Why is it that every time I go for my appointment and see my nurses feel that I'm being patronised? they do ask me how I'm doing but don't really listen to my reply. They just don't seem to take anything I say seriously today I asked for stronger pain relief but was told that the doctor isn't in so I will have...
I know I'm very lucky to only have to do 24 weeks total, and I only have a couple weeks left. But I've had it!! I don't know how all of you who have to go 48 weeks, and with a third drug, could possibly get through it. I admire you all. If I had to do this much longer, I'm not sure I would continue. I'd just like...
Hi, does anyone have ideas or lists of ways to get the 20grams of fat from foods that contain little or no sugar. Bad enough dealing with this diease, I also have type 2 diabetes which makes finding choice of foods to eat a little more complicated. Thanks for any suggestions.
Happy to report my non detectabl 24 wk. status. I really feel I can go the whole 23 wks. more at this point. I have just a little ache after the shot but Advil helps. I don't even remember what to feel normal feels like at this point. I still have been playing out 3 nights a week as of January. I sing and play ba...
Hi everyone. Just back from my latest endoscopy, not brill. My little trio of Varices have grown and now need propanodol treatment, how jolly. I have also developed Portal Gastoprophy and have Duodenitis with some erosion, this Virus has some way of making itself at home when let off the leash! No mor...
Hi all,Ribavirin is an odd drug. It was discovered in 1970 and was found to have antiviral activity. It was sold in Mexico as a cure for the flu. In 1998, it received FDA approval for use in HCV in combination with Interferon. It is useless by itself, but it was found that SVR rates doubled when added t...
Hi all,Had my EOT + 4W blood draw yesterday, only for blood parameters.Hb: 12.4 up from 10.0 ( 2 weeks ago) up from 7.1 (EOT)WCC: 4.7 up from 3.1 ( 2 weeks ago ) up from 1.8 (EOT) Platelets: 124 up from 76 ( 2 weeks ago ) up from 36 (EOT)All very impressive and moving in the right direction. My energy levels a...
somehow i caught a stomache virus sunday and for the next three days all i did was throw up and have diahera went to the doc and they had to give my fluids
Hi everyone. I posted here a few times when I was diagnosed. I was happy to have a place to go for advice. I have now started treatment with Incevik.Im on week five now and have just got my 4 week labs back.Im a little discouraged because I am still detectable even though it is <43.Im already exp...
My husband has currently done 3 total shots during his treatment. He does his shots at 8 pm on Thursdays. This coming Thursday, he won't be able to have his shot at that time, so I am wondering if it would be okay if for just that week he did his shot at 8 am in the morning on Thursday rather than 8 pm??? Than...
I'm new to this site and hoping to meet some people that can give me some good advice. I just finished my 13th week on triple therapy with Incivec. I keep having a swollen tongue, sores that come and go, difficulty swallowing, and pain in my throat that sometimes hurts really bad, and not to mention acid r...
So two weeks into triple therapy with telapravir. Fatigue is a given, but biggest issue has been waves of nausea. Food doesn't help. Any suggestions? Thank you!
Hi I'm new to the Forum .I had hepC for 12 years ,I'm 32 now .My treatment was supposed to be started last march.Two days before my first injection I received a phone call from my nurse to say that my latest, pre-tx test came back negative. Being as we all assumed that it was lab's mistake I had another one fe...
Was diagnosed Hep-C 2-b positive in 2005. Did the pegasis for 43 weeks as I was a slow responder, beat is and will be going on 8 years clear as soon as I get the next blood test. Just wanted to try and boost the morale of others who are newly diagnosed and let them know its not the end of the world, and as long as t...
Shot #7 coming up on Friday. For some reason I thought i would start to acclimate to the meds but instead I just feel worse every day. My body just feels like it wants to collapse. I took the first two months off but anticipated going back to work part time April 1st. I just don't see how I can do it... So I just...
just called hospital to check is my PCR done (4th week VL check). Technician didn't said how much in UI or copies, she just said less than/log 1. My VL base was 25k UI (Log 4.4), so does that makes 3.4 Log drop? I am glad to see drop like this, on other hand i am not that happy since this means i am not RVR which...
On March 25th I start my first round of chemo. Just want to get it over with because I trust Yahweh to heal me of this nasty thing! Getting my Nioxin to protect my hair. Thanks to all for advise.Yahweh Blessings
Hello Everyone... <---- NEW HERE so please bare with me! I am a 29 year old female (will be 30 in less than 2 weeks). I first tested positive for HepC at age 13. My sister (16 at the time) was undergoing standard pre-op for a surgery when she tested positive. They thought it was a false + so they reteste...
Hi everyone, dont know why I couldn't put this under a another discussion but regardless we have been hit but yet more bad news. We went for our follow up appt at Mt Sinai as we were told Tom had a liver laceration. I am sorry to report that we were informed the CT Scan revealed liver cancer. We are blown a...
I moved this query from new members to this section, hope that's okay. As I previously reported, my nurses said that my 4 week VL test was "negative" and i had a viral load of 7 "single digit 7" She was very clear in pointing out that it was a single digit 7. I have now received the writ...
so i just left my doctors office. turns out i am resistant to the protease inhibitor, not the interferon. that would explain my monumental drop, but not to und in the first 4 weeks. anyway, now i am back up. said i should just practice some good clean livin' for now, but i broke that rule this past weeke...
Hello out there :) I would like to list issues I've had creep up on me in the last few years at a pretty slow pace and now that I'm aware of my HCV I was wondering if anyone has also experienced any of these. I want to list all I can think of and please tell me if anyone has also experienced any of these.... Sure w...
Just want to know if there is anything stronger than paracetamol I can take as paracetamol is just not even touching the pain. I have severe ache/pain in my upper back, shoulder blade area. I just feel awful and feel like giving up....
I will hopefully be starting this study in April after my liver biopsy. I did a Riba/Interferon study with this same site about 5 years ago and failed. This time, instead of a 48 week study, it will be a 3 month study where I only take pills. The pills stop the virus from replicating and there is a greater th...
BEFORE i was diagnosed w hep c .. i was working on losing weight. now i have to find a way to add 60g of fat to my diet a day. i see no healthy way to do that. any suggestions???
Well , guess I'm in the family now lol. Was told I have HVC antibody and only had a couple symptoms and ignored it ( about three years ago ) hoping it would go away - talking myself into being fine and just worrying. 95% Chronic - I think that's why it took so long to get to this point. Now , everything from c...
I am on pedgasys and ribapak 400 i will start the third med in 5 weeks so far so good, no effects yet doing the shot last night was not as bad as i thought it would be i didnt even feel it.
I have been reading the board since I started treatment 4 weeks ago and wanted to thank you for all posts!! It eases my mind to know that what I am experiencing this go- round is normal -- fatigue, shortness of breath, rash and just feeling crappy... What I didn't include in my bio was my 2nd treatment att...
When I was diagnosed with Carcinoid Cancer in 2008 I'd been on a 10 year journey to find out what was wrong nd why so much pain.? The average journey to find this rare and little known disease is 6 years as it mimics itself as so many other diseases and is mean but slow growing. Its also known as NeuroEndocr...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
