Hello everyone, I was just diagnosed with Hep C. I am happy there is a place to go to talk about it, it is overwhelming and I don't know much right now... Thanks! Haylay -- Edited by haylay22 on Monday 14th of January 2013 04:37:33 PM
i go to the doctor in the morning for the results of my liver bisopy as well as finding out when treatment starts, any pointers that i need to know about so that i can aask my doc
I can get all my test results online and dont have to wait but at the sametime I dont get to talk to a person and get answers so what does this test mean...AMA-M2 EP (MIT3) IgG Autoabs and UnitsREFERENCE RANGE for MITOCHONDRIA M2 ANTIBODY (IGG), EIALess than 20.1 . . . . . . Negative20.1 - 24.9 . . . . . . . Equi...
I am going to a new dr and I need to ask questions and am not sure which ones to ask, what are viral loads and where should you want yours to be, also if I have hep c does that mean it is chronic? ANd I have noticed some people put ud which I am assuming means un detected so if it is undetected does that mean you do NO...
The day I've been waiting for. Hi Neil, your virus was not detected at week 24. So, that's great news and we will continue as planned.Thanks and Happy new year, Treatment will continue for the balance of the 48 weeks. Sooooo happy....what a rush !!!!
well dr just stopped my treatment again! incivick was working,dropped viral load to 5, before christmas then did another viral load and they told me it went back up and they stopped it. told me that theyll look at something else in ayear or two!!!!! WTF????????????????
Cross your fingers. Results are usually available Thu-Fri of the week of the draws. Better believe my blabby self will be posting like a madman late next week, no matter the results. Alan
HI Any one using Incivek ? I'll be using it This Feb20/13 im to take it every 12 hour (twice daily) Trying to take in everything before going on treatment and not feeling my full self for 11 months. YOU kNOW ,Its like your outside of your body looking at your self if that makes any sense :) Al ontario
EVERYONE YOU NEED TO SIGN THIS PETITION for Gilead sciences to get off their a$$ RIGHT NOW and release 7977 that is a big stumbling block http://www.change.org/petitions/gilead-sciences-please-collaborate-with-bristol-myers-for-the-cure-for-hepatitis-c-nowAlong the side or t...
Hi All, I have had hep C genotype 1a now for 42 years, I was diagnosed with hep before they had tests to tell the genotype. 12 years ago I looked into the treatments for hep C and was horrified at what they did to you. I have been very fortunate until recently. My ALT and AST were always in the normal range,...
I was looking online last night and say that in 2014 a new non interferon treatment will be available here in the USA, been in trials with good results. Way less or no side effects. I'm stage one chirrosis I'm considering waiting, was scheduled to start treatment this next week. Thoughts????
I received a letter from the hep c nurses asking to make an appointment to be assessed for triple treatment.........now considering I have been waiting for this letter impatiently since what feels like forever, why now that its arrived do I feel anxious and scared!!? I have moments where I feel ready...
9 days ago i had a tooth pulled and things kinda went bad. A chunk of bone broke loose from my jaw and is sticking out the inside of my gum. I saw the oral surgeon friday and he said since the other end of the chunk is still alive and attached to the jaw, he cant remove it until it either breaks loose on its own o...
Hi to everyone, first of all i'm sorry for my bad english because i'm Turkish... My name is Murat from Turkey. 28.07.2012 Viral load: 7.1million Genotype: 1b Alt-Ast: Normal Weight: 76, Height: 1.82m I started incivo, ribavirin and peg-interferon treatment at 02.08.2012 I used probiotics, artic...
Well, I'm getting another liver biopsy on Tues, Dec 4. My last one was in March 2000 and I was Grade 2/4 and Stage 2/4. In a nutshell it said "mild limiting plate necrosis" and "portal-portal septa with architecture intact". It took 16 years for my liver to get to that point. T...
When my alarm clock went off at 5:30 this morning, it marked a very unusual anniversary. One year ago I staggered out of bed, went to the kitchen, ate a bagel with cream cheese and drank a glass of whole milk, then at 6:00 I took two Incivek 375mg. caplets and one Ribapack 600mg, muttered "and so it be...
Went to the dentist yesterday for my 6 month check. They did the gum measuring thing where they poke your gums around your teeth then say a number between 1 & 5 (for me anyway). I usually have 2s, 3s and one or two 4s. Today, the 2s were 4s and the 3s were 5s!! I am scheduled to go back in 3 months for another...
Hi, We are all used to seeing our Viral Load figures. To expand on this: Take a 'moderate' Viral Load of 5 million i.u./ml. Most labs now use 1 i.u.= 2.5 viral particles, so this is 12.5 million viral particles /ml. of blood. That is 12,500 million/litre. A normal adult has 5 litres of blood. That gives us...
Had blood work done on the 27th and the results were made avail to me today. The hospital where I do treatment has what is called 'MyChart-urmc' on the web. Any thoughts on my counts?
I will be starting tx in a few weeks. My nurse told me to drink a lot of water so I wil flush the virus out. That comment seemed a little strange to me. I know we need to drink water while on tx and otherwise for that matter, but I have never heard it put that way. Has anyone else heard this?
Well it has been a long road,but On Monday January 7,2013 I am taking my last shot . I go to doctor on Thursday to get my results for my VL. So for all you people just starting out there is a light at the end of the tunnel. Hang in there we are all behind you. Ken
I am starting treatment tomorrow, and will be taking 600mg of Ribavirin twice a day (total of 1200mg). Does this sound like what others have taken? Just wondering.
Hello, I had an appointment last week with a new doctor. She was part of the team that designed the current treatment that is available for Hep C. She was on the R&D team and worked the the FDA approval process for the current treatment. She left the research field to get back into patient care and n...
I think I read somewhere that if I go ahead and get the immunizations for Hep A, B and Flu that it will speed the process. Is this correct? I am one month from having lab work and radiology, as well as finally meeting with the Hepatologist (after 6 months).
Also what determines whether you get Incivek or...
Is anyone having problem w tenderness in their mouth and tongue.
Makes eating anything w salt hurt and uncomfortable to chew cereal, nuts etc...
Any ideas?? I am using sensitive toothpaste.
Just finished Invicek a week ago.
JoAnne
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