Hello Members Does anyone know of a place where one can schedule a Fibroscan in Copenhagen, Denmark I will be visiting there in the coming months so thought it would be a good idea. Allready had a Liver Biopsy, but its results were debated by the Doctors. The USA still has not approved it yet. Matt
Hi all,This post was prompted by a discussion with a fellow patient while waiting for my doc to arrive. I knew her from cruising/sailing, and we had discussed HepC after finding we were the only non-drinkers at a beach party. She was about 60 yo, was F2 and was about to start triple Rx with Victrelis. She...
HGB 78 120---160 RBC 2.29 3.8--5.2 HCT 0.23 0.36--0.46 My RA ask to reduce RIBA from 2 pills morning , 1 pill evening to 1 pill morning and 1 pill evening And she told me I need blood fransfusion and set up time to do that next week. Others keep the same.
Well I'm happy to say that 7 months after treatment my last blood work came back as UND!! YAHOO!! Yepee!! There is no looking back, unless it will help someone else, of course. But I have been having some post treatment sx that have been explained by my nurse as being Hyper Thyroid. She explained that Thy...
I'm very thankful for this forum. It has good information, and has allowed me to care about others a little more than myself, which is a good thing. Thanks for sharing your journey. I start treatment on Friday. Our plan (my wife is great at scheduling, nourishing and caring) is to take my first shot on Fr...
Well got part of blood work back and hem down to 83 again, read some where importance of alt started out at 91 and has dropped to a regular 42-32 since about week 11 will get viral load in two more weeks as slow at hospital, if detected of treatment if undetected I guess I am more than 1/2 way to the 48 weeks sor...
The good news is that he is undetectable at 4 weeks. The bad news is that his white blood cells are still a bit low. He may end up having to take an injection called Neupogen (I think this is how you spell it?) Has anyone else had to take this drug for low white blood cell counts? If so, were you able to give...
Hi there everyone, My name is Matt and I work with the Hep C News team. Our website was launched last year (hopefully some of you will have seen it). We want to share the latest news about hepatitis C, and share people's stories and experiences of the virus and undertaking treatment. Do you have a story...
Gilead Submits New Drug Application to U.S. FDA for Sofosbuvir for the Treatment of Hepatitis C -- Sofosbuvir Would Form Basis of First All-Oral Regimen for HCV Genotype 2 and 3 Patients, and Interferon-Sparing Regimen for Genotype 1 Patients -- FOSTER CITY, Calif.--(BUSINESS WIRE)--Apr. 8, 20...
Friday, April 5, 2013 Vertex Enters Agreement with Bristol-Myers Squibb for Phase 2 All-Oral Studies of VX-135 in Combination with Daclatasvir for the Treatment of Hepatitis C -Two Phase 2 studies to evaluate once-daily combination of Vertex's investigational nucleotide analogue VX-135 an...
Hi everyone, I went for I.V.F at 39 to discover I have Hep C antibodies. My husband was negative. I may have had this virus over 20 and I am terrified. I don't know yet if I am in the lucky 5-10% that beat the disease on their own as I had no symptoms. I was tired alot and did go lots to the Dr.s but i was diagnosed...
This seems like a wonderful place and I am so happy to have found it. A little back ground: A few weeks ago my husband hadnt been feeling well for about a week (headache and fever), went to the doctor and she diagnosed ear infection. Gave antibiotics and at follow up the ear infection went away, but he wa...
One word I heard this morning at 11:52 April 1 moved me to Tears of Joy" Undetected " I just received a phone call from my Abbott Truquoise II Trial Study Nurse contact with my week 5-6 Lab results when she said those coveted words. I was traveling with my wife of 33 years and we stopped at on...
A Guide to Stigma and Hepatitis C, updated April 2013A Publication of the Hep C Support Project, by Lucinda K Porter, RNAn often overlooked and painful component of HCV is stigma. Although invisible, stigma is a harsh reality for some. This guide discusses the ways in which HCV is stigmatized and p...
I have been doing triple therapy for 5+ weeks and have had VL go to near undetectable for three straight weeks (non-linear range so no number). That is greater than a four log drop. But with this, my side effects have been intolerable. Fatigue to the point of not being able to get out of bed, not helped...
Hi everyone, I just stumbled upon this site, and I'm desperately seeking advice on what to do. I discovered there was an abnormality with my health in 2009 when I tried to donate blood and the blood was rejected due to a positive HCV count. I was officially diagnosed with Hepatitis C in September 2010...
I recieved my results and my viral load was negative! what is the difference between a negative result and undetected? My Uric acid was high and my nurse told me to drink cherry juice..I had my lab work done at quest, and the nurse said the next blood draw for my 8th week will be a different test for viral lo...
My confirmation test was positive - my primary dr doesn't want to give me the viral load information etc but wants to send me to a specialist to have it explained to me. I understand it is high enough to start therapy. I'm hopping all this body ache and joint pain and being tired etc will go away after thera...
I have hep c... of course and i have worked 2 days as a dishwasher at a restraunt i wasnt even thinking about my problem but now i am worried, is there some kind of legal issue here? do i have to leave my new job?
I completed treatment one week ago. My EOT labs were pretty much normal, but I've been having some symptoms that are getting worse, and I'm not sure whom to call. It could be that the problem is something for my treatment doctor, or my regular doctor, or my gynecologist, and it's difficult to know whe...
Hi my name is Constance I am 50 and I have three weeks remaining on my triple therapy with incivic. first let me say that my doctor said that I had had the highest viral load he had ever seen at 36 million so though I am genotype 1 in the second stage I was at a high risk. I will tell you that it has not been an easy r...
I was wondering if anyone had any warnings for a product called serovital - an HGH increadeer with something called schizoneptea powder- I am reading mixed review son liver effects
Hello everyone. So happy to find this forum. My name is Ophelia and I am 27. I live in Philadephia, PA. Quick health info; I was diagnosed with HepC when I was 17/almost 18. I don't have insurance and in America that is....bad. Lack of money and lack of responsibility (can't blame it all on everyone else!...
The Hepatitis-Fibromyalgia ConnectionExcerpt from article..."Fibromyalgia and chronic hepatitis C infection share many clinical features including prominent somatic complaints such as musculoskeletal pain and fatigue. In fact, some medical experts believe that the symptoms and p...
Its been quite an a adventure, this Hepatitis C business. I'm 68, retired, and found out just about a year ago that I'd been nursing a case of Hep C for the last 43 or so years. Its nice to read about how other people are dealing with this....thanks!
In a panel discussion following the 20th Conference on Retroviruses and Opportunistic Infections (CROI 2013), in March 2013, in Atlanta, Cami Graham from Beth Israel Deaconess Medical Center, Kenneth Sherman from the University of Cincinnati, and Kristen Mark from Weill Cornell Medical C...
My right eye is itching and burning. Will need to see a doctor as it's getting worse. My nerves are edgy. So tired! think its time to just hibernate! 20 days left and shots and RIBA OVER! I think 20 days seems far far away:( i feel like I am fried! Time out coming soon these last weeks are hard
And I'm UND!! All bloodwork is in normal range and I feel better than I have in years. Thank you guys for hanging with me during this stressful ordeal. 3 more months and I'm homefree.
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