Hi everyone I've been reading for a while but I thought maybe people could find mutual benefit in my existence here. So here is my Hep c story. I'm a 53 yr old male that found out I had this disease Jan. 2012 , I didn't know I had it, and other than always being tired and achy.....and being a 31 year married man...
Hi everyone my name is Janine I have hep c genotype 1a/1b I am awaiting news of when I will start my trial with sofosbuvir, has anyone out there got some advice anything really, I refused the interferon due to being told that it would more than likely not help me have just come from my specialist today he in...
I literally crossed my fingers before I clicked the link for my test results. I can't believe how thrilled I am! I'm so happy for all of us who are responding to this treatment so well. It really is an amazing time. My hemoglobin levels have held up well. A smaller drop from week 2.5 - 5 than from baseline to...
Hi I have not been diagnosed with Hep C, in fact, I haven't been tested yet. I'm just really curious if someone could have Hep C for decades and not know it? Dr says I need to be tested, even though I'm 58 and the last possible exposure would be over 35 yrs ago (did dabble a little in drugs as did many of my gener...
dropping by to report how good I feel at 11 months post treatment/achieved SVR. I feel better now than I did before starting treatment. My treatment was hard and it took till now for me to feel brand new! Spring is arriving and I am working out and experiencing good energy levels! So grateful for stre...
Happy Friday all! Got a chipper voicemail from my liver PA this afternoon - my 4 week VL came back UNDETECTABLE!!! He said that all my liver enzymes looked good - my WBC count is still high but it's steady at 12 which is what it was on 2/28/14. I'm still not convinced that it's not related to the treatment...
Hi everybody, just received my week 3 viral count and wanted to share this with everybody that's on the Sovaldi/Olysio combo, I'm undetected after 21 days! Started at 3.7 million, went to 244 after 7 days and now undetected. I'm feeling very grateful and wanted to wish everybody else the same succes...
Ive actually signed up on this website in 2011 but it was a very bad year as my close friend, husband and then mother all passed away so I never got around to posting anything. Feeling much better now, especially with the new treatments available! How exciting. i was diagnosed in 1997 and tried the inte...
"We are witnessing a revolution in the treatment of hepatitis C virus with powerful molecules capable of curing the infection. There is no question that these treatments that can save millions of lives must be made universally available at an affordable price." - Francoise Barre-Si...
Hi All, Thanks for the kind words as I have already posted in another thread on this forum. I'm a 32 year old male recently diagnosed with Hep C. Five weeks ago, I participated in a blood drive at work and received a letter in the mail from the Red Cross saying my blood tested positive for the Antibodie...
Embedded video worth a look.. http://blog.aids.gov/2014/03/conversations-from-croi-2014-dr-douglas-dieterich-on-important-advances-in-hepatitis-c.html
I posted last Sunday about my appointment with the DR discussing the new treatmentwellI get my meds tomorrow and because of scheduling am starting Treatment Tuesday! Insurance quickly approved it and got the call today that they were sending it. I pray everyone who has hopes to begin treatment wil...
Howdy folks from Florida. Hoping all with this nasty virus find SVR. Lots of new meds happening and I'm fortunate to have just started. Looking forward to learning and sharing info.
I decided to post an easy to find PDF description of this newest drug by Gilead Sciences. This will assist those searching the forum database as well as boosting it's search engine position via the forum. http://www.gilead.ca/pdf/ca/sovaldi_pm_english.pdf Tig
I went to take my interferon and removed the cap off my auto injector and it was leaky. It stopped leaking and seemed fine but I took out another injection to use tonight instead. Just wondering if it's happened to anyone else and if it's a faulty pen or what? Hoping the pharmacy will replace it.
I know I haven't been on in quite a while. But I finally found a doctor to take me seriously. My rx has been sent to insurance and is waiting approval. I should get a call this coming week. I will be starting the triple therapy finally! The light at the end of my long tunnel is finally shining through. Keep me...
My husband and I were both diagnosed in June of 2013 through our Primary Care Dr, and just got into a GI/Hep Specialist last week. Blood work, ultrasounds, exams, and... ...my liver is fine, Genotype 3A, viral load of 7,785. ...my husband has what they called an "echogenic lesion" on his l...
Hello everyone. I've enjoyed reading your posts. I suppose I will just dive right in.I didn't know I was infected with Hep C until my wife and I were trying to have a baby through IVF. Apparently my blood test showed the anti-bodies and now my world has been turned upside down.I have a factor 8 deficiency...
Hi All, My week 4 test came in today @ <43 and I have to admit I'm.... disappointed? Is that being unrealistic? I went from 37 million to 138 in 2 weeks. I just assumed, as did my Dr, I would UND this week. Makes me wonder what happened? The lower RIba dose? Am working too much/hard/not getting enough re...
I got my Rx approved Sovaldi/Simeprevir today. Between the 2 drug companies and my work health insurance my cost is $0.00CDN I will do baseline bloodwork/VL and then start Wednesday. That is one week since the financial assistance went in through Gilead and Jannsen The Canadian program for assista...
Hi, I cleared the virus using a new clinical trial but I have a friend of mine who is on victrelis and wants to know if he can stop it two weeks early. He's on the Response Guided Therapy and is due to end at 28 weeks, but feels like his doctor is hinting that he can stop any time he wants to (he has three weeks to g...
This is a summary of the results of the survey which was carried out between April 2006 and September 2007:http://www.hepctrust.org.uk/Resources/HepC/HCV%20Reports/Post%20Tx%20Survey%20Report%202010.pdf
The RIBA rash has creeped onto my back. The itch that I can't reach is driving me nuts! Does the RIBA rash come and go, or am I going to have to put up with it for the entire treatment? I need to invest in a back scratcher, if my brain fog will allow me to actually remember that while I'm out so I can pick one up......
Possibility I could be in a ribarage, but my second Pegasys delivery that was supposed to come first thing this morning arrived late this afternoon. (I'm a little wound up right now). Temperature inside the box of 4 proclicks is 70 degrees. Insert says to store at 36 - 46 degrees. Should I make spec...
Hello everyone....I just have a quick question....what do you all eat when you take your Ribavirin? I take mine at 10am and 10pm. I got a little carried away there in the beginning, basically cooking myself a second dinner at 10pm every night so I gained a bit of weight but I'm starting to lose my appeti...
Julia has been waiting for the new medicines to come out so she won't have to take interferon. Now we read that the new medicines will cost $1000 a pill! Is this really true? Will the new medicines be too expensive? Will insurance not pay for them? thanks.
Hi there guys, I think i'm in the right place. Just reading some of the posts, I feel honoured to be among some very informed people; which is where I need to be right now. I'm from Aotearoa "The land of the long white cloud" or New Zealand as it is known by it's other name. It's a place where peopl...
Web presentation by Columbia University Medical Center. 40 minutes long and clinical in nature, but up to date. Recorded on 2/27/14. Q&A at the end. http://hepatitiscnewdrugs.blogspot.com/2014/03/new-treatment-options-for-hepatitis-c.html
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