I'm new to this site and hoping to meet some people that can give me some good advice. I just finished my 13th week on triple therapy with Incivec. I keep having a swollen tongue, sores that come and go, difficulty swallowing, and pain in my throat that sometimes hurts really bad, and not to mention acid r...
So two weeks into triple therapy with telapravir. Fatigue is a given, but biggest issue has been waves of nausea. Food doesn't help. Any suggestions? Thank you!
Hi I'm new to the Forum .I had hepC for 12 years ,I'm 32 now .My treatment was supposed to be started last march.Two days before my first injection I received a phone call from my nurse to say that my latest, pre-tx test came back negative. Being as we all assumed that it was lab's mistake I had another one fe...
Was diagnosed Hep-C 2-b positive in 2005. Did the pegasis for 43 weeks as I was a slow responder, beat is and will be going on 8 years clear as soon as I get the next blood test. Just wanted to try and boost the morale of others who are newly diagnosed and let them know its not the end of the world, and as long as t...
Shot #7 coming up on Friday. For some reason I thought i would start to acclimate to the meds but instead I just feel worse every day. My body just feels like it wants to collapse. I took the first two months off but anticipated going back to work part time April 1st. I just don't see how I can do it... So I just...
just called hospital to check is my PCR done (4th week VL check). Technician didn't said how much in UI or copies, she just said less than/log 1. My VL base was 25k UI (Log 4.4), so does that makes 3.4 Log drop? I am glad to see drop like this, on other hand i am not that happy since this means i am not RVR which...
On March 25th I start my first round of chemo. Just want to get it over with because I trust Yahweh to heal me of this nasty thing! Getting my Nioxin to protect my hair. Thanks to all for advise.Yahweh Blessings
Hello Everyone... <---- NEW HERE so please bare with me! I am a 29 year old female (will be 30 in less than 2 weeks). I first tested positive for HepC at age 13. My sister (16 at the time) was undergoing standard pre-op for a surgery when she tested positive. They thought it was a false + so they reteste...
Hi everyone, dont know why I couldn't put this under a another discussion but regardless we have been hit but yet more bad news. We went for our follow up appt at Mt Sinai as we were told Tom had a liver laceration. I am sorry to report that we were informed the CT Scan revealed liver cancer. We are blown a...
I moved this query from new members to this section, hope that's okay. As I previously reported, my nurses said that my 4 week VL test was "negative" and i had a viral load of 7 "single digit 7" She was very clear in pointing out that it was a single digit 7. I have now received the writ...
so i just left my doctors office. turns out i am resistant to the protease inhibitor, not the interferon. that would explain my monumental drop, but not to und in the first 4 weeks. anyway, now i am back up. said i should just practice some good clean livin' for now, but i broke that rule this past weeke...
Hello out there :) I would like to list issues I've had creep up on me in the last few years at a pretty slow pace and now that I'm aware of my HCV I was wondering if anyone has also experienced any of these. I want to list all I can think of and please tell me if anyone has also experienced any of these.... Sure w...
Just want to know if there is anything stronger than paracetamol I can take as paracetamol is just not even touching the pain. I have severe ache/pain in my upper back, shoulder blade area. I just feel awful and feel like giving up....
I will hopefully be starting this study in April after my liver biopsy. I did a Riba/Interferon study with this same site about 5 years ago and failed. This time, instead of a 48 week study, it will be a 3 month study where I only take pills. The pills stop the virus from replicating and there is a greater th...
BEFORE i was diagnosed w hep c .. i was working on losing weight. now i have to find a way to add 60g of fat to my diet a day. i see no healthy way to do that. any suggestions???
Well , guess I'm in the family now lol. Was told I have HVC antibody and only had a couple symptoms and ignored it ( about three years ago ) hoping it would go away - talking myself into being fine and just worrying. 95% Chronic - I think that's why it took so long to get to this point. Now , everything from c...
I am on pedgasys and ribapak 400 i will start the third med in 5 weeks so far so good, no effects yet doing the shot last night was not as bad as i thought it would be i didnt even feel it.
I have been reading the board since I started treatment 4 weeks ago and wanted to thank you for all posts!! It eases my mind to know that what I am experiencing this go- round is normal -- fatigue, shortness of breath, rash and just feeling crappy... What I didn't include in my bio was my 2nd treatment att...
When I was diagnosed with Carcinoid Cancer in 2008 I'd been on a 10 year journey to find out what was wrong nd why so much pain.? The average journey to find this rare and little known disease is 6 years as it mimics itself as so many other diseases and is mean but slow growing. Its also known as NeuroEndocr...
35+ years of HCV, null responder, 15 years ago the first night of ifn was hell. Last night began triple therapy with telaprivir. I was dreading this treatment. So far, easy, shocked! Hope it's harder on the virus then it's been on me.
In past 4 weeks, I am very sick and don`t want to move, talk and walk. only want to lie and sit. This Tuesday, it is the forth week, I went to see my RN. I had a very short breath and very low blood presure with 86/56. After my RN talk with Doc. they decided cut Rib from 600 Morning/ 400 evening to 400 morning/ 20...
so.....i just got my labs back. seems that my vl went up from the last time. labs were on the 28th of feb. and i finished the incivek on 1st of march? wtf is that all about? don't see the doctor until the 12th, but i gotta tell ya, i am really pissed off! for the record, i didn't deviate an iota from my medic...
I Am new to this.I,ve known I have this disease. For 20 yrs And in the last year I,ve gone From To 3.I feel sick all The time and I.m about to start treatment.......Anyone got advice?
Hi, I am female , 58 years old and live in Sydney Australia. I was diagnosed 15 months ago with Hep C and Cirrohsis but have not started treatment yet. The specialists wanted to make sure I was stable enough. For example during that time I also got diagnosed with osteo-athritis in my knee and need a pa...
I am open for all advice on help with getting calories in him. I have hospice in the house but they are kinda annoying. He does not want to die trying to make things better for him. I am 32 so kinda young to be a caregiver but feel blessed to be by my dads side. I feel so lost watching this very sad. I am up fo...
How can I get a website page that I have copied to turn into a clickable hyperlink on my posting? I underlined, left a space at beginning of line...no good.
Victrelis (Boceprevir) label changesOn February 27, 2013, FDA approved changes to the Victrelis (boceprevir) label to include results from a clinical trial entitled, "Boceprevir and Peginterferon/Ribavirin for the Treatment of Chronic Hepatitis C in Treatment-Naïve Subjects: A Compariso...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
