Hi everyone! sorry i couldn't post more before. i had some family issues and was mainly on the road. I am now in 8th week post tx. Seems i have stabilized around 68kg and i hope to get to 73kg (my normal weight), but i still eat and enjoy food a lot. Seems like interferon was reducing my taste/smell senses a l...
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