Ever since halting tx back in August, I've been haunted by some general anxiety, and take Xanax(1/2 minimum dose) which normally(whatever "normal" is) takes care of the situation. I've also been prescribed Trazodone to aid in sleep. So I see my doctor this past Thursday- we had a good t...
Last Summer (2012) I was getting some routine blood/urine work done when my urine came back funny. Upon checking my liver enzymes it was discovered that I was carrying Hep C. By a stoke of luck, I had recently received a bunch of medical documentation from when I was born and in it was a letter from the hea...
well my insurance has approved my treatment. so next friday is the big day for me. Still a little worried and nervous but i know that this will lead to me being heal from this.
I read on another message board suggesting that you get rid of earrings to avoid reinfection after treatment. Have any of you heard this? Should I get rid of all of my earrings? I have stopped wearing them during treatment.
Do you need to disclose to anyone anymore? I keep finding conflicting answers but most are from like 2009. I'm thinking there might be better tests measuring smaller amts of virus in the blood by now and also triple therapy came since then so.... This is driving me nuts
Doctor called and is now trying to get me into Vanderbilt in Nashville. That's great since I've been a patient there before when we lived in Nashville and I have a lot of friends there. My spirits are up now. Will continue with updates.
I started triple tx May 2012. I am in week 38 of 48! I am miserable, no tolerance for anything! I actes like a crazy person last night w a temper tantrum. I want to cry often, I itch. I am a Zombie. BUT I WON'T QUIT, I WILL SEE THE FINISH LINE AND I AM VERY GRATEFUL FOR OPPORTUNITY TO SAVE MY LIVER. I just need few d...
Second shot went pretty similar like first one, just with less fever, but with stronger nausea and headache. I haven't taken again any painkillers, went to bath (helped for headache a bit, but nausea nah). got shot @ 12.30PM, sx kicked in round 18PM and lasted until 1AM. It is definetly Interferon th...
New blood test, platelets, WBC, RBC all fell do dr says I must stop. Go for another blood test tomorrow, maybe hospital for transfusion. Feeling really crappy all the time, fall asleep if I sit down . It sucks cause I did 5 shots already. ----side Effects are too bad
I missed a partial Inicievk dose. I was really trippin' with the Riv, Escitalopram, and Trazadone. I took one (late) and the other 1 1/2 hrs after that. Has anybody done this? or am I just a knucklehead???
Has anyone else on treatment had problems with their fingertips splitting open? I drink plenty of water and use moisturizer several times a day, but my fingers keep splitting open. At least 1 new split shows up every day. It looks and feels like a paper cut but its not. i carry a tube of superglue with me...
I started treatment on 2-1-13, took my first shot at 10:30PM took 2 ES tylenol 2 hours prior. Went immediately to bed, has high anxiety so it took me several hours to fall asleep. I work up about 2:30 with a high fever 101.5, drank some water and eventually fell back asleep. Woke with the chills teeth chat...
Last week a nurse at the Hep Clinic at The University of Alabama called to tell me my appointment may be delayed again. I am so sad, angry, discouraged, angry, just a myriad of negative emotions. I want to know if i have damaged my liver, and I want a liver biopsy. When I told her my VL was 13 million, and my LF...
We had a death in the family and I was not able to start on Wed. as planned. However I am starting tonight. I have already taken 600MG of Ribovirin. I will take 600 more this evening, then my first shot about 10PM. Any last minute advice? I am ready to start fighting the dragon! I'm actually excited to get th...
Can someone post a link to studies that svr means no more damage to your liver. I can't find anything. And also I know this has been asked before but I'd like to know the most recent info. After svr do you have to disclose your diagnosis anymore? I read somewhere that there is still very small amounts of vir...
Hi, I'm new to this forum I started treatment 10/19/12. I'm in week 8 of triple therapy and my hair color is lightening significantly at my roots. Has anyone else experienced this? Thank you! Sue Anne-- Edited by Sue Anne on Sunday 9th of December 2012 11:31:48 PM
As I've been telling my clients today...I'm officially cured. I started out just under a year ago today. And it's definitely been an interesting ride. This forum has been an amazing lifeline of support and commonality (if that's even a word). I came on here needing a lot of help in...well every...
Developed cellulitis on the abdomen / pannus and was admitted 1/24. Very painful and uncomfortable situation. It was also discovered my H/H went down to 7.5 and 24
My last dose of Invicek was on 1/20. I received 2 units of PRBC on 1/25 which brought up my H/H to 8.2 and 25. On 1/26 my H/H went back down...
Hello my name is Kelly. Im 51. My blood panel came back and I have Hep C. This means I became infected in the mid to late 90s, as I have lived clean and sober since 1998. I thought I was careful. And if I wasnt as careful as I thought I was, I thought I was lucky. I got a HIV test when entering treatment for subs...
Well hello everyone I'm back again!! Ok I went for my appointment with the nurse yesterday and I have been given start dates. Now the problem is when I went in I thought I would be going for triple therapy with boceprivir and not be given a choice, as this is what my consultant had said to me back in July. Bu...
I finally am starting my triple tx with bocep tomorrow. I was supposed to start in october but couldnt afford it and now just found out i wont have to pay at all.. I feel so lucky right now. At the same time I'm extremely nervous. I cant remember how bad the first interferon injection is. I'm off work ti...
I posted this:
"Monday I was told that I tested positive for Hep C. Today I received an email from my PCP saying that my HCV RNA Quantitive test came back undetected but that I need to do labs every 3 months. Does this mean I may have had an acute case and am in the clear or do I need to expect that things c...
Renee's treatment is finally over. She finished up November 17th. Aside from a cold, she is starting to feel better. We're rediscovering parts of our relationship, which has made us both happy. We're going out more too. I'm looking forward to the post-treatment. Still nervous about SVR results, bu...
Hey! I keep forgetting to post this on here...my sister in law gave me one of these with a note attached saying "Meghan, I miss you. I know you won the fight and I am not living inside you anymore but thought you might want to have something to remind you what we have been through together" I g...
Vertex reluctantly made Incivek available to selected Hepatology Practices in Australia last October. My doc is one of 5 Hepatologists in the largest group in Queensland. He has now prescribed Incivek for 22 patients- none are cirrhotic, and all are in the 45- 60 age group. To his surprise, only 3 pa...
Ok,.. so my AFP has been elevated, just slightly... but for a year or so and going up slowly, when do the numbers mean trouble???? Why do they check this?... and then when it is elevated they kinda just say, oh...that's not too bad. I.D.
Hi all, Tom had his appt last Tuesday at Mt Sinai and liver specialist reported local dr here did the right thing by taking him off triple therapy. He recommended that Tom wait for new treatment in the works which has less side effects. He was eligible to possibly be in clinical study trial but Tom didn'...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
My last dose of Invicek was on 1/20. I received 2 units of PRBC on 1/25 which brought up my H/H to 8.2 and 25. On 1/26 my H/H went back down...