My husband received a $7,000 grant from the PAN Foundation because of his low income, which will cover his Pegasys and Ribavirin for his 6 month treatment. The cost, after insurance, for both of these medications comes to $1500 each month, which will eventually total $9,000. Because he only recei...
Hi guys . Well I got more blood work done, and i got my biopsy. My viral count is 69 million, and biopsy showed no scarring. My doctor says i dont need treatment because there is no scarring. I dont understand - why would I want to wait until there is damage to treat? That doesnt sound pro active or at all rati...
Hello evreryone, I was diagnosed with HCV in Sep.genotype 1 and cirrhosis stage 4. I never did have a biopsy, so I asked the doctor how he knew for sure,he said he could tell by my blood work. When I researched cirrhosis stage 4,it seems to be as bad as you can get. 85% of these people need liver transpla...
Well, this sux... yesterday I had my 23rd interferon shot, so only one left to go. Today I receive a call from my doc, my WBC came out so low (1.6) that he said not to take my last shot next week, just finish the last bottle of riba. I feel now a little bit uneasy not completing the whole 24 weeks of interferon,...
I was too tired to post last night, but I am having some issues with the pre filled syringes. I get super nervous when injecting becasue I am so freaked out I am going to hit a blood vessel. Getting the needle in is not a problem as I dont even feel it, but when it comes time to pull back on the plunger I cannot te...
Hubby is coming up to the end of Week 30 this coming Monday. He has been in quite a bit of pain the last few weeks. He's aching all over, like severe bone aches, or as he says: like a mallett continually tapping at all my bones. The aches are more severe in places where he has old injuries (as to be expected...
Does the existence of having side effects or not have any correlation to how well the drugs are working? What I'm trying to ask is I still feel fairly ok and haven't suffered from anything too bad (this was the same last time) does that mean that the drugs aren't working??? Oh gosh I think I need to get out I...
Quick update of my treatment progress sx - tinnitus still there and making me problems with sleep and my work (intereferon caused 100%), trying to find a good OTR doctor for consultation, but no luck. This is still my top sx thats been really bothering me, really scared of perm damage to my auditory ner...
Just found out I had hep c antibodies and yesterday had blood test for viral loading, still waiting for results. I was tested due to a persistent pain in my upper right quadrant. so far, it is scaring the hell out of me; my brother died about 10 years ago from liver disease. What should I expect next. --...
Just found out yesterday that as of Week 6 (I'm now into Week 7) my VL has gone undetected. It's great knowing that treatment is working. I only have about 1 month left of this horrible telaprevir as well. Some nice refreshing news in these dark depressing COLD days. -- Edited by HazeySask on Friday 22n...
Hi Gang! Sorry I haven't been around... just not feeling very sociable these days. But.... I just got the call from my nurse... so for those of you wondering about reduced doses of meds, here are the results. For most of tx I was on half recommended riba and half or less of interferon, 24 week tx duration....
I had labs done on Monday, I've been on treatment for 2.5 weeks at time of labs. I am >43 which is so low it's non-quantifiable. My doctor was very happy. I was 1.5 million prior to treatment. I don't 100% understand these results but it's a huge drop!! From the looks of it I am on my to undetectable. -- Ed...
While it's all Hep C treatment. Whether it be Peg or Riba with or without a third drug or one of the trial drug combinations. Were not on Chemo Therapy and Drug Treatment sounds like something I should have found sooner LOL. How do you do you phrase it? Toxic Resurrection, Viral deconstruction therapy...
Hello all from Illinois. My name is Sarah and new here and to the Hep C thing, well as far as the one who has it. My doctors believe I contracted the virus while I was a volunteer medic. I tested positive and my viral load from my understanding was through the roof and the biopsy showed stage 2, so they don't w...
Well yesterday Dr. called to see how I was feeling, not a good question to ask me. I had requested she set up another blood transfusion. She went into her 'you know u can stop now if u can't go on feeling like u do. Well let me tell you something lady, I haven't gone through all this 'crap' to quit now. Let's se...
Hi, I am new on this forum and would appreciate guidance. I just had a blood test where I "tested positive for Hep C antibodies." I have looked online but am confused as to which test I need to have next... presumably to diagnose whether or not I actually have Hep C. I'm concerned about the cost...
I learned a hard lesson today. I know my skin is different now that I am on treatment, but geez. I put my normal hair depilatory on today and within 90 seconds it began burning. It burned and blistered me. Guess I'll stick to shaving. Anyone else have skin sensitivity?
heading says it all, got a phone call the other day i was like, uh oh...... (que suspense music) .. but it was good news, im still UNDETECTED baby, so stoked bout it.... so another 3 months to wait and see..... im feelin positive, but not jumping around celebrating too much.... but im a happy camper......
I can't believe it. I've just got some taste buds back after finishing Rx, so was eating cereal this morning and broke off another molar at the gum line! This is from the guy that did two posts about looking after your teeth while on Rx.Just been to the dentist who won't touch me with my low platelets and WB...
Its been one year since my tx ended.I feel great . My life is so different now its amazing. I do still however doubt in my head for some reason im cured lol. I will prob have a Dr re test me this week just to make sure. Wishing everyone the best!
Is there anything we can do to help increase our White Blood Cells (non-prescription). Like are there foods that help? Or getting more rest? Anyone know of what might help. So far I am not so low that they are going to reduce my medicines, but I am wondering if there is anything I can do to keep from get...
My 35 year Hep C infection has now turned into cirrhosis and I've been dealing with ascites. I've actually been feeling good the past 5 years. Treatment didn't work for me in 1998. I have a good dr I see every 3 months who keeps up with blood tests, etc. I turned really sick and blew up with ascites 2 wee...
Hi everyone guess ive been promoted to this part of the forum! I went for my appointment today and have finally started. I injected myself and am now sat waiting for the side effects to kick in !!! I decided to go for boceprivir so am having a 4 week lead in. I will be on treatment for 48 weeks. The nurse tol...
Has anyone here finally reached Hep C overload after several years of non-stop reading, messaging, etc. and then went into a funk and just sort of slipped away into the dark hole of denial? Well, that's where I have been. Maybe because I have been dealing with so many other major issues in my life than we...
Hello Everyone , I've join this forum interact will other HepC brothers & sisters.My status is HCV genotype 1a with cirrhosisI have justly finished my first week in the Abbott open label clinical drugl trial called TURQUOISE-II So far so good, very little side effectsMatt
Ever since I have stopped incevek 9 wks. Ago I have felt a growing ake where my liver is. It's like I felt right before I started Tx.(like bruse). I've had a ultrasound done last week and it showed a slight swelling and a few noduals. My next VL test is march 7 (24 wk). Anybody else have this or in the know? O...
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