I have been diagnosed for about 3 weeks. I decided I needed to get some support and have somone that can give me accurate information. I have two things going on right now and everyone seems confused and have about decided they are unrelated. Does anyone else have pain in one or both of their legs? I a...
Copy of email conversation between me and my doctor's office: Hi Cindy, Just wanted to send you a note on my progress so far. The rash is definitely getting better. I do not have a lot of large, raised bumps anymore. They are mostly flat and are changing color from fiery red to a brownish color. I have not h...
When people on these boards talk about fatigue from the HCV, are they talking about fatigue caused from the virus pretreatment, fatigue caused from the treatment, or both?
I have just started learning about hep c and I am hoping for some suggestions/advice. My husband (has hep c) has started getting horrible abdominal pain and hasn't been able to go to work. he has just recently started seeing a doctor for his hep c and just had lab work and an ultrasound done-we don't know...
So I go in for all the blood work,weight,EKG and a urinalysis. Results come back and my RN says I had bacteria in my urine sample(could be because I was spotting on my period) and my liver enzymes were two points higher then the "allowed"limit. I am on type 2 diabetes med and take birth control...
I found out in October that i have hep c. I am geno 1b have had it in my system since 1988 due to blood transfusion. Tomorrow i go for my liver bisopsy and then on the 17 my doctor will tell me when i start treament
Top Ten things to love about Incivek/Victrelis/Peg/Rib #10 You can get a bad case of the flu and not feel any different #9The chances of getting Hep C from a dirty needle are a lot less #8 Rash is not just an impulsive response #7 People from around the World get together to discuss anal itching...
I am stil waiting for my new doctor to get the meds approved by my insurance company, but they said they would be out of the office until Jan 2 so I wasn't expecting anything over the holidays. But tonight, as I celebrate the New Year, I am telling myself that this is my year! I will be starting my treatment...
After being off the dreaded Ineveck for a couple of weeks I'm noticing a bit more hair loss. It's not so much on my head but everywhere else seems to be thinning ? I wish it would effect my back hair more
Well I am not on odd ball treatment any longer. Specialist said 48 weels so have 34 to go. The Crieten level dropped with more water intake and the kidney specialist strongly suggested that I try a zinc suppliment to help with the taste of rusty nails in my mouth ???. Also they stopped my Arthrotec, whi...
I only have a few weeks left of the Incivek but my blood counts could not take it any more. On Wednesday I came down with some type intense nerve pain in my left buttocks while I was at work. I could not sit down. Every time I tried to I got this 10/10 pain, like a red hot wire searing in my flesh. It would slowly g...
http://www.hivandhepatitis.com/hepatitis-c/hepatitis-c-topics/hcv-treatment/3925-hepatitis-c-cirrhosis-patients-with-sustained-treatment-response-have-lower-risk-of-death-- Edited by joe oil on Friday 28th of December 2012 07:03:45 AM
[quote="karentaliesin"]ody) wasnt zuzusfam taken off the tele early , for this reason, On Thursday afternoon, I ended up in the ER because of the rash. (I had stopped the incivek on Monday because of the rash) The med staff at the ER were very good but none had ever seen a rash like I have. T...
Wishing everyone no matter your belief.. a Happy Holiday .. may your side effects be few, your labs results be spot on, and your days tolerable... peace and love MJ -- Edited by Mary Jane on Tuesday 25th of December 2012 10:02:07 PM
The blood work bills for my husband's genotype and viral load were pretty high, even though we have insurance. We see his specialist on Jan. 3rd. I am hoping that since we know his viral load and genotype, we can just put my husband on treatment and not pay for anything else. The doctor already also di...
Hi All! I have another question. My doctor called today with the results of my 2 week blood work and said that it does not look like I am tolerating the treatment well. My white blood cells specifically are very low (1.8). She is reducing my interferon dose and having me skip this next injection which...
I am 66 years old. I contracted Hep C during a three week period of madness in 1970. It wasn't until 1992, when an assay became available, that I discovered I had the disease. In the 1990's I underwent two seperate year-long treatments of interferon/ribavirin, but while my viral load decreased signif...
I have a new Sx I only sleep for maybe 4 hrs a night then I'm wide awake but wanting to sleep? I Was Rx Valium and sleeping aids but they just make me feel wonky the next day and sometimes I still only get four hours? Really Weird!
Thanks Brian
Has anyone has a high number on their thyroid test before they started treatment? And if so, were you still able to start treatment? This may be an issue for me (I am waiting for my test results). Last summer I had a high number, but a month later I was normal. Last month I had a high number again, so I ret...
We are looking for a treatment combination that will do the following: 1. Achieve close to 100% SVR rate in all Genotypes and subgroups 2. Be effective in all treatment groups, including age, sex, ethnicity, fibrosis stage and previous treatment history. 3. Be interferon-free and possibly ribavi...
In the USA, Genotype 1 accounts for ~75% of all HCV cases. Geno 2 is ~ 15% and Geno 3 about 7%. Geno 1 is 'difficult to treat', so not surprisingly, most research has been aimed at treating this Genotype. However in some countries, Geno 2 and 3 are much more common. Using Peg. and Riba, SVR rates for Geno 2...
Yikes!! I am glad it's almost over with!! Seems like these past few weeks have gotten worse. My eyes are blurring. no energy, cramping legs, out of breath and on and on...... Viral load is NEG. but red and white counts have been low. Also had thyroid problem about 2 months ago and had to drink the 'radioac...
Just wanted to let everyone know that there is a better life waiting after the incivek. I have not felt this good in years (really). My hope is its not just from the last twelve week shock of the Teleparvar..But for now im just going to be thankful. Merry Christmas! Happy Holidays! Brian
I'm in treatment week 16 with triple/Victrelis. I'm fortunate that I was UND at week 4 and have been ever since. The problem is that my blood chemicals are in the tank: I'm on Procrit for low red cells and my ribivirin has been reduced to 2x200mg tabs a day. As soon as it arrives, I'll be starting neupogen f...
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