Today is day 29 which means this morning I was "poppin' bottles" .... of Riba and Sovaldi that is!!! Onto the next 28 days I go.... Just got home from my Week 4 Check-In with the liver doc. He walked in the room just as I was chugging from the extra large jug of water I travel with these days; it ma...
Dear All, I am done with 12 weeks of peg interferon ribavarin treatment. I have now started experiencing neutropenia (150) Range 200 to 700). My monocyte % is also rising over the weeks it is now at 11%. I am upset. I know that many people experience low neutrophil counts during treatment. But I do no...
New guidelines given to clinicians as of March 2014 for recommmendations on testing, managing and treating HCV. Thought it would be helpful for those just diagnosed, about to be treated or retreated, or on treatment, etc. Helps our understanding of the changing landscape. http://www.hcvgui...
From the American Chemical Society: "The progress in HCV therapy in the last three years is similar to the progress that took HIV therapy ~14 years. We are at the brink of approval for an all-oral drug combination that is dosed once daily as a single pill, has >95% efficacy, and is well tolera...
I hve been itching (am not on any treatment) nurse practioner gve me this stuff to drink twice a day .to see if liver was doing this terrible itch to me. I really can't tell if it is doing anything. just wondering if anyone here had ever delat with this.. Taz
I don't know what might be causing this but last week I had an MRI done on my liver. The tech went to put the IV in and had trouble getting a good vein. As a result I had a big bruise. My platelet count is down around 71 so that accounts for the bruising but with all my recent bloodwork and lab tests the technicia...
My Doc just told me (via voicemail, missed his call) that I do have the NS3 Q80K and that I shouldn't worry because he was going to have me do my treatment just as planned. He said it just meant that if I were to stop doing my treatment the virus could become more resistant. From what I read having this lower...
I have not started treatment yet (another week) and I have heard itching can be a Sx but I'm already there big time. Every night around 8ish I start to itch first like spider webs on my face and upper body then all over skin crawling. I am having trouble sleeping and see most every 3am roll past on my clock. I...
Happy monday! So this evening marks my official halfway point. At 7:15pm this evening I will take my evening Riba which will conclude my first 6 weeks of treatment! The Riba, those blasphemous little pink pills, are starting to annoy me. I've got riba rash in my cleavage!! Fellas, I don't expect you t...
my husband has gone thru 2 treatments with no luck. we are waiting to see if his new doc will try the new meds. he was cirrhosis pretty bad. rick gets so chilled all the time. then he will over heat. I guess im just looking for ideas to help him. being the caregiver it gets hard. I also have hep c but it seems ok....
Summary from CROI 2014 for Hepatitis HCV direct acting antivirals (DAAs) in HCV and HIV/HCV coinfection: same outcome? Which DAA regime will allow for the shortest treatment duration? From the 21st Conference on Retroviruses and Opportunistic Infections, Boston, MA March 3 - 6, 2014An interest...
Please excuse this lazy writer and I hope I find you all in good health and spirit. It's been a while since I have visited this forum. Just wanted to update and ask a few questions. Tom and I recently went for his three month liver CT scan. This was our third check up and the cancer hasn't returned and we ar...
(Reuters) - "Gilead Sciences, facing mounting criticism over the high price of its new hepatitis C pill Sovaldi, has offered to supply the medicine to Egypt at a 99 percent discount to the U.S. price. While the drug will still cost $900 for a 12-week course of treatment, that is a fraction of...
Test results back today 12 week post treatment.All chemistry panel results back to normal or very close (except AST) and viral load NOT DETECTED.Halfway there!Went skiing last 2 weekends.Short backcountry trip and a few runs on the ski resort on the lifts.Just walking up to the first lift made...
So, who has had problems with joint pain, how long did it last and does it go away after treatment? My hips and shoulders (between my shoulder blades) have been aching since yesterday and I mean aching! Been taking Tylenol for arthritis which seems to help. Is this from the incevik? Don't remember hav...
Well, I am finally rid of the little purple pills. Took the Elusive Three that I missed a couple of weeks ago this morning. Maybe its mental, but I sure feel great today. The sun is out, I got a new hair cut, went to MacDonalds for an Egg McMuffin, and am going to the show this afternoon with my niece and siste...
Hi, New to the forum and i wanted to stop in and share. I was diagnosed with Hep C stage 1 back in July of 2013. By late August i was at stage 3. I have been on the Olysio/Sovaldi tx for 15 days, just had blood work done today and will know next wed. how im doing. First two days i had some nausea and dealt wi...
Hi all Does anyone have any suggestions for a constantly sore mouth, sides of mouth and really sore throat...had more or less since starting the Triple but getting to a point of complete irritation with it now...husband prefers it I think as it keeps me quieter
I just came back from the hospital, and apart from a rise in ASAT all is normal. It was disappointing that the it is not sorted in the Netherlands for Sofosbivr, it is still going through paper channels and unless it is life or death everyone else has to wait. Over here for a course it will cost 30 thousend E...
Hi, I'm a 25 year old who has had HCV for 4 years. I would really like to begin treatment, but for three years now every time I've gone in for testing, my initial round of blood work has fairly high viral load, but then each time my doctor has had me come in again to determine a genotype, hoping to begin treat...
I was told at my appt. in the middle of Feb. that I would be starting this combo. I was also told it would take 4-6 weeks before I heard anything from my specialty pharmacy. It's been 5 weeks and I still have not heard from them. I called my nurse and she said that they pharmacies are very busy because so may pe...
Hi Again, Thanks so much for all the great advice and helping me sleep at night with your real world scenarios! The responses I've received in other posts have seriously been "stress savers" for my wife and I both. I just called the Dr. Office to see if my Genotype Lab is returned and was no...
Just so everyone knows (if you didn't already) just because a company mails you your meds from a completely different state, doesn't mean that they are not a "local retail pharmacy." Makes zero sense. How was I supposed to know that? You would think my doctors office would know that they we...
From the Decision Resources Group March 19, 2014"Cost is the leading prescribing barrier for both Olysio and Sovaldi. Although most surveyed prescribers did not indicate major payer obstacles, many non-prescribers reported experiencing reimbursement obstacles, suggesting that re...
Welcome to our new forum area dedicated to HCV/HIV co-infection. If you, your partner, or care giver are affected by this please feel welcome to introduce yourself and post here, whether you are living with an HCV/HIV co-infection, on treatment or awaiting treatment, or giving support to someone...
I found this easy to read guide released by drug maker Abbvie. Might help some people understand this better. I like to say, "Knowledge is Power"! HCV: FORWARD MOTION Tig
Found an article from Nov. 2012, is an interesting read. Their vision and expectations of successes and failures were pretty accurate. --- Tig Perspective Beyond Telaprevir and Boceprevir: Resistance and New Agents for Hepatitis C Virus Infection http://www.iasusa.org/sites/defaul...
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