I am a new member to this board but not new to HCV. I was diagnosed in 2000, genotype 1a. I've probably had HCV since the 70s. After being diagnosed I became an active member of some online support group/message boards similar to this one. After modifying my diet and my lifestyle for a considerable perio...
Hi all! I am in Australia and have just been diagnosed am about to start treatment soon and believe it will be Ribravirin and Interferon . I am to have a fibrosis scan yet to ascertain extent of liver damage - and just recently had blood test to determine genotype, so I do not know much at this point. ...
I desperately need to get a recommendation for a good hepatitis C doctor in the Washington, DC metropolitan area - District of Columbia, Virginia or Maryland. I am in a clinical trial in Baltimore, Maryland but I need my own hepatitis C doctor. I would truly appreciate any recommendations!
For all the 48 triple tx ppl. I have 9 weeks left. I'll give ya's a run down on how it went so far as I've been asked. At first we start out jogging down the tx path. I was on incivek. I was anemic at week 7 and had to get three transfusions and still on procrit but I was still jogging along. My "jog" st...
As you can see from my avatar, I am not having a good week. Now I know why. Platelets 44, ANC .5 .... I've been tired, cranky, blah feeling, dizzy and all around not very fun to be with! And random bruises keep appearing! Two more weeks of Incevik and praying for higher blood counts. This stuff is nasty .......
31 years and no major effects! then august 2013 1900 alt and 1300 ast alkaline 187 bilirubin1.7lipase133 13.55afp-tm. got a biopsy in nov -f3 got aprove for solv-ribapack 12 week got meds but cant start cause platettes are to low like 139.doctor says I also have recuurring ebstien bar that drive my n...
Hi Everyone, So do you want the good or bad news first? Okay, I'll start with the good news. The good news is that my husband has achieved SVR at 6 months post treatment. Hooray! The bad news is that we recently found out that he has an underlying heart condition that he was born with called Hypertrophi...
I am a 63 year old woman. HCV Antibodies detected in 1992. Likely infected in 1976 blood transfusion. Now seem to have active disease. Viral load 2.5 million. Normal ultrasound. AST 77 ALT 74. Type 1B. Scheduling biopsy. Dr. recommending mix including Interferon. Oncologist friend says "av...
Does anyone know if the boomers on Medicare Part D are covered for new non interferon drugs. I thought I read yes , then no , then alot of iffy bits. And also if you have Medicare D you are not eligible for asst with cost from drug companies. All response welcome. Thank you Michaele
From Bloomberg.com March 4, 2014... "The new drug has arrived as the 2010 Patient Protection and Affordable Care Act, known as Obamacare, promises to add more than 12 million people to the Medicaid program in a nationwide expansion. At the same time, health-care costs for states continue to...
March 2014 HCV Newsletter, from the HCV Advocate website. Articles included this month... - Gilead files for FDA Approval of Sofosbuvir (Sovaldi)/Ledipasvir combo - Hep C and Nutrition - Co-Pay Assistance - Disability and Benefits: Completing Questionnaires - HCV Drug Development News[url]h...
After spending untold bucks on supplements through the years and finally realizing that most of it was a waste, IMHO, the following article struck a chord... http://www.hcvadvocate.org/news/newsLetter/2014/advocate0314.html#2
Hello All Today Abbvie released there resistance profiles on not only their new DAA's in the pipeline (ABT-530 and ABT-493) but also about their current drugs (ABT-450 and ABT-267) Very interesting on all RAVs that can be produced with the older DAA's Follow these links to read the data and graphs h...
Tuesday, March 4, 2014 - CROI (Conference on Retroviruses and Opportunistic Infections) is an annual conference that focuses on research information about HIV. In the last few years, more and more coverage has been presented on HCV monoinfection and HIV/HCV coinfection. The table below is a br...
I just heard about this stuff, someone suggested it for my cat who has tumor in his mouth. Is it a snake oil? It supposedly is supposed to "cure"cancer. Looks like it was a liver cure all too.. .just wondered if anyone had any experience, strength or hope on this one....thanks Iris
Hello People, I'm about 5 weeks into TX and my blood levels are falling. Sorry this is hard to read, its a copy paste. I think each lists my numbers, followed by the normal range. So for Hemoglobin I am at 10.6 for example. I did go UND after my 1st monthly, so I know the Sovaldi/Riba (1200mg) is working. I fe...
When I read that Pharmasset was able to clear the Hepatitis C virus in two weeks (including genotype 1) in 15 out of 16 patients without using interferon, I immediately had a strong suspicion that other pharmaceutical companies were going to start pushing their long and drawn out cures. Within a wee...
went to doc today. they are going to do paperwork to treat me with solvadi. the other one i can't do as she said it was in the family of the protease inhibitor. so the sovaldi interfereon & riba. they will decrease the riba 1/2 of the normal. so waiting to see what happens. it could be 2 months or so b4 i ca...
Dec. 6, 2013 - The US FDA has approved Sovaldi (sofosbuvir) 400 mg tablets, a once-daily oral nucleotide analog polymerase inhibitor for the treatment of chronic hepatitis C (CHC) infection as a component of a combination antiviral treatment regimen.Sovaldi`s efficacy has been established in...
I'm 10 years post treatMent. my viral load was less than 50 12 months after treatment and my dr. Said I was cured. Haven't really thought much of it since (really it's always in the back of my mind but not enough to bother me). I had type 3 which is "easy" to treat. My initial viral loaf was only 30...
I'm two days into week 5 of Sovaldi/RIBA treatment, and I'm noticing a general lifting of negative mood. I just feel more "glass half full." 40 years in a bad mood. Do I get to be happy starting in my 60th year? I'll take it! Check out this 2009 study on emotional distress and HCV: http://www....
Hi all, I went to lab yesterday for my 2 week (day 15) blood draw - CBC only, no VL and my doc called me at 8:20am this morning with the results. He stated that the good news is my Hemoglobin did not drop, it actually went from 13.2 to 13.5. (I questioned of course if this is actually good news). I asked if that m...
Bangkok, Thailand, February 28, 2014 - Thirty-eight activists from 22 countries joined forces at the first-ever Hepatitis C Virus (HCV) World Community Advisory Board (CAB) to demand equitable access to treatment for hepatitis C virus (HCV) from six multinational pharmaceutical companies....
From USA TODAY March 3, 2014:"State Medicaid agencies are just now beginning to react to the implications of the two new medicines. The majority of Medicaid beneficiaries are in managed care plans, but those managed care plans set their capitation rates (the amount Medicaid pays managed car...
What does the rash look like? I have some type of rash on my arms and lower legs it seems..little pin dots. I just want to make sure that it's normal. It's not really itchy, though I do feel itchy in general. I have been keeping an eye on it and it hasn't gotten any worse throughout the day. On day 5 of tx.
All-- I searched but haven't seen a specific post on this organization on the forums. If you have insurance of any kind and need help with copays for your HCV meds, you should definitely contact them. The process is fast and easy. They quickly approved me for a grant to cover my copays. Maximum grant is $...
I got this post (below) from another forum I am on and felt it Could really help with the new FDA approved meds. SuziQ "I was a non-believer. My drugs were approved today by CIGNafter an appeal. The CIgna specialty pharmacy called me and rather embarrassed told me my copay was $3,500. They gav...
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