People living with both HIV and hepatitis C will be amongst those to benefit the most as the new and improved hepatitis C drugs become widely available.According to Professor Gregory Dore from the Kirby Institute, hepatitis C progresses about twice as fast in people who are also infected with HIV ma...
My nurse told me 3 - 4 weeks and I would hear from my insurance company and then the meds would be mailed to me and I then have to make an appt so the nurse can show me how to administer it properly. It's been almost 6 weeks and I haven't heard anything from anyone! I have a call into the nurse but so far I still hav...
Here are some updates that I think you all might find interesting. The first in the group deals with patient adherence. One of the biggest causes of premature treatment failure was due to the pill burden. The new treatments are so much better in that respect. When I was on treatment recently, taking th...
Hello all. I am new at this and look forward to sharing my experience with the new drugs. Savaldi just approved me got my letter today. Now just waiting for olysio. My doc just started working with them. I am not sure how long it will take but savaldi took about 3months. I really hope it will be soon so I don'...
Well guys, I have had a very emotional weekend. Only those of you who have got the call telling you to stop treatment understand what a kick in the gut that can be. I had a temper tantrum cry baby attack that involved leg kicks and pillow punches (my husband knew enough to give me some time alone), then I gra...
Well friends i am coming to a close with my tx Sovald/ Olysio with just.... actually 3 days left of meds...Latest results were Undetected will all my Liver functions and levels normal.going for an Mri in 2 weeks and for more Labs. I am Grateful to my maker for giving wisdom to those involved in the proces...
Today was my first day at work with no meds. Finished up Interf on 2/28/2014 and Riba on Friday. I had a great weekend and good day at work today. I have already noticed I am sleeping better. I still ran "out of gas" at times today, but worked better than I have for a long time. Not stressing a...
Listen to this interview about a man living with Hep C. Pretty inspiring stuff: bit.ly/manschool14 Living with the Disease -- Edited by Tig56 on Saturday 29th of March 2014 08:08:21 PM
Can an expert check these out and let me know how they look? These were my numbers before treatment. thanks so much!!TestAttributeValue(Normal Range)LOINC CodeResultDateHCV RNA by PCR, Qn Rfx GenoHepatitis C Quantitation673000 ()11011-4 Feb 26, 2014HCV RNA by PCR, Qn Rfx GenoHCV log105.83 ()...
Hello, I am new to this forum and there is a lot of good information on this. I was diagnosed with Hep C Geno 2 in 2000. I have attempted the traditional treatment twice but could not finish because of the depression. I was a heavy drinker throughout all those years. Just recently I have decided to quit...
Most patients coinfected with hepatitis C virus and HIV were not sent for treatment of their hepatitis infection, with minorities being referred least of all, according to research presented at the 2014 Conference on Retroviruses and Opportunistic Infections.Coinfected HIV/HCV minorities r...
After relapsing after 48 weeks of hellish trip Rx. I went to Tufts Boston for the latest on new treatment. I was told to hold out a few months for the all oral Rx Sofosbvir/Ledipasvir fixed dose combination.
Fingers crossed
He says not to worry - I don't have cirrhosis and he will get me the new treatment within a year. But DAMN - it sucks. My VL was up to 100 at 12 weeks. Guess I'll just be here for the company now and not the complaining ...lol. -- Edited by Gracie on Saturday 29th of March 2014 01:03:13 AM
This may help those interested or having questions regarding the liver function tests. This is a PDF file that does a decent job of explaining the LFT's and the various functions involved. I hope it helps to educate and clear up some of these often confusing test results. LFT's: Sorting out the Diagno...
Just wanted to check in with my 4 month stats as a non responder who had to go off the triple therapy. I have gained every lb back and the belly bloat is back. I have episodes of liver pain again. Lately I feel sick if I eat anything unhealthy, sort of when I was on the meds, but not as severe. My hair starte...
"...Although accelerated assessment of this investigational fixed-dose combination could shorten EMA's review time by approximately two months, it does not guarantee a positive opinion from the EMA's Committee for Medicinal Products for Human Use (CHMP) or final approval by the Europe...
I picked up my meds today as the chemist called, and notified the nurse she doesn't have to collect them and can come straight to my house. The pharmacist told me I am to avoid the sun totally. Is this correct? What about going for a walk or shopping? I can't avoid the sun totally that is ridiculus... Any a...
Does anyone get nauseous on sovaldi or ribaviran? The last 2 mornings i've been getting sick. I felt fine by yesterday afternoon but its back this morning again. Not sure if it is related to the meds or if im getting the flu or what. And no im not pregnant! Just wondering if anyone has experienced this?
Starting day 5 today. Sx. has been tolerable. Last night felt a little itchy and restless. Mornings I get a queezy stomach but seems to go away as the day progresses. I eat well & try to do the 20g fat thing before taking meds. A little A&D ointment on the itchy spots. Maybe tonight I'll try Benedr...
We'll i am about to complete my 9th week on Sovaldi and Olysio tx. Results week two were vl count down to 383 from 8 million. Week four results i was undetected with liver functions within normal range. Week 8 still undetected with all liver functions in normal range. Bilirubin was 14 before tx now .09. ...
Today is day 29 which means this morning I was "poppin' bottles" .... of Riba and Sovaldi that is!!! Onto the next 28 days I go.... Just got home from my Week 4 Check-In with the liver doc. He walked in the room just as I was chugging from the extra large jug of water I travel with these days; it ma...
Dear All, I am done with 12 weeks of peg interferon ribavarin treatment. I have now started experiencing neutropenia (150) Range 200 to 700). My monocyte % is also rising over the weeks it is now at 11%. I am upset. I know that many people experience low neutrophil counts during treatment. But I do no...
New guidelines given to clinicians as of March 2014 for recommmendations on testing, managing and treating HCV. Thought it would be helpful for those just diagnosed, about to be treated or retreated, or on treatment, etc. Helps our understanding of the changing landscape. http://www.hcvgui...
From the American Chemical Society: "The progress in HCV therapy in the last three years is similar to the progress that took HIV therapy ~14 years. We are at the brink of approval for an all-oral drug combination that is dosed once daily as a single pill, has >95% efficacy, and is well tolera...
I hve been itching (am not on any treatment) nurse practioner gve me this stuff to drink twice a day .to see if liver was doing this terrible itch to me. I really can't tell if it is doing anything. just wondering if anyone here had ever delat with this.. Taz
I don't know what might be causing this but last week I had an MRI done on my liver. The tech went to put the IV in and had trouble getting a good vein. As a result I had a big bruise. My platelet count is down around 71 so that accounts for the bruising but with all my recent bloodwork and lab tests the technicia...
My Doc just told me (via voicemail, missed his call) that I do have the NS3 Q80K and that I shouldn't worry because he was going to have me do my treatment just as planned. He said it just meant that if I were to stop doing my treatment the virus could become more resistant. From what I read having this lower...
I have not started treatment yet (another week) and I have heard itching can be a Sx but I'm already there big time. Every night around 8ish I start to itch first like spider webs on my face and upper body then all over skin crawling. I am having trouble sleeping and see most every 3am roll past on my clock. I...
Happy monday! So this evening marks my official halfway point. At 7:15pm this evening I will take my evening Riba which will conclude my first 6 weeks of treatment! The Riba, those blasphemous little pink pills, are starting to annoy me. I've got riba rash in my cleavage!! Fellas, I don't expect you t...
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