Well hello everyone I'm back again!! Ok I went for my appointment with the nurse yesterday and I have been given start dates. Now the problem is when I went in I thought I would be going for triple therapy with boceprivir and not be given a choice, as this is what my consultant had said to me back in July. Bu...
I finally am starting my triple tx with bocep tomorrow. I was supposed to start in october but couldnt afford it and now just found out i wont have to pay at all.. I feel so lucky right now. At the same time I'm extremely nervous. I cant remember how bad the first interferon injection is. I'm off work ti...
I posted this:
"Monday I was told that I tested positive for Hep C. Today I received an email from my PCP saying that my HCV RNA Quantitive test came back undetected but that I need to do labs every 3 months. Does this mean I may have had an acute case and am in the clear or do I need to expect that things c...
Renee's treatment is finally over. She finished up November 17th. Aside from a cold, she is starting to feel better. We're rediscovering parts of our relationship, which has made us both happy. We're going out more too. I'm looking forward to the post-treatment. Still nervous about SVR results, bu...
Hey! I keep forgetting to post this on here...my sister in law gave me one of these with a note attached saying "Meghan, I miss you. I know you won the fight and I am not living inside you anymore but thought you might want to have something to remind you what we have been through together" I g...
Vertex reluctantly made Incivek available to selected Hepatology Practices in Australia last October. My doc is one of 5 Hepatologists in the largest group in Queensland. He has now prescribed Incivek for 22 patients- none are cirrhotic, and all are in the 45- 60 age group. To his surprise, only 3 pa...
Ok,.. so my AFP has been elevated, just slightly... but for a year or so and going up slowly, when do the numbers mean trouble???? Why do they check this?... and then when it is elevated they kinda just say, oh...that's not too bad. I.D.
Hi all, Tom had his appt last Tuesday at Mt Sinai and liver specialist reported local dr here did the right thing by taking him off triple therapy. He recommended that Tom wait for new treatment in the works which has less side effects. He was eligible to possibly be in clinical study trial but Tom didn'...
Hi i am a newbie to this site, but having had a terrible/nightmare/painful/soul destroying time on the treatment in the past, (not something i want to repeat), but i am sick/tired of just existing, is the new drug that has been added to the treatment any better to experience even though the time to e...
Is anyone able to exercise while on treatment? Since I started 30 weeks ago, I can hardly go up a flight of stairs without getting winded. The lack of exercise seems to be taking a toll on me. Im gaining weight and transformed myself into a championship contender for the Couch Potato Olympics. Part of i...
Can anyone help explain the difference between riba rash and incivek rash? I have a few spots that have popped up and are itchy. I don't scratch and so far, cortizone cream has been okay. They usually flair after my shower.
This is Grenada on the coast of Lake Nicaragua. We stayed here for three days before moving on to Ometepe. I'm going to be uploading photos one at a time as the Internet service at the lodge I'm at is fairly slow. This is one of the many beautiful churches.
Hello everyone, This is my first time joining a hep c forum. I'm looking forward to speaking with people who are going thru the same or similar things that I'm going thru. I started triple therapy 3 days ago and I have to say reading some of these posts have helped me thru my anxiety. Thank you!
Any good suggestions for shampoo? I don't need thickening shampoo (yet), but my head itches. I am trying to wash my hair every other day to see if that helps.
If you're using Paracetamol (Tylenol) or similar, the best time to take it is 2 hours before your shot, thus preventing the symptoms rather than waiting for them to kick in Steff xx
HIV drug interactions Product label information for the HIV protease inhibitor lopinavir/ritonavir (Kaletra) was revised to include information about several additional medications with the potential for drug-drug interactions, the U.S. Food and Drug Administration (FDA) announced last...
Well, I woke up at 5:45 to get my day going. I have choked down my 20 g's of fat, 2 incivek and 3 riba. I have begun sipping water. I hope I can maintain this and I hope I can tolerate this treatment. My heart is pounding through my chest right now with anticipation. I want this virus gone! I will be an off...
I was dignosed with hep c in 2004 on routine lab test.Genotype 1.Never took treatment before.My liver function test 9 months ago was normal.My hepatologist advised to take part in clinical trial of 3months.One of my friends,a dr. who is practising here advised me to take standard treatment with i...
I recently reviewed my blood work and in Aug 2012 my viral load was 5 mil. Then in dec 2012 it was 8 mil. That seems like quite a huge jump. Has anyone else experienced jumps like that in a short period of time? Same lab, same office, but different doctor. I am not very familiar with sensitivity tests.
Oh my gosh. So my husband and I are really upset right now. We received a very large bill from his doctor for the initial consultation. At this consultation, the doctor reviewed the blood work we faxed to him in order to tell us what treatment he needed to go on. The doctor may now not treat my husband,...
Hi Everyone,We'd like to welcome Tim (hrsetrdr) as a new moderator on the forum We're very honoured that he's agreed to take on the role and look forward to more of his unique sense of humour and thoughtful posts.Love from all "The Team" xx
Well this is laura back with my husband Tom. Haven't been lurking on the site lately as I didn't want to add any more stress onto my husband. He was on the triple therapy incivek and couldn't complete the treatment after 8 weeks. His level crashed and his doctor here made an appt at Mt Sinai in the city...
Hi all, just saw the real hepatologist; a consult. not my usual GI. Im more confused in some ways. He said that the biopsy stages stage 2-3 but Im probaly cirrhotic . He stated my liver felt slightly enlarged, my platelets and WBC are low but not low enough to do anything about; platelets point to ci...
My side effects to treatment have not been what I have been expecting from reading other's experiences. I know I only started Friday and so things may be changing quite a bit. But I can only describe my reaction/side effects of the Ribavirin as "intoxicated' or 'tipsy'. I feel no stress; in fac...
Just got the news about my first PCR into the treatment. After 4 weeks of Interferon and riba I only had a 1/2 log drop. I'm into my 2 week of Victrelis Boceprvir and will have my second PCR in January, It's not looking good. I was a slow responder last time and had break through in a 72 week trial the last try i...
I keep coming across people saying if you have no side effects from TX that that means it's not working. Is there any truth to this? Damn Google messing with my positivity
I am still undetectable! :) It has almost been 1 year since my first negative blood test so I hope it stays this way! My brother has 3 shots left too! Happy Holidays, Meghan
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