Hi everyone, it's me Laura with a update on Tom's liver tumor. We went back for the 3 month CT liver scan and the tumor in Tom's liver hasn't grown. We are very happy, elated, excited, can you tell. He had a stent put in last month due to his heart not being able to handle the stress of surgery last mon...
I've posted about rash before. Nine days ago I had to stop meds because of extreme fatigue and worsening rash. My energy level has improved relatively quickly as has the fog. My hemoglobin was pretty low but I can tell that it must be improving. But the rash, now nine days later remains awful, terri...
I have been busy this morning to try and learn more specifics about the genotype 3b. There is poor information available and I am a little annoyed by what is. I am not a judgemental person, and I do not discriminate, but my particular type is from Pakistan (I would like to have at least been there), and th...
Hi All I live in South Africa and wanted to know if anyone knew of clinical trials happening in SA. My health is not too good, so my doctor recommends treatment. My genoyype is 4, so i guess not to responsive to treatment, Doc says that the only treatment available in SA is riba/peg combination. Any fel...
I had my EOT gastroscopy today. As I have had 12 of these over the last 20 years, I like to enjoy them. This means no sedation, just a spray to the back of the throat, swallow the tube and away we go. You get a running commentary from the doctor, you get to see your oesophagus, stomach and duodenum in glorious...
I am pretty sure the sores on my ankles and calfs is lichen planus. i have tried eco harvest tea tree oil, spraying peroxide on it, coconut oil. Am going to dermatologist in 2 weeks. Has anyone taken triamcinolone acetonide ointment/kenalog for this. Any sugestions. -- Edited by Sailboatbend on Wed...
Hi all, this is the third time around on treatment [tx]. In 04 I was in riba & peg while on my second week of tx one day i went fishing wihtout skin protection and a rash started. the rash got so bad my doctor took me off the med while the dermotolist treated the severe rash with steriod and tubs of triamci...
Hi All, Love hearing all the completion stories. Now and Future. After completing therapy. The first week seemed the same as if still on meds. The second week had headackes. Probly withdraw. this week has been wonderful. Skin looks better. Food taste great. And Dr. said tests show stil...
Haven't seen liver results yet but blood counts are up! I am feeling stronger every day. So glad. WBC 3.6 4.2 - 9.1 THOU/uLRBC 3.7 4.6 - 6.1 MIL/uLHemoglobin 13.0 ...
Hi all. Its been 5 and a half months since completing triple Ribo, Victrelis, Peg Interferon. Good news - non detectable Bad news -Still fatigued and joints (shoulder, hip, feet, Spine) painful and I am STIFF. Primary care physician had me take arthritis/auto-immune test as well as Sed test on Frid...
hi all, i started week no# 8 and this sat" i'm going for 8 week blood draw. I'm excited but very anxious at the same time. Started tx on 3/1/13 and after 4 weeks still det. hoping for better results at 8 weeks. my tx hasn't been a bowl of cherry. lots of aches, rashes, rectal icting and some bleeding,...
Merck Enters Agreement with Bristol-Myers Squibb to Conduct a Phase II Clinical Trial Evaluating Combination of Investigational Oral Candidates MK-5172 and Daclatasvir for Chronic Hepatitis C WHITEHOUSE STATION, N.J.. 22nd April, 2013 - Merck today announced it has entered into a non-exclus...
I just can not get over the cost of meds for the triple - Incivik-Riba-Pega/Interf treatment I always got a copy of the bill every month from CuraScript (they provided meds via FedEx-overnite from Orlando, Florida) $2,600 for 4 shots a month $696 for 1 bottle of Riba a month $17,000 for 1 box of I...
Anyone here on the Hallmark QUAD phase 3 clinical trial? It is for 24 weeks and comprised of 4 drugs: Ribavirin, PegInterferon, Daclatasvir and Asunaprevir. I am on week 3 and looking for people on the same same treatment to share results, side effects and other treatment related experiences. Pleas...
Hi as you can see I am new to the forum :D I was diagonosed with Hep C a couple of years ago but stayed away from treatment seeing how then there was just the interferon and riba treatment that didn't sound too promising. I also have heart problems and it wasn't recomended that I have a bioposy because I have...
Frequently asked - Questions and Answers I thought it might be helpful to post this info, based on the most `frequently asked questions` that crop up. If you have any other queries, please don`t hesitate to contact one of the forum moderators, that`s Malcolm (mallani), Tim (hrsetrdr), Alan (news)...
hi everyone, I was diagnosed a year ago January. For the past few years cold weather has hated me more and more. Just happened to be at the dermatologist with my husband during a flair (my term for an episode of purpura, inflamation, low grade fever, difficulty breathing). Anyway, the derm 'knew' exac...
Okay... hi everyone my name is Jamie. I'm 22, live in PA & just found out about 3 months ago i have hepatitis C, genotype 1. I am starting the Triple Therapy Treatment on Tuesday (5 days!! I'm so flippin nervous!) i don't know much about what specifically genotype one means besides my doctor telling...
Anyone want to help planning the surprise party for JoAnneh? We need to keep this a secret from her, so she will be totally surprised. We will need party decorations, chips and dip, horty-dorves and non-alcoholic drinks. Even if you don't know her please attend. JoAnneh has been keeping our hearts fu...
Some of us have noticed that the `spell check` has disappeared from the reply box text editor panel, and I`m wondering if everyone is seeing this? Could you let me know if you can see it or not, please? And which browser you are using? I`m going to get in touch with our tech support and any feedback woul...
my granlucytes are at 0.7, WBC 2.1...tomorrow i am doing blood test again for proper neutrophil count (last one was 0.9)...doc said it's time to lower interferon dosage, maybe from 120mg to 100mg. I got 2-3 weeks max to rebounce WBC otherwise they might halt therapy completly. She said Nupogena is a l...
I am getting increasingly nervous about the liver biopsy, I am pretty scared actually, so much so I am losing sleep over it. Is my imagination much worse than the actual event???
How do you get on a trial in the UK? My consultant says that no troals are taking place for non-interferon therapy but I read in my newsletter that some of the workers at the Hepc C trust are on one. Getting desperate now as I am going down with chest infections all the time. Just recovered from pleuris...
Six months post quote from Doc "It's all good" I am so happy, tx seems such a long time ago. My hair is slowly thickening back up. I don't post much but I still read.To all still going and to the quite a few nearing EOT there is hope, hang in there and good luck Love KristyX
Greetings all. I'm Tzunamie. I was diagnosed a year ago but deferred treatment till I retired this year. I'm nearing the end of week 1. PegIntron and Riba. Got horrible aches and chills that first night, but no dramatic side effects since. Just fatigue, shortness of breath, some coughing, li...
WARNING: If offended by the topic, please do not read and press the 'Back' buttonThis is a topic which is taboo on most Forums and has been rarely mentioned on this Forum. I'm not sure why, as I regard a satisfactory sex life as part of a normal healthy lifesyle. 'Satisfactory' may have different meani...
I completed week 12 Friday so I have been Incevik free for 4 days. I hope it is not just psychological, but I felt the best today in weeks. I hope this is some indication of the difference w/o Incevik. Sure feels good feeling good if even for a day. Waiting on my 12 week labs.
Well a week ago Monday I had my 6 month post tx labs drawn, so here are some results: ALT=27 AST=24 CBC WITHOUT DIFFERENTIAL Component Your result Standard range Units WBC'S AUTO 11.5 4.0 - 11.0 THOU/MCL RBC, AUTO 5.08 4.7 - 6.1 MIL/MCL HGB 15.6 14.0 - 18.0 G/DL...
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