I am on day 2 of the 12 week treatment plan. So far I did feel some fatigue & a little dizziness. I have been grumpy, but that seems a little better today than yesterday. It really is not that bad... Week 12 will start on Easter, which seems kind of symbolic in a way. I didn't plan it out that way. I'm...
Hi everyone, My 24 wk VL results are finally in: UNDETECTED!!! Yay!!!..... I got 20 more wks left on triple treatment (victrelis,peg&interferon).48 wk total treatment. My regular blood work results as of yesterday have been pretty low. Hemoglobin 110, Red Blood Cell 3.16, White Blood Cell 2...
So first off let me say how valuable this forum has been to me. I just left my specialist who had the report from my fibroscan (F-3) . I have also done a CT scan, and had so many blood samples over the last couple of years. Anyway lots of jargon and numbers flying around but this time I had them print out all my l...
Take a moment to bookmark these pages. They include a wealth of recent and updated articles on several pertinent topics. http://www.natap.org/hcv.htmhttp://www.natap.org/pageone.htmTig
Hi everyone, Tomorrow begins my 4th week of treatment. Insomnia is increasing (it's 2:30 AM), and I've had daily morning diarrhea, but generally all is well. My hemoglobin count dropped from baseline 13 to 12 at 2.5 weeks, but that's not a significant drop or low number, so my MD is fine with keeping me...
Today for the first time; in North Carolina, I have seen commercials for people with Hep C . Warning of the dangers and severity of the disease, and advising people to get treatment. No drugs or types of treatment mentioned , I have see this commerical twice in the past 2 hours. Something great is comin...
Hi everyone, I am considering making a documentary about Hep C. One thing is clear, the information available is poor, hard to research if you don't know what you are looking for, data is hard to decipher, and a lot of information is outdated or miss understood. I checked with Jill if it was Ok to ask the p...
Hey allWanted to clarify the possible time line for Sofosbuvir & Ledipasvir to be available to Patients.After reading the FDA web site about how NDA (New Drug Applications) are processed I was somewhat confused on the timing issue. The Standard review time is 10 months but the Priority review t...
Tomorrow night will be Interferon dart 24 of 24 plus i have 1 more week of Ribaviron. Last time I was at the doctor they told me I would get blood tests at 3, 6 and 12 months. Just got a blood test order in the mail from doctor requesting a blood test 2 weeks post treatment. Is that necessary? I have been UN...
To add to my triple therapy I have now got an abcess on my jaw bone. Im still in the USA visiting my son and had to go to an emergency drop in clinic who have prescribed ABX's and Vicodin...the Dr assured me they would be ok to take for pain whilst on treatment.....the pain is immense...grrrrr not wearing m...
Does anyone know when sofosbuvir and Ledipasvir will come to market? I've been diagnosed with early stage cirrhosis and I would like to start treatment soon.
I was going to start the Sovaldi+Riba+Peg treatment soon for my Hep C, Genotype 1a. But my Dr. at the VA said that because I only have stage 1 fibrosis it would be wise to wait for the newest combo to come out at the end of the year. He said its all but sure to be approved. I'm talking about sofosbuvir/ledip...
Finally, everything is sorted out and I got all my meds. First dose of riba and sovaldi down..I am officially on tx. I am trying to keep my anxiety under control and let me tell you that is a chore for me! Lol. Tonight I take the interferon.
Neighborhood Healthcare in El Cajon has recommended I seek out a hepatologist due to my diagnosis of Hep C. I have applied for Medi-cal. This can take 30-45 days. I feel like I need to be more pro-active. Should I apply for Medicare as well? If I receive the Medi-cal what is my next step? Seems like I'm not...
Hi everyone, Time for my formal introduction. I am SO happy to have found you all. Recently joining this forum has been a relief, and made me realize how much this disease has been a lonely 40-year journey. It feels great to have met a group of people with whom I can talk openly about treatment and concern...
This is the link to a new video I saw on TV tonight by Gilead. It is beautifully done and has NO stereotypes--but features baby boomers. It is called Forget Me Not by Gilead. Check it out. vimeo.com/87138447 I was very impressed.
On February 24, 2014, FDA approved an update to the Victrelis (boceprevir) label to include a new virologic futility rule. Specifically Section 2, Dosage and Administration, Table 1 was revised to state: If a patient has HCV-RNA results greater than or equal to 1000 IU/mL at treatment week 8, then d...
Greetings, As I have four more weeks left in tx I intend to try and get a jump on recovery. I can't stand all this sitting around waiting, besides I want to start golfing once the 3 meter snow banks melt away. Not to mention getting back to work. The plan is to get a membership in our public pool which offers...
I am a 39 yr old single mother of two and grandma to 1. I have recently been diagnosed with Hep C, Auto Immune Hep, Fatty Liver disease, and stage 4 cirrhosis as well as recently Type 2 Diabetes. I am currently awaiting the prior approval from my insurance for the Sovaldi since they do not believe that I wil...
Hello I'm Dan, Newbie here, getting ready for tx. soon. Just wanted to introduce myself here. I will be starting sovaldi/Olysio/Riba hopefully this wed. if UPS delivers on time. TX nieve GT1a Q 80K pos. stage 3 fibrosis. Hopefully this combo will slay those little unwanted critters once and for go...
I came across this website that offers a number of current reports on issues directly and indirectly related to present therapies being offered. I think you'll find several interesting articles discussing the topics we've been discussing here recently. http://www.healio.com/infectious-di...
Heres a link to a site I saw in a tv commercial. Click the link "see our tv add" on the right top of page. This was a first for me to see hep c treatment commercial on TV. http://www.hepchope.com/
Great News for the future Demise of HCV Gilead Files for U.S. Approval of Ledipasvir/Sofosbuvir Fixed-Dose Combination Tablet for Genotype 1 Hepatitis CFollow this linkhttp://hepatitiscnewdrugs.blogspot.com/2014/02/gilead-files-for-us-approvalledipasvirs.html
Monday, February 24, 2014 PRINCETON, N.J. - Bristol-Myers Squibb Company today announced that the U.S. Food and Drug Administration (FDA) has granted its investigational DCV Dual Regimen (daclatasvir and asunaprevir) Breakthrough Therapy Designation for use as a combination therapy in the...
Hello, I just saw a TV advertisement for this new HCV informational website (from Gilead). I thought you'd like to investigate it yourselves. http://hepchope.com/ Good luck, Tig
I don't know why but I have started feeling low these days. There is no definite reason. As, I have shared with you all, my family is super supportive. Things are okay at the work front too. Infact, yesterday was my birthday, and we went out for a team lunch. We also had cake cutting in the office. Even, whe...
Two things to be thankful for. I've been feeling good for three days now. And this is Sunday after my shot and I still feel good. And it's not even my counts as my platelets were 51 Friday, hemogloben 101, WBC 1.6 and ANC .79 so they all still suck...lol. God must have felt sorry for me and is giving me a repri...
Just found out that I am undetected after 2 weeks of Sovaldi and Ribaviran. Did not realize that it would work that fast!! So excited, I'm basically freaking out right now!! :)))
Wanted to give an update. Midway through my 5th week of Treatment! Side Effects have been minimal, the most noticeable has been needing a nap almost every day around 3-4 and going to bed by 9 pm! So I guess naps aren't that bad of a thing :) I am learning to slow down anyway so it's gotta be good for me. Had a...
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