Maybe a crazy observation but I notice that most Hep C patients feel that they must tell how they got (or believe they got) Hep C when getting on the forum or speaking in public - why is this important? My Doctor asked me how I got mine and I explained my belief but then asked her why she cared? - she quickly e...
Hello, I was reading about the $1000 per pill cost of one of the new drugs and how it can cost $100,000 per person for the treatment. Does anyone have any insight as to how the health insurance companies are going to handle this? Do you think that Blue Cross & Blue Shield, etc. will pay for us to get cu...
US medical societies launch new hepatitis C treatment guidelines `The American Association for the Study of Liver Diseases (AASLD), Infectious Diseases Society of America (IDSA) and International Antiviral Society-USA (IAS-USA) yesterday announced the first new hepatitis C treatment guid...
I would love some words of advice regarding dating with Hep C. Because of divorce, I find myself dating again at 65. This is bad enough without throwing Hep C into the mix. I am rejected on a regular basis and I often feel lonely and hurt. Some days, I feel so badly that I can barely get out of bed. How do you ha...
Had my 6 week post tx blood draw today and meeting with the doc this Friday...and I'm really anxious about it. I don't really have a reason to be. I was 100% compliant with my meds. No scarring or cirrhosis, fairly healthy, UND at week 8 -EOT and my EOT blood work looked great. I'm sure it's normal to be a bit...
Hi everyone. I am Dee. I am a 50 year old wife and mother. I was diagnosed with Hep C in 1998 when i did pre op blood work for cancer surgery. It was concluded at that time, that I had been infected with the virus back in 1985 during two blood transfusion given during delivery of my son. I was later diagnosed...
Hello and thank you all for being here! This site is a wool blanket in front of a hot fire on a cold night in north central Canada. I work in a municipal sewage treatment center and collection system for a city of 70,000. I have all my protective shots i.e. Twinrex, flu shot, and some I can't spell. I am also i...
I was diagnosed in jan, 2013... geno 2. seems like may be some liver damage so possible i had for a long time. had mri, ultrasound, colonoscopy. as of jan 6 began 400 mil sovaldi, and 1200 mg ribavarion daily... viral load around 90,000, not sure if doctor is doing all testing needed. no biopsy done...
I can't believe that I only have one more shot!! It seems like just yesterday I was scared ****less to start treatment. Now I am thankful I had the chance to fight the Dragon!! I've learned a lot about myself by going thru treatment!! Like Joe Dirt says, you gotta keep on keeping on!!! Many thanks to my fri...
Hello everyone, I am on day 20 of the new tx (Sovaldi, Olysio and Riba). For strange reasons (on day 14 blood test they ran HCG blood test versus HCV PCR to be known as second time they made this mistake in 6 weeks and good to know that as a male I am not pregnant, again ????) I had a PCR test two days ago and to...
Recommendation - get your own copy of lab reports and review before seeing dr. In the US, various labs now have patient portals that offer pdf copies of your lab reports - I use these to print out my reports before seeing the dr - I then can use the drs time wisely and be researched/prepared with my questio...
Hi Everyone, I'm still hanging in there! I'm on 22wks of triple tx with peg,victrelis and ribavirin. My tx is for 48 wks. I have been experiencing alot of hair loss. I normally have very thick and long hair. I keep it up or tied back all the time, but it is still falling out from the top and sides. I constantl...
Hi, I have read a lot of very useful information on this site and now it's time to take the plunge. i am a genotype 3a fibroscan Kpa 9.6 age 59. I have been managing the hep c with good diet supplements and exercise in the hope that an interferon free drug would come on the market( like many others I think).Up...
Hi members, I am presently undergoing peg, riba treatment for GT 3. I am currently 20 days into treatment. I will have my week 4 VL test in about a week's time. If it is UND should I go for the standard six months or should I insist that the treatment be for 36 weeks instead. I am asking this because I have read...
Have any Canadian insurance companies approved the cost of treatment with sovaldi? My employee insurance covers loss of wages. I am hoping to make a case for 12 weeks of expensive treatment but continue working vs 48 weeks of laying around puking. Should cost about the same either way.
Ola' folks...the Dr. just prescribed me some flexeril ...it's supposed to help with the fibromyalgia. Does anyone know if this a hard one for the liver to metabolize? The side effect that worries me is agitation...I'm plenty agitated anyway. Thanks and blessings, Iris
Im looking into treatment for 3a, looking at trials. one trial has 3 arms. (12 week sofos,riv,peg) (16 weeks sofos,riv) and the third is (24 weeks sofos,riv) GILIAD is puting on the trial. I have had hep 3a for 30+ years, never been treated, my fibro scan was 37 one month ago. alt 440 the other one...
Hello to alli was stage 1 in July Mild in inflammation with fibrosis. Those results came after a biopsy was performed . I had my gall bladder removed at the same time and they also performed an ECRP i believe to look at my biliary ducts. My bilirubin levels were high and i was developing yellow jaundice. A...
Just got back from Dr. and SVR 24 !!! What a great day i am having. Blood work all in the normal range. Both Alt and Ast at 26. Platelets at 156. everything was good. Thank god for Victrelis, it kicked butt. I was on only 600 Riba and 135 peg for alot of my TX. But i never missed a dose of Vict. Thank you everyone f...
yesterday nurse phoned w/ uplifting news of my und status 1 month eot!!!!! i have the warm fuzzy feeling and serenity until my next test...... best news is that my liver enzymes are almost perfect!!!!! ast/alt=36/41. mallani is so on the $$$$ saying they jump all about. finally my white blood cells we...
Hello. I am in week 13 of PegIntron, Copegus and Victrelis and my main problem is tinnitus. I get loud tinnitus for 2-3 days and then some days without. I am of course also very tired, but the ringing in my head makes me even more tired. Has anyone experienced tinnitus and does anyone know what to do about i...
My boyfriend has Hep C. I am trying to get information that I can give to him. I just found out about the new drug Solvaldi that the FDA approved. Apparently, it is already being prescribed by doctors. What constitutes being a good candidate for this drug? I see that it is used in combination with an...
Hey Y'all, Since we've been posting more individual information about our post treatment recovery, I thought I'd add to the list. I woke up this morning and went about my morning as usual. After two cups of coffee and catching up here, I went to brush my teeth. So far so good. Then I looked in the mirror ...
Ok, so i finished my treatment on 11-9-13. My first viral load was 587,000, second was 18,000, third was 46. Today they called with my final results...but i am totally confused and sounds like the doc and nurses are too- they (when i started treatment) said that as long as they have treated patients for...
I'm having a bit of a medical emergency. It became very painful to breath last week and ended up in emergency Friday overnight. My heart rate would race for no reason at all causing an extreme shortness of breath and pain on each inhale. Also the pain in my body was so unbearable and moving from one part of...
I finish Incivek next monday and am currently wading through 48 weeks...for the last four days I have barely left my bed...I am anaemic but my last blood test two weeks ago had not got any worse. I phoned my treatment nurse who said wait until monday for my regular tests...feel a fool now for ringing her a...
I most likely acquired HCV in the late 60's, early 70's, from ex husband (deceased). First clue was in the early 70's when I tried to give blood, then later in 80's was told I had liver disease of unknown origin. In the late 90's I was experiencing early neurological difficulties, blood tests came back w...
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