my husband has gone thru 2 treatments with no luck. we are waiting to see if his new doc will try the new meds. he was cirrhosis pretty bad. rick gets so chilled all the time. then he will over heat. I guess im just looking for ideas to help him. being the caregiver it gets hard. I also have hep c but it seems ok....
Summary from CROI 2014 for Hepatitis HCV direct acting antivirals (DAAs) in HCV and HIV/HCV coinfection: same outcome? Which DAA regime will allow for the shortest treatment duration? From the 21st Conference on Retroviruses and Opportunistic Infections, Boston, MA March 3 - 6, 2014An interest...
Please excuse this lazy writer and I hope I find you all in good health and spirit. It's been a while since I have visited this forum. Just wanted to update and ask a few questions. Tom and I recently went for his three month liver CT scan. This was our third check up and the cancer hasn't returned and we ar...
(Reuters) - "Gilead Sciences, facing mounting criticism over the high price of its new hepatitis C pill Sovaldi, has offered to supply the medicine to Egypt at a 99 percent discount to the U.S. price. While the drug will still cost $900 for a 12-week course of treatment, that is a fraction of...
Test results back today 12 week post treatment.All chemistry panel results back to normal or very close (except AST) and viral load NOT DETECTED.Halfway there!Went skiing last 2 weekends.Short backcountry trip and a few runs on the ski resort on the lifts.Just walking up to the first lift made...
So, who has had problems with joint pain, how long did it last and does it go away after treatment? My hips and shoulders (between my shoulder blades) have been aching since yesterday and I mean aching! Been taking Tylenol for arthritis which seems to help. Is this from the incevik? Don't remember hav...
Well, I am finally rid of the little purple pills. Took the Elusive Three that I missed a couple of weeks ago this morning. Maybe its mental, but I sure feel great today. The sun is out, I got a new hair cut, went to MacDonalds for an Egg McMuffin, and am going to the show this afternoon with my niece and siste...
Hi, New to the forum and i wanted to stop in and share. I was diagnosed with Hep C stage 1 back in July of 2013. By late August i was at stage 3. I have been on the Olysio/Sovaldi tx for 15 days, just had blood work done today and will know next wed. how im doing. First two days i had some nausea and dealt wi...
Hi all Does anyone have any suggestions for a constantly sore mouth, sides of mouth and really sore throat...had more or less since starting the Triple but getting to a point of complete irritation with it now...husband prefers it I think as it keeps me quieter
I just came back from the hospital, and apart from a rise in ASAT all is normal. It was disappointing that the it is not sorted in the Netherlands for Sofosbivr, it is still going through paper channels and unless it is life or death everyone else has to wait. Over here for a course it will cost 30 thousend E...
Hi, I'm a 25 year old who has had HCV for 4 years. I would really like to begin treatment, but for three years now every time I've gone in for testing, my initial round of blood work has fairly high viral load, but then each time my doctor has had me come in again to determine a genotype, hoping to begin treat...
I was told at my appt. in the middle of Feb. that I would be starting this combo. I was also told it would take 4-6 weeks before I heard anything from my specialty pharmacy. It's been 5 weeks and I still have not heard from them. I called my nurse and she said that they pharmacies are very busy because so may pe...
Hi Again, Thanks so much for all the great advice and helping me sleep at night with your real world scenarios! The responses I've received in other posts have seriously been "stress savers" for my wife and I both. I just called the Dr. Office to see if my Genotype Lab is returned and was no...
Just so everyone knows (if you didn't already) just because a company mails you your meds from a completely different state, doesn't mean that they are not a "local retail pharmacy." Makes zero sense. How was I supposed to know that? You would think my doctors office would know that they we...
From the Decision Resources Group March 19, 2014"Cost is the leading prescribing barrier for both Olysio and Sovaldi. Although most surveyed prescribers did not indicate major payer obstacles, many non-prescribers reported experiencing reimbursement obstacles, suggesting that re...
Welcome to our new forum area dedicated to HCV/HIV co-infection. If you, your partner, or care giver are affected by this please feel welcome to introduce yourself and post here, whether you are living with an HCV/HIV co-infection, on treatment or awaiting treatment, or giving support to someone...
I found this easy to read guide released by drug maker Abbvie. Might help some people understand this better. I like to say, "Knowledge is Power"! HCV: FORWARD MOTION Tig
Found an article from Nov. 2012, is an interesting read. Their vision and expectations of successes and failures were pretty accurate. --- Tig Perspective Beyond Telaprevir and Boceprevir: Resistance and New Agents for Hepatitis C Virus Infection http://www.iasusa.org/sites/defaul...
Last week right before my 4 week blood draw last Friday, my temper went off the charts, complete with enough rage for pounding blood pressure and my head feel like it would blow up. Friday after the blood draw, I received a call from my doctor that I had anemia and should reduce my ribasphere to 800 m...
Hi everyone I've been reading for a while but I thought maybe people could find mutual benefit in my existence here. So here is my Hep c story. I'm a 53 yr old male that found out I had this disease Jan. 2012 , I didn't know I had it, and other than always being tired and achy.....and being a 31 year married man...
Hi everyone my name is Janine I have hep c genotype 1a/1b I am awaiting news of when I will start my trial with sofosbuvir, has anyone out there got some advice anything really, I refused the interferon due to being told that it would more than likely not help me have just come from my specialist today he in...
I literally crossed my fingers before I clicked the link for my test results. I can't believe how thrilled I am! I'm so happy for all of us who are responding to this treatment so well. It really is an amazing time. My hemoglobin levels have held up well. A smaller drop from week 2.5 - 5 than from baseline to...
Hi I have not been diagnosed with Hep C, in fact, I haven't been tested yet. I'm just really curious if someone could have Hep C for decades and not know it? Dr says I need to be tested, even though I'm 58 and the last possible exposure would be over 35 yrs ago (did dabble a little in drugs as did many of my gener...
dropping by to report how good I feel at 11 months post treatment/achieved SVR. I feel better now than I did before starting treatment. My treatment was hard and it took till now for me to feel brand new! Spring is arriving and I am working out and experiencing good energy levels! So grateful for stre...
Happy Friday all! Got a chipper voicemail from my liver PA this afternoon - my 4 week VL came back UNDETECTABLE!!! He said that all my liver enzymes looked good - my WBC count is still high but it's steady at 12 which is what it was on 2/28/14. I'm still not convinced that it's not related to the treatment...
Hi everybody, just received my week 3 viral count and wanted to share this with everybody that's on the Sovaldi/Olysio combo, I'm undetected after 21 days! Started at 3.7 million, went to 244 after 7 days and now undetected. I'm feeling very grateful and wanted to wish everybody else the same succes...
Ive actually signed up on this website in 2011 but it was a very bad year as my close friend, husband and then mother all passed away so I never got around to posting anything. Feeling much better now, especially with the new treatments available! How exciting. i was diagnosed in 1997 and tried the inte...
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