"We are witnessing a revolution in the treatment of hepatitis C virus with powerful molecules capable of curing the infection. There is no question that these treatments that can save millions of lives must be made universally available at an affordable price." - Francoise Barre-Si...
Hi All, Thanks for the kind words as I have already posted in another thread on this forum. I'm a 32 year old male recently diagnosed with Hep C. Five weeks ago, I participated in a blood drive at work and received a letter in the mail from the Red Cross saying my blood tested positive for the Antibodie...
Embedded video worth a look.. http://blog.aids.gov/2014/03/conversations-from-croi-2014-dr-douglas-dieterich-on-important-advances-in-hepatitis-c.html
I posted last Sunday about my appointment with the DR discussing the new treatmentwellI get my meds tomorrow and because of scheduling am starting Treatment Tuesday! Insurance quickly approved it and got the call today that they were sending it. I pray everyone who has hopes to begin treatment wil...
Howdy folks from Florida. Hoping all with this nasty virus find SVR. Lots of new meds happening and I'm fortunate to have just started. Looking forward to learning and sharing info.
I decided to post an easy to find PDF description of this newest drug by Gilead Sciences. This will assist those searching the forum database as well as boosting it's search engine position via the forum. http://www.gilead.ca/pdf/ca/sovaldi_pm_english.pdf Tig
I went to take my interferon and removed the cap off my auto injector and it was leaky. It stopped leaking and seemed fine but I took out another injection to use tonight instead. Just wondering if it's happened to anyone else and if it's a faulty pen or what? Hoping the pharmacy will replace it.
I know I haven't been on in quite a while. But I finally found a doctor to take me seriously. My rx has been sent to insurance and is waiting approval. I should get a call this coming week. I will be starting the triple therapy finally! The light at the end of my long tunnel is finally shining through. Keep me...
My husband and I were both diagnosed in June of 2013 through our Primary Care Dr, and just got into a GI/Hep Specialist last week. Blood work, ultrasounds, exams, and... ...my liver is fine, Genotype 3A, viral load of 7,785. ...my husband has what they called an "echogenic lesion" on his l...
Hello everyone. I've enjoyed reading your posts. I suppose I will just dive right in.I didn't know I was infected with Hep C until my wife and I were trying to have a baby through IVF. Apparently my blood test showed the anti-bodies and now my world has been turned upside down.I have a factor 8 deficiency...
Hi All, My week 4 test came in today @ <43 and I have to admit I'm.... disappointed? Is that being unrealistic? I went from 37 million to 138 in 2 weeks. I just assumed, as did my Dr, I would UND this week. Makes me wonder what happened? The lower RIba dose? Am working too much/hard/not getting enough re...
I got my Rx approved Sovaldi/Simeprevir today. Between the 2 drug companies and my work health insurance my cost is $0.00CDN I will do baseline bloodwork/VL and then start Wednesday. That is one week since the financial assistance went in through Gilead and Jannsen The Canadian program for assista...
Hi, I cleared the virus using a new clinical trial but I have a friend of mine who is on victrelis and wants to know if he can stop it two weeks early. He's on the Response Guided Therapy and is due to end at 28 weeks, but feels like his doctor is hinting that he can stop any time he wants to (he has three weeks to g...
This is a summary of the results of the survey which was carried out between April 2006 and September 2007:http://www.hepctrust.org.uk/Resources/HepC/HCV%20Reports/Post%20Tx%20Survey%20Report%202010.pdf
The RIBA rash has creeped onto my back. The itch that I can't reach is driving me nuts! Does the RIBA rash come and go, or am I going to have to put up with it for the entire treatment? I need to invest in a back scratcher, if my brain fog will allow me to actually remember that while I'm out so I can pick one up......
Possibility I could be in a ribarage, but my second Pegasys delivery that was supposed to come first thing this morning arrived late this afternoon. (I'm a little wound up right now). Temperature inside the box of 4 proclicks is 70 degrees. Insert says to store at 36 - 46 degrees. Should I make spec...
Hello everyone....I just have a quick question....what do you all eat when you take your Ribavirin? I take mine at 10am and 10pm. I got a little carried away there in the beginning, basically cooking myself a second dinner at 10pm every night so I gained a bit of weight but I'm starting to lose my appeti...
Julia has been waiting for the new medicines to come out so she won't have to take interferon. Now we read that the new medicines will cost $1000 a pill! Is this really true? Will the new medicines be too expensive? Will insurance not pay for them? thanks.
Hi there guys, I think i'm in the right place. Just reading some of the posts, I feel honoured to be among some very informed people; which is where I need to be right now. I'm from Aotearoa "The land of the long white cloud" or New Zealand as it is known by it's other name. It's a place where peopl...
Web presentation by Columbia University Medical Center. 40 minutes long and clinical in nature, but up to date. Recorded on 2/27/14. Q&A at the end. http://hepatitiscnewdrugs.blogspot.com/2014/03/new-treatment-options-for-hepatitis-c.html
Dear all, I have been diagnosed with HCV in 2009, which I appear to have gotten in a hospital in the 80s, when I was a child growing up in Eastern Europe. I am just now joining this forum, because I have finally decided to go ahead and start the treatment. My doctor just prescribed the 12wk course of Peg-IN...
I am a new member to this board but not new to HCV. I was diagnosed in 2000, genotype 1a. I've probably had HCV since the 70s. After being diagnosed I became an active member of some online support group/message boards similar to this one. After modifying my diet and my lifestyle for a considerable perio...
Hi all! I am in Australia and have just been diagnosed am about to start treatment soon and believe it will be Ribravirin and Interferon . I am to have a fibrosis scan yet to ascertain extent of liver damage - and just recently had blood test to determine genotype, so I do not know much at this point. ...
I desperately need to get a recommendation for a good hepatitis C doctor in the Washington, DC metropolitan area - District of Columbia, Virginia or Maryland. I am in a clinical trial in Baltimore, Maryland but I need my own hepatitis C doctor. I would truly appreciate any recommendations!
For all the 48 triple tx ppl. I have 9 weeks left. I'll give ya's a run down on how it went so far as I've been asked. At first we start out jogging down the tx path. I was on incivek. I was anemic at week 7 and had to get three transfusions and still on procrit but I was still jogging along. My "jog" st...
As you can see from my avatar, I am not having a good week. Now I know why. Platelets 44, ANC .5 .... I've been tired, cranky, blah feeling, dizzy and all around not very fun to be with! And random bruises keep appearing! Two more weeks of Incevik and praying for higher blood counts. This stuff is nasty .......
31 years and no major effects! then august 2013 1900 alt and 1300 ast alkaline 187 bilirubin1.7lipase133 13.55afp-tm. got a biopsy in nov -f3 got aprove for solv-ribapack 12 week got meds but cant start cause platettes are to low like 139.doctor says I also have recuurring ebstien bar that drive my n...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
