In first week of treatment with Sovaldi/Riba and got all of my lab orders today - Dr. is doing labs once weekly due to wanting to watch my kidney transplant closely. Question is around viral load (HCA RNA Quant.) test which is scheduled at twelve weeks. I note that numerous people on the forum report t...
Well in March I go to the specialist to give more blood and begin treatment. I am actually a little scared to start these drugs. I know its not really rational, but considering I hate even taking mild pain killers - before I knew I had hep, it is really a big deal for me. I know the new drugs are much easier and...
Hi All, Went for my 4 week EOT appointment yesterday. My coordinator mentioned that she has 2 new trials for geno 1 coming up this Spring. Anyone living near the Dallas Ft Worth Texas area can private message me for the contact info--or look up Texas Medical Research Center in Arlington Texas. I do...
Wednesday, February 12, 2014 - The Victrelis (boceprevir) label has been updated to include the following information under Section 5 Warnings and Precautions: 5.4 Pancytopenia (Use with Ribavirin and Peginterferon Alfa) Serious cases of pancytopenia have been reported postmarketing in pat...
I'm really curious on how long after you have cleared the virus do the side efects of Hep C leave. My worst side effect from the virus has been severe fatigue, almost debilitating at times and I'm so looking forward to eventually feeling better. Can anybody that's beat this monster share some personal...
We'll it is finally over!!! 24 weeks on Triple Therapy with Incivik!!! I just took my last pills of RIBA and wanted to say thank you to all that helped me get thru it!!! What in the world do I expect to feel like in the next few days???
Took jab 14 last night but seemed to have lost my way over the last few days...feel quite low and tearful...sort of numb in my head.....Ive been out but still feel so c**p....any suggestions gratefully received
Hi all, just signed into the hospital portal and saw that my genotype is 1b. April I'm scheduled for an ultrasound, and then I guess treatment will be discussed with me. I'm looking forward to starting treatment and I feel positive, thanks to all of you guys who post, give your experience, and your ad...
Hello my name is Nathan i am 21 years old and was diagnosed with Hep C genotype 1 when i was about 8 or 9 years of age. I contracted the virus at birth and my mother has no clue how she got it. When i was about the age on 17 i started noticing swelling on my feet. I then went to a doctor specializing in hep c and he sai...
Good morning Everyone, Today's the day I start treatment; the first day of the rest of my life! Oh and we're under a winter storm warning until 6pm Thursday! We're not supposed to get winter storms in the southern Piedmont of NC! Have a great day everyone!
Hi All, As you know I have been on treatment for 6 weeks. During the first few weeks, I had fever after every injection, slight stiffness in my knees and jaw and that was about it. I was on leave from work for about 4 months. 1. I joined work on first Feb. The first two days were okay. On the third day, that is on...
New member here, I've been reading the posts, great forum here and I wanted to introduce myself. I'm Genotype 1, diagnosed 30 years ago. I went through the triple therapy in 2005, cleared the virus but relapsed shortly after. I'm now getting ready for the Solvaldi/Olysio combination. My prescript...
Gileads attempt to counter the Indian PharmaCos.http://hepatitiscresearchandnewsupdates.blogspot.com.au/2014/02/gilead-to-license-hepatitis-c-drug-to.html
I was so incredibly lucky to have received money to pay my Co payments w my triple TX. I unfortunately relapsed. Now I'm scared I won'tbe able to get assistance again. Anyone know if I could?
Hi guys, we finally received the results of hubby's 6 month+ viral load blood tests - SVR finally! Hubby has his specialist appointment in mid February to 'officially' get the results, but our nurse gave us the results over the phone today. To say, we are overjoyed is an understatement. Again thank...
Im on week 13 finished Incivek so now on Peg/Riba and this week have red small itchy lumps on soles and sides of feet and feet feel hot..driving me to distraction. Tried cooling, Hydrocortisone and moisturising has anyone experienced this? Grateful for any possible remedies Sally
Hi All, First off thanks everyone for the warm welcome in the new member section! Much appreciated I started inter/riba and solvaldi 3 days ago. I feel pretty good, a little tired but pretty good. It's back to work tomorrow. I guess I am just wondering if anyone has experience working a construction t...
looking for any help paying for sovaldi, my insurance will only pay half which leaves the remaining fee way out of reach for me.If anyone knows of any financial assistance programs I would really appreciate your help
During a wellness visit to my Primary care Dr.. It was found that I have Hep C.... I am a Genoetype1 and have had the Virus in my body and have been living with it for 14 + Years... I got Hep C from getting a tattoo in 1999 when I met my Brother for the first time... This came from what I though was a professional s...
Hello, Has anyone had a positive experience with healing using the mind? For example, there are 2 areas I would like to work on for myself while I am under TX (Sovaldi+Ribavirin). I would like to be able to work on visualizing a healthy and an smooth liver. Would also like to encourage my body to assist in...
Hi folks. Been a while and all is good. Coming up on a year post Tx cleared. All is good except libedo is gone and other symptoms of "Low-T" although my total is 445 which is in the lower normal range of the scale. I am 48 yoa. Funny thing is that when the Hep C was active (blood work including T chec...
Disappointed but my doctor said this means it's working and I should definitely be clear by 8 weeks. Does this mean I'm in for 48 weeks? I asked and he said it depends on 8 week viral load, but I'm thinking the worst. I just found this... Could this mean a chance for 6 months? Incivek (Telaprevir) In a sub...
http://wh.gov/lNAOJ This is in memory of friends and in honor of those fighting the fight! Thank you! I shortened the thread title, was too long and visually messy.-- Edited by hrsetrdr on Saturday 8th of February 2014 05:05:39 PM-- Edited by hrsetrdr on Saturday 8th of February 2014 05:07:59 PM
Happy Friday Friends I got my complete pre-tx labs in the mail today, only one thing was out of the "normal" range. My doc did not speak to it in his letter so I am guessing he's not concerned however I of course "googled it". My ALP is low at 36 - normal range is 39 to 117. I looked back t...
Just wanted to introduce myself. I am new to the board. My name is Tim. I live in NH. I'm 38 and was diagnosed about 15 years ago. I just started treatment yesterday. So far, so good. Only 12 weeks for me, I almost feel guilty seeing some others with much longer tx times on here. Good luck to all!!
Hi All, I have G1a, prior non responder (to a very early protease inhibitor trial about 5 and half years ago), am now resistant to protease inhibitors, compensated cirrhosis, live in the UK. had HCV since the late 70's. I'm awaiting confirmation for a place on a Gilead trial, sofusbuvir, ledipasvir a...
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