May 2013 HCV Advocate Newsletterhttp://www.hcvadvocate.org/news/newsLetter/2013/advocate0513.htmlPrintable pdf format...http://www.hcvadvocate.org/news/NewsUpdates_pdf/Advocate%202013/advocate0513.pdf
The new oral regimens seem to be doing well in further reports from EASL this week. Gilead looks like it will deliver to market in 2013 and be particularly effective for Genotypes 2 and 3. AbbVie reported impressive results Genotype I. 24 weeks post treatment the "cure" rate was 96%! The re...
Hi everyone,We`ve changed the name of this section to `HCV News` (from `News and Events`). Please could you post all the news articles you`d like to share here in this section from now on, including new drug info and updates.Many thanks from the admin team.... that`s Malcolm (mallani), Tim (hrsetr...
Got a text from HCV compliance nurse on Friday. She said my Dr. ordered wrong 12 week VL labs, so I've been waiting for 2 weeks to get results and they only go down to 650 VL. So I still dont know if I'm undetected or not. Not sure when they will retest. Tired of shots and pills. My skin looks like crap, my eye la...
Hello to all, Finished my last dose of Incivek on Thursday; can't tell you how happy I am not to have that dragon in my belly anymore. Between a reduction in my riba dosage and a couple of weeks of procrit and Neupogen my blood counts have improved dramatically. I actually feel more like myself in the pa...
Hey, I am 7 months post treatment now and still am having dermatitis on neck, ears, eyelid, and scalp. I have RA like symptoms in my hands....they are stiff when I wake up. Also, My TSH is very high but T3 and T4 normal. All of these together make me think its autoimmune or still side effects of the inter...
Hi everyone, It's been a while since I checked in here at the forum. Two years ago at this time I was nearing the middle of my tx and feeling mighty fatigued. I have recovered from the awful, but necessary, effects of the drugs and life as I knew it has pretty much returned. My liver emzimes as of a couple...
Well seen doctor on friday and I guess because I was so pale a lady of perpetual revenge put me in a wheel chair and that started an 8 hr process. Sent me for a blood transfussion two bags, blood work was Hemo 71 white 22 platt 100. They also injected something into the last bag that may make you pee, well if...
So grateful to have started. Hope it's ok to express my faith in the Lord because He is my source of strength. Thanks to all for being here. One down on to today!
just wanted to let you all know I I feel much better today! have a great day!!! 18 days to go to complete 48 weeks I shall spend time in Gods word then go enjoy fresh air and Spring day
Hi everyone. Google brought me here. It looks like a pretty active and vibrant community and I wanted to ensure that I have a good group of people to help my through this time in my life. A little about me: I'm Jennifer, 29 year old female. Through a routine STD test I just found out last week that I'm positi...
hi all, I'm little concern about a phone call from my doctor today. This whole month i've been fighting with my emotional rollor coaster called riba rage. Two days ago i put in a call to the nurse and said i cant take it anymore{The rage or the rollor coaster}. The doctor called me and he's putting me on p...
Looking at new posts on the Forum each day, it seems that Abbott (AbbVie) is top dog. In a multi-billion dollar race, I wonder where all the Gilead people are. I know we have a couple on the Forum, one doing ION-1 and one doing Neutrino. Gilead have ~1000 patients doing Phase 3 trials- Neutrino, Fission...
So, my husband started treatment on 2/28/2013. Prior to that date, we had two office visits - the first with the doctor and nurse practitioner, and the second with the nurse practitioner. My husband gets blood work done each week, and the nurse practitioner calls the next day with the results. So fa...
I am going in for my liver biopsy soon and if everything works out, I get to start a new trial in April. I am a non-responder for the older Peg/Riba treatment and I have 1a. The doctor at the clinical trial center said that this new treatment has a 90+ percent cure rate. It is an oral treatment that takes 3 mon...
I started my treatment of pegasys injections and ribavirin 3 weeks ago and boy its kicking my butt. I have genotype 2b. I'm grumpy,tired and in pain 80% of my day. I'm 33 yrs old and I have 4 kids....this is physically and mentally wearing me down. Any good advice??? Please and thanks
Hi All, I'm Andy, my mum started the TURQUOISE 2 trail may be five weeks ago now. Its been a rough period which has rollercoasted somewhat. Looking for any help and guidance folks are willing to give/share? Background info: Mum first diagnosed with Hep C over fifteen years. Geno type 1a (i think). Firs...
Hi there. A couple of days ago, i found out i've been accepted on the Sapphire Phase III trial. I've been reading posts by people who are currently on this trial to get an idea of what i might expect, and found it really helpful. I want to share my experience and do the same for other people too.Luckily, my l...
Today Adam and his friend and I did a bike ride to train for our upcoming 150 mile ride. The subject of today's training was dumbass driver avoidance. All three of us passed. Witness the fact that we are all three alive. Next week we will train on close order drills, pace line etiquette, etc. on a trail ne...
This morning after I took my ribavirn and drank some coffee I had a huge speeding feeling I never felt before. Felt almost like an anxety attack. Does caffine affect you different while on treatment?
Hi! My name is Rachel and I'm glad to find this site. I am geno type1 a and just started treatment this week. I'm taking the ribavirin and interferon and will start Victrelis is a few weeks. I hope to make friends and learn things while I'm here. I'm from Nashville, TN.
Hi, I introduce myself but now, because it's a bit exhausting for me to write in english. So, sorry for my "Kauderwelsch", this means in german a mixture of words and grammatics of different languages. I got my diagnose in January 2012. Every 3-4 years I went to a doctor to have a blood test...
I know it's too early to tell of the long term benefits of the treatment, however it is encouraging that most things are headed in the right direction. Here's some of the numbers (from Monday's lab work vs. Mar 27th) thus far: WBC = 4.8 ( + .3) RBC = 3.75 ( - .11) Hemiglobin = 12.3 ( - .5) RDW = 18.2 ( + .3.5) Plat...
1a genotype,vl 3.2mil. With the lord by my side and the support of an amazing wife of 27 yrs. I'm so ready to put this disease behind me! I know how important a support group is so thanks for being here. Alaska Fred
I had looked for this particular trial because of my fear for the inteferon injections and I guess as they say timing is everything and I managed to get in. I am a stage 4 cirrhosis at 57 years old so I am hoping I can clear this nasty virus that I think I have had for about 30 years. I am lucky that I have played s...
Just wondering what people are eating / drinking with their incivek? I work weird hours and with the butt trouble I have to stay away from certain things. Thanks, Brian
These two weeks, My skin is getting to be more dry. I already use a lot of body lotion, body cream, but not useful. Can anyone recommend any way to me? I already tried to change a different brand product, but still not useful. Thanks a lot -- Edited by lucy on Tuesday 16th of April 2013 06:47:05 PM-- Edite...
Question: How long is the after effects of Ribavirin take to depart from the body and mind ? Question: Is their anyway to hasten (speed up) the time it takes to clear the body? Question: Is their any long term effects of Ribavirin? Is this drug a mystery or what? Matt
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