How is this possible? You guys know I relapsed after tx last year. It's now 6-months post. Did Labs 4 days ago, on Monday. Everything looks better than ever before....liver enzymes back down, all LFT is great, glucose 72, all of CBC is perfect, thyroid great, uric acid, creatinine kinase....eve...
Hi everyone.I am currently on treatment with Incivek and I know a lot about my own disease but this post is for my aunt. I have not seen her labs and only know what she herself has conveyed to me but she wanted me to ask you all some questions about her options and clinical trials. My aunt recently went to th...
Hi, I would really appreciate some advice please. I am on week 20 of a 24 week triple therapy and want to stop. I cleared the virus at 4 weeks. I am so sick of feeling depressed, cold, weak and bad tempered ect! Surely stopping at this point wont make any difference?
I just started a the TURQUOISE II AbbVie all oral trial for those with cirrhosis. I haven't done treatment before and just found out last year that I had Hepatitis C type 1b. I probably got it from a blood transfusion as a kid, but since I'm in my early 40s, it was still a shock to find out it had already cause...
I guess Im asking that if I were told about being positive for antibodies but never got any further testing , can that donation center or does that center report this to any agency ? can an insurance company pry and get these results ? even if these results are NOT positive results of an active infection....
I just wanted to wish everyone a Happy Easter, to those that don't celebrate I hope you have a relaxed and fun evening. Hugs to all past and present Hep warriors! :*
15 years ago I started interferon/ribavirin. Was a null responder. The results of the HALT-C trial were not in so I stayed on prolonged ifn. Never missed a day of work, did great. Now, 15 years older and on triple therapy with telaprevir. VL went from 955,000 pretreatment to < 43 on thursday wh...
Has anyone heard of the rash getting around the eye?My right eye is on fire and the lower lid is pale pink.Started bothering me a week ago and has intensifiedToday! I am taking Benadryl and using eye dropsFrom over the counter for allergies!My eye is painful. Will go see doctor Monday.Has anyone exp...
I am a complete disaster! I have been all over the board with symptoms and emotions since I had to stop tx. I have been itching like crazy, I am puffy all over, tired, headache, cant sleep, night sweats, up all night in the bathroom and have another round of bronchitis. The pollen here is HORRIBLE and I a...
Let me say, it's been a long 48 weeks and a trying 48 weeks. So today is my last day of this part of the journey as this trip has ended. Undetected as of week 8. Today I went for a complete blood work and there will be 3 more over the next 6 months. I am hoping that my body recovers quickly as I haven't done to much o...
Hi all,At 3.5 weeks post Rx, I am regretting my inactivity during Rx. At my age, the muscle wasting is significant and even though I have more energy and want to do things, I am limited by my aching, stiff legs. I realise it's going to be a slow process but it's frustrating.Looking back at Rx, I should have...
Just checked my 6 month labs on line and I'm still UND!! It has been a long road, 7 years on March 15th since diagnosis. It has been a rough, stressful and enlightening experience. I feel like a stronger person for having gone the distance. Now I can stop holding my breath and live!! And live I will. I'm fe...
Still <43 Not Detected at 24 weeks post. Won't see or talk to the doctor until next year, but I'm calling it SVR. That's 52 weeks since the first shot. Overdue on my 2nd ultrasound (annual). Feel pretty much normal, better than I did before tx except for a few nagging issues. The tinnitus and associat...
And it's UND! I have felt like doing the happy dance all day and then I cry. It has been such an emotional journey and could have never gotten through without the support of all the wonderful people on this forum. Can't say how grateful I am enough. I know haven't been around much--my post-tx life has been...
Renee has not been able to get back to her liver specialist for a host of reasons that none seem important at all right now. She's been feeling ill lately, and today, I begged her (and cried) to get her VL done and to reconnect with her doctor. I don't care if we have to drive 90 minutes to see her old doctor si...
I found a trial in a city close to me. I have emailed the contact to the trial and my nurse. No response from anyone yet. Any other suggestions? I would like to get some answers and I hope I am taking the right steps, but if anyone can let me know if there is more I can do I would appreciate it. Here is the trial:...
Six months after treatment, my skin is still not returned to normal, injection sites still no hair, and sometimes red. But my emotions and anxiety are still up and down, Even when they said you cured, it was like have a great day bye bye. I am still having side effects from treatment. I am I the only one? sh...
I was wondering what the success rate of the telep\peg iba treatment is..and also your thoughts and exp if you obtained svr or treatment failed? I have a family member that also went thru this treatment and they were cut off at 8 weeks : ( I guess im just worried about it...it seems like the success rate...
Hi all, I've been reading through posts over the last few days & finallha have the courage to ask some questions myself. My mom has had HCV for approx 38 yrs (when I was born she had a blood transfusion). She was in a clinical study approx 9 yrs ago but couldn't finish or was not responsive (I may not get...
Hello my forum friends... just wanted to share some good news... Doc office called my 3 wk post tx lab results.. Mastercard couldn't buy this one... still UND !!! now the 6 mo. waiting game... My wish for all of you... may your treatment be tolerable ,side effects be few & stay conneted to those wh...
When I was on treatment I had the typical skin itching, lesions and such that everyone has, but even at 2+ months post tx I still have some sensation of bugs crawling on my skin, particularly at night. If I take some Xanax that I have on-hand, I can get a decent night's sleep, but I don't really feel that I...
My viral load has increased to 3000. Treatment has been discontinued. I am disappointed, but had a feeling when I had such a small decrease from 2 weeks to 4 weeks. I am still trying to take it all in at this point, but I wll be fine. I will update once I see my doctor to get some answers.
Hello all only posted once a couple months ago when I found out Id start treatment. Im on the 3 drug combo..peg,riba,telepr, and so far ive done 3 shots out of 24. My viral load at start was 33,100 and Im geno type 1a. Im also on a medicine called suboxone. I have been clean nearly 2 years from illicit drugs....
well I was officialy taken off treatment Feb. 15th after 20 weeks of a 48 week treatment plan. My blood platelets droped too low and would not come up. However got my 3rd undetectable viral load test back in a row. I'm praying to stay that way, Doctor said he doubts it but it has happened before. Will not...
I guess I didn't scroll down far enough on the Forum page but have finally found a place where I feel I "fit in." I am treatment intolerant. Did 10 weeks of tx before taken off all meds due to sx. I am glad my body showed me with the rash, that this wasn't the right combination for me. I just wish it w...
Hello everyone well I went for my appointment today and along with the doctor have decided to stop all treatment has because I had not responded to the SOC in fact my viral has gone up! It was 1.3x10*5 at the beginning to 9.7x10*5 !! So anyway I guess it's a waiting game for me again. The doctor did say that t...
Hello all, This is only my second post. I have had hepc for 8 years,but only started treatment 6 weeks ago. My viral load was very low to begin with, low thousands, which is one reason I delayed treatment. After 4 weeks it was undetected. For that I am very pleased. My question is in regards to the the s...
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