What does the rash look like? I have some type of rash on my arms and lower legs it seems..little pin dots. I just want to make sure that it's normal. It's not really itchy, though I do feel itchy in general. I have been keeping an eye on it and it hasn't gotten any worse throughout the day. On day 5 of tx.
All-- I searched but haven't seen a specific post on this organization on the forums. If you have insurance of any kind and need help with copays for your HCV meds, you should definitely contact them. The process is fast and easy. They quickly approved me for a grant to cover my copays. Maximum grant is $...
I got this post (below) from another forum I am on and felt it Could really help with the new FDA approved meds. SuziQ "I was a non-believer. My drugs were approved today by CIGNafter an appeal. The CIgna specialty pharmacy called me and rather embarrassed told me my copay was $3,500. They gav...
Most people won't be able to afford this, even with insurance. My co-pay this month for JUST 28 Sovaldi pills was $5,556.70. It should go down next month, but I need 6 months of treatment. I wonder WHY there are only 28 pills/bottle instead of 30, when the treatment is always for a specific number of mon...
After wrestling a bit with my insurance company (BSNENY w Express Scripts), I believe my Sovaldi & Riba are on the way. It did take a little coaxing & 3 weeks for it to finally go through. I think that was more due to the specialty pharmacy not understanding how to work with my insurance compan...
From the Washington Post.. http://www.washingtonpost.com/national/health-science/costly-hepatitis-drug-sovaldi-rattles-industry/2014/03/01/86cab0b4-a091-11e3-9ba6-800d1192d08b_story.html
Dr just called after first labs on Friday. He wants me to drop my riba down to 1000 mg. so asked was my rbc's dropping? The nurse said not too bad. Your at 13.0 from 14.0 seems early to drop, no?
Meant tp post this on my Abbott thread apologies Just received a call from my coordinator...still UnDEtectABle at 10 weeks!!!! Going in for my 12 week labs on Monday HOPING for more good news HGB 14 Bili 1.2 Platelets Up to 120 ! sides: insomnia,transient anxiety Strained my neck & finally t...
Wait?http://hepatitiscnewdrugs.blogspot.com/2014/03/an-update-treat-hepatitis-c-now-or-wait.htmlThe-- Edited by suziq on Saturday 1st of March 2014 04:2...
Hi guys, So, I just talked to Express Scripts, who, apparently, changed their minds and approved the Sovaldi+Ribavirin+INF treatment. The agent said that Sovaldi has been approved through end of May, and that it is a 90 day prescription (thus, all meds should mailed at once, not monthly). If anyone...
I am on day 2 of the 12 week treatment plan. So far I did feel some fatigue & a little dizziness. I have been grumpy, but that seems a little better today than yesterday. It really is not that bad... Week 12 will start on Easter, which seems kind of symbolic in a way. I didn't plan it out that way. I'm...
Hi everyone, My 24 wk VL results are finally in: UNDETECTED!!! Yay!!!..... I got 20 more wks left on triple treatment (victrelis,peg&interferon).48 wk total treatment. My regular blood work results as of yesterday have been pretty low. Hemoglobin 110, Red Blood Cell 3.16, White Blood Cell 2...
So first off let me say how valuable this forum has been to me. I just left my specialist who had the report from my fibroscan (F-3) . I have also done a CT scan, and had so many blood samples over the last couple of years. Anyway lots of jargon and numbers flying around but this time I had them print out all my l...
Take a moment to bookmark these pages. They include a wealth of recent and updated articles on several pertinent topics. http://www.natap.org/hcv.htmhttp://www.natap.org/pageone.htmTig
Hi everyone, Tomorrow begins my 4th week of treatment. Insomnia is increasing (it's 2:30 AM), and I've had daily morning diarrhea, but generally all is well. My hemoglobin count dropped from baseline 13 to 12 at 2.5 weeks, but that's not a significant drop or low number, so my MD is fine with keeping me...
Today for the first time; in North Carolina, I have seen commercials for people with Hep C . Warning of the dangers and severity of the disease, and advising people to get treatment. No drugs or types of treatment mentioned , I have see this commerical twice in the past 2 hours. Something great is comin...
Hi everyone, I am considering making a documentary about Hep C. One thing is clear, the information available is poor, hard to research if you don't know what you are looking for, data is hard to decipher, and a lot of information is outdated or miss understood. I checked with Jill if it was Ok to ask the p...
Hey allWanted to clarify the possible time line for Sofosbuvir & Ledipasvir to be available to Patients.After reading the FDA web site about how NDA (New Drug Applications) are processed I was somewhat confused on the timing issue. The Standard review time is 10 months but the Priority review t...
Tomorrow night will be Interferon dart 24 of 24 plus i have 1 more week of Ribaviron. Last time I was at the doctor they told me I would get blood tests at 3, 6 and 12 months. Just got a blood test order in the mail from doctor requesting a blood test 2 weeks post treatment. Is that necessary? I have been UN...
To add to my triple therapy I have now got an abcess on my jaw bone. Im still in the USA visiting my son and had to go to an emergency drop in clinic who have prescribed ABX's and Vicodin...the Dr assured me they would be ok to take for pain whilst on treatment.....the pain is immense...grrrrr not wearing m...
Does anyone know when sofosbuvir and Ledipasvir will come to market? I've been diagnosed with early stage cirrhosis and I would like to start treatment soon.
I was going to start the Sovaldi+Riba+Peg treatment soon for my Hep C, Genotype 1a. But my Dr. at the VA said that because I only have stage 1 fibrosis it would be wise to wait for the newest combo to come out at the end of the year. He said its all but sure to be approved. I'm talking about sofosbuvir/ledip...
Finally, everything is sorted out and I got all my meds. First dose of riba and sovaldi down..I am officially on tx. I am trying to keep my anxiety under control and let me tell you that is a chore for me! Lol. Tonight I take the interferon.
Neighborhood Healthcare in El Cajon has recommended I seek out a hepatologist due to my diagnosis of Hep C. I have applied for Medi-cal. This can take 30-45 days. I feel like I need to be more pro-active. Should I apply for Medicare as well? If I receive the Medi-cal what is my next step? Seems like I'm not...
Hi everyone, Time for my formal introduction. I am SO happy to have found you all. Recently joining this forum has been a relief, and made me realize how much this disease has been a lonely 40-year journey. It feels great to have met a group of people with whom I can talk openly about treatment and concern...
This is the link to a new video I saw on TV tonight by Gilead. It is beautifully done and has NO stereotypes--but features baby boomers. It is called Forget Me Not by Gilead. Check it out. vimeo.com/87138447 I was very impressed.
On February 24, 2014, FDA approved an update to the Victrelis (boceprevir) label to include a new virologic futility rule. Specifically Section 2, Dosage and Administration, Table 1 was revised to state: If a patient has HCV-RNA results greater than or equal to 1000 IU/mL at treatment week 8, then d...
Greetings, As I have four more weeks left in tx I intend to try and get a jump on recovery. I can't stand all this sitting around waiting, besides I want to start golfing once the 3 meter snow banks melt away. Not to mention getting back to work. The plan is to get a membership in our public pool which offers...
I am a 39 yr old single mother of two and grandma to 1. I have recently been diagnosed with Hep C, Auto Immune Hep, Fatty Liver disease, and stage 4 cirrhosis as well as recently Type 2 Diabetes. I am currently awaiting the prior approval from my insurance for the Sovaldi since they do not believe that I wil...
Hello I'm Dan, Newbie here, getting ready for tx. soon. Just wanted to introduce myself here. I will be starting sovaldi/Olysio/Riba hopefully this wed. if UPS delivers on time. TX nieve GT1a Q 80K pos. stage 3 fibrosis. Hopefully this combo will slay those little unwanted critters once and for go...
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