Press release, 21/02/2014 -Combination of ledipasvir and sofosbuvir to be used in patients in urgent need of therapy to prevent progression of liver disease.`The European Medicines Agency`s Committee for Medicinal Products for Human Use (CHMP) has given an opinion on the use of a fixed-dose com...
Hi Everyone, I was just sitting here reading up on everyone's progress and upcoming treatment regimes; I figured I'd drop in with an update on my status. I am only 6 days in so I understand my body is getting used to the meds still. So far no insomnia issues, sleeping pretty well actually. Mild intermitt...
Hi there I just want to tell everybody that it has been 2-1/2 years since my tx and I am feeling pretty good these days. I can't say enough about the support I got from this forum and the wonderful people I have met here. Love you all. Take care, Randy
My appointment to start meds Friday was canceled due to a snow storm....but today I have a definite appointment to get started. She has had my meds since the 5th and it's been driving me nuts waiting lol. I am trying to not think about It too hard because I am of course worried about side effects but I am al...
Since there are so many of us in this weekend pj club, perhaps we should start a topic on how we cope, what are good movies to watch, or just to hang out. I just watched "Two Weeks Notice" with Sandra Bullock and Hugh Grant. A funny older romantic comedy. And I am doing laundry all day two. I got a f...
Congratulations on your one year post treatment. You are such a help to us all--and caring in your posts--sharing information many of us have no access to. Thanks for all you do !!!! Suziq I do hope I have the right date Feb 15, 2013 ??? -- Edited by suziq on Sunday 16th of February 2014 03:07:40 PM
Its quite amazing and great news that this combo (Olysio & Sovaldi) is being prescribed and then approved by insurance companies since its off label from FDA. I guess that the medical machine has more power and influence with the insurance that we thought.With all the patients being prescribed...
Sorry for the etiquette viiolation on my first post in the chatbox. New to this forum. I am starting Olysio and Sovaldi without riba today for 12 weeks. A little apprehensive due to the PTSD I think I still have from the last treatment of Inf and riba years ago. My body did not do well with it. I'm G1a Dx 200...
i'm jumping for joy w/ the 2 month UND news from nurse today!!!!!! other good things have been going on as well. i now have hair growth and my sleeping has been improving. also i went on a vaca w/ my bf,no plane involved. i went to 2 shows, 1 art gallery and 2 fine dinners.. also just went back this week to my a...
Just wanted to share- My husband tested & came back clear. We've been together since 1988, so I was worried for him. I had to pressure him a bit to get tested, because he was avoiding it. His test was negative, which is a great relief. His response, "Thank God, I can still drink!". T...
Hi All, I'm about 10 days into therapy. My first injection site (from 10 days ago) is still pretty bruised red. It's down to about 1 inch by 3 inch. My second site is starting to grow as well. I wasn't surprised that there was some site irritation, but was a little surprised it was that size 10 days later....
Hi, I asked my Doc ( a while ago) why Hep C comes back sometimes, and I believe she said something about "pockets" where the virus hides out. If I recall correctly she may have mentioned the brain, and for men the testes as sites that are harder to penetrate. Has anyone any links or more knowle...
Step by step, they are getting there: http://news.rutgers.edu/rutgers-scientists-identify-structure-virus-could-lead-hepatitis-c-vaccine/20140218#.UwURI9xdW7C Further details: [url]http://www.nature.com/nature/journal/vaop/ncurrent/full/nature13117....
Well, I had a great visit with my hepologist. He cleared some things up for me. Apparently the Sofosbuvir won't be available in my province until 2 or 3 years which is why I'm on the incevik. And he has had over 90% success rate with incevik. He also said my viral load was 15,000,000 to start and not 1,500,0...
Hi everyone, with so many new members now doing an `off label` treatment with Simeprevir (Olysio) and Sofosbuvir (Sovaldi), I thought it would be useful to repost this information here in the Knowledge Base for reference purposes.Although both of these drugs have received individual US FDA appr...
Hi everybody, I joined this board almost 2 years ago and my husband had three weeks of treatment left. Well, he cleared the virus only to have it return a few months after. We have been trudging on and trying to stay positive and healthy. He will be starting the new 12 week treatment eventually and I heard...
I was under the impression few side effects meant no side effects, I was wrong. Day one nothing, day two, body aches headache and at night fever, weakness. Also notice a little nausea, which was no big deal, no vomiting, and the nausea was very slight. I did noticied stomach acid/heartburn, I was afrai...
Dear All, I was in bad shape last week. I was extremely fatigued, my stomach was upset and I had cough Now I have recovered. I am feeling much better. There are two things that I would want the experts here to chime in on. I get my cbc done every week before the day of the injection. I am on Peg, Riba combinatio...
More tests are being done? I'm guessing to find out what geno type I have? Doctor didn't tell me a single word about nothing. Just that more blood would be taken. And possibly be referred to a hepatologist. A little stunned and a lot scarred. Next appointment is march 19 and I'm wondering what questions...
Got my results and clear God Bless with all I went through and still weak physically but pretreatment and treatment effects going, one benefit for an old guy is my hair was white and is now much darker, slimmer so marketable item on the bachelor scale, Thanks again for all the support and encouragement...
In first week of treatment with Sovaldi/Riba and got all of my lab orders today - Dr. is doing labs once weekly due to wanting to watch my kidney transplant closely. Question is around viral load (HCA RNA Quant.) test which is scheduled at twelve weeks. I note that numerous people on the forum report t...
Well in March I go to the specialist to give more blood and begin treatment. I am actually a little scared to start these drugs. I know its not really rational, but considering I hate even taking mild pain killers - before I knew I had hep, it is really a big deal for me. I know the new drugs are much easier and...
Hi All, Went for my 4 week EOT appointment yesterday. My coordinator mentioned that she has 2 new trials for geno 1 coming up this Spring. Anyone living near the Dallas Ft Worth Texas area can private message me for the contact info--or look up Texas Medical Research Center in Arlington Texas. I do...
Wednesday, February 12, 2014 - The Victrelis (boceprevir) label has been updated to include the following information under Section 5 Warnings and Precautions: 5.4 Pancytopenia (Use with Ribavirin and Peginterferon Alfa) Serious cases of pancytopenia have been reported postmarketing in pat...
I'm really curious on how long after you have cleared the virus do the side efects of Hep C leave. My worst side effect from the virus has been severe fatigue, almost debilitating at times and I'm so looking forward to eventually feeling better. Can anybody that's beat this monster share some personal...
We'll it is finally over!!! 24 weeks on Triple Therapy with Incivik!!! I just took my last pills of RIBA and wanted to say thank you to all that helped me get thru it!!! What in the world do I expect to feel like in the next few days???
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