Hi all, Gene testing continues, and there is no doubt that treatment and likelihood of response to Rx can be predicted for some diseases. There is still conflicting evidence about particular genes, so I'll talk about 2 that have been mentioned on the Forum.COMT (Catechol-O-Methyltransferase) ge...
Ok so since my husband is not seeing a specialist now ur doctor is going to run some more test to see where he stands with this disease so can yall tell me what kind of test he needs to run so I can take my list when we go to see the doctor? We ran the AST/ALT which were 27 and 34 on 9/4/13. If these test come...
Got the labs back from doctor the results read ALT RHC 34U/L and the AST RHC read 27U/L is this what you go by to determine if there is liver damage? His doctor says there is no significant liver damage. This is what we got so far just from reg doctor so now we will go to the specialist to see if he needs to tre...
Im looking for people with genotype 2b who are on treatment, went through treatment, or are awaiting or considering treatment. What was the treatment you were advised to take? Was it successful? Are you waiting for new treatments to become available? Feel free to share whatever you'd like.
Hi. Haven't been here for a while and butted heads with a few of ya'll last time I posted. Anyway...thought I might share what is going on with my new study/treatment plan AS i BELIEVE IT MIGHT SHOW SOME HOPE FOR THE "HARD CASES" LIKE MYSELF as will as naive cases (study has already been done wi...
Oh boy, I just realized that because I was not UND at 8 weeks I will have the 48 weeks of therapy, or if I just don't go UND by week 12 then I'm off the therapy....either way I am so miserable....I so wanted the 24 weeks...This is so not fair... GIVE ME STRENGTH!!!
Renee finally made it back to her liver doc 10 months after her first post-tx appointment a couple of weeks ago. Our finances were really tight, and she had moved over 2 hours away from her doctor...otherwise we would have been there much sooner. The doctor's office called and all her levels are back to...
Hi everyoneI am sorry i couldn't post before. I took vacation to travel to national park in canada that is banff and jasper. I am really free from treatment and enjoy the Hep c free life.I am now in 6th week post tx. Today, Iget my blood test result.I feel good. A lot of energy is back. I am feeling better an...
Hello.. I'm Chris, I'm 65, male, contracted Hep C in 1969. Never treated. My liver shows only slight inflammation with no fibrosis. That's pretty good, perhaps because I've never been much of a drinker. That's very good news. The bad news is neuropathy. My feet have exhibited numb spots for...
I just did Shot#4 on my 4th week of treatment with RIBA and Incivek. It seems to go by so slow when you are counting the days. I just thank God that these medicines are available even though they make us feel like pure ****. To all of my friends on here fighting this Dragon hang in there!!! Cheers to preparat...
So today has finally come. Ran around like a mad woman after work yesterday and then picking up our son to get everything done. Wanted to make sure Brian had everything ready and in place to start.
This morning we were up at 6 and cooked him a nice big breakfast. We have all his pills in his container and al...
Hello!!! My husband is about to start treatment and we have both joined this forum.
He received the results from his liver biopsy and he is stage 3 fibrosis with genotype 1a. He will be doing the triple therapy. He should be starting therapy in about 1-2 weeks max, as we are just waiting for the doctor of...
Hi I know the question sounds very strange, but I am a little bit anxious that I don't respond to Ribavarin. My Hb level reduces only from 14.4 to 13.9 during the 3 months sapphire study. But there is a proportion between Hb-Reduction and SVR. Hi participants of sapphire, turquoise and pearl , do you k...
was having a rough day w/sx,rude nurses aide and some disappointing news at ob/gyn. after seeing dr.,making another appt. and leaving,i grabbed my keys. plop right on my swollen foot. grabbed the cane and shuffled out. next thing you know my big toe is bleeding and it's throbbing. i sit dow...
Hi there. I'm very concerned, like most people about my newly discovered situation. What matters to me is that I have just gotten married and want to have children as soon as possible. Knowing that, I have done some research and learned that it's a no-no to try doing treatment. So, I am pretty much c...
Hi everyone :) I'm 40 yrs old and I just found out I have Hep C through blood work I had done last month for life ins. Policy! Thankfully they didnt deny me, but my premium did go up a little. I had my Primary run tests again to make sure, and the test did come back positive to the virus. Unfortunately the d...
ahh this dry mouth. got thrush for the 3rd time now. this time they gave me a pill antibiotic, and another anyibiotic cuz im kinda sick. my WBC count was 1.7 so they dropped the 5 pills of riba down to 4. then It went up to 2.2 but decided to drop the pill dose to 3 now. weak, short of breath. hope the pill drop do...
Hello, In talking with my doctors, we've agreed to wait on treatment until the non-interferon treatment (psi-7977) becomes available. People in the beta group last year were suggesting that it might be available by the end of this year or early 2014. Has anyone heard of a recent update on the tenta...
Looks like the FDA is not going to drag its feet on this review of Sofosbuvir after all.Yahoo! ( how does one yodel in print)This notice announces a forthcoming meeting of a public advisory committee of the Food and Drug Administration (FDA). The meeting will be open to the public.Name of Committ...
Hello friends! I'm a 34 year old white male newly diagnosed with hep c. After complaining about random symptoms to my primary care for nearly a year, he finally ordered labs that included a liver panel. My AST was in the high range of normal, and ALT slightly elevated at 69 I believe. Hepatitis anti...
Hi folks! reporting in recovery mode at beautiful Dubrovnik. Feeling still most of the time tired, but overall situation is better. Still have some bronchitis from infection (i guess) that prematurely ended my therapy. Tinnitus is still present:/, tho trying to find a good audiologist to do full t...
I get a golf size red mark/bruise where I inject. At week 10 I have a perfect smiley face with my belly button as the nose. Gotta laugh where I can. Good news, no rib rage today. Joint pain and exhaustion tonight. Rearranging the rib timing seemed to help.
You have to be in Washington, DC area during tx. I am considering doing this one but have to look in to cost of temporary housing. Also, I would have to be approved.Combination Therapy for Chronic Hepatitis C InfectionThis study is currently recruiting participants.Verified December 2012 by N...
Hi again , Im suffering to umph degree of itchy and scratchy .. I itch 24 -7 with violent icthiness all over my body .. Im raging from hep o fcourse Any one out there have A simple remedy or anything to relieve this ? God please help .. Im goin off the scale cheers Lawrence from So Cal
48 year old raising 3 grandchildren with SO. He was diagnosed with Hep C geno type 1 and went through treatments that pretty much rendered him useless. I get tested, well cause we've been together 20 years and I have it too, just geno type 2. Docs were confused we were confused. Viral load close to 70...
Hi all, hit my 12 month blood work clean and feel fantastic. Thought I'd drop in and talk about the peripheral neuropathy for those who have any lingering symptoms. The Interferon can cause a little bit of nerve damage. For most of those people it affects, it manifests as sensory, typically as ting...
Hi everyone! How do you add previous tx and geno info to profile where it stays at the bottom of the page whenever you post? Would it be in the bio box? I like this forum, not so distracting like other forums with all the ads.
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
