I found out 6 months ago I have Hep C and have been doing everything the doctor has told me to prepare for treatment. Last week I thought I was ready to go and today she called and said she can't start because of something she saw on my EKG (even though at the hospital when I took it they told me it was fine!). E...
2 failed hep c treatments. Last treatment ended in april. My new Dr @ loyola in Chicago (June Visit) said my Hep was causing my nose to get a little red. Now months later its super red. I mean dark red. Its been going on for two weeks. medicine did not help. Im getting nervous. Is this common? Thanks Rick
Hi guys, I have seen at least 4 posts where patients have been told they have cirrhosis, on the basis of a palpable spleen and portal hypertension ( PH ). This is without a biopsy or Fibroscan. I'll explain why this may be incorrect. Spleen come in all shapes and sizes. It is usually accepted that 12cms in...
Hi all, most of my symtoms are related to Rx induced anaemia. With the haemolysis of Riba, the bone marrow depression of Peg and both from the PI, it's no surprise that we get anaemic. The reduction of Hb should be at least 3gms/cc, and the aim is to get down to ~10 . Below that, many Hepatologists will star...
so week one is in the books and i went for my first blood draw this morning. i have to say that i feel blessed, as other than being a little more tired than usual, i have had no other adverse reactions. been going to the gym, and doing the same workouts, but i have lowered the weight, just increased the repi...
I'm sure the sbject line brings back horrible memories for some of you. I am near the end of week #10 and this rash is driving me nuts!! When I finish the incevik, will it go away? It is on my FACE(!!) chest, arms, legs, back and shoulders. The anti-itch cream seems to be doing an ok job but it is not 100%. I als...
Great news today! My VL is UND at 6 months treatment meaning the Invicek
Worked! I know this increases my chances!
I am in awe the medicine working this time as It did not work for me 11 years ago.
Incivek was tough but it worked and my blood work looks good too.
Week 26 of 42! Here we go!
PTL! I will do wha...
Had my 6 monthly Ultrasound today. No change so I don't have to worry about HCC for another 6 months. I've had an annoying cough since week 30 (10 weeks). I explained it as a Ribavirin cough to my wife, but she insisted I get a Chest XR as well. It was normal so she's happy. The question about followup imagin...
hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my lateset liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how muc...
Picked up the anti-itch cream my doc prescribed. The compound is "Triamcinolone 0.1% crm in cetaphil. Apply to rash three times daily" I used it 2x yesterday and 1x so far today. Seems to be helping as the injection site reactions on my thighs do not look so angry. I have also been taking oatm...
One of the newest medications used to treatchronic hepatitis C virus (HCV) infection is Incivek(telaprevir). Incivek is a protease inhibitor, takenwith peginterferon and ribavirin, and used forHCV patients with genotype 1. A common sideeffect of Incivek is anorectal discomfort, includinga...
I don't know if anyone here in the UK is becoming increasedly frustrated at the prosect of all these new drugs with hardly any trials here. I understand that there is not that much money around at the moment but surely it's cheaper than liver transplants and cancer treatments. I had to fight for retr...
the protease inhibitor after 32 weeks of triple/combo treatment can i never ever do the protease inibitor ever again? if not what pipeline drugs do i need to track. i have been on riba/interferon twice & the the interferon/riba/incivik once.. lots of toxic crap put in my body.. thanks for any in...
Well they kinda got it sorted out so as of tommoro I will be back on 600 rib the 12 vict and on monday go for blood then the eprex and peg shot. Haveing a week off and told to go back on treatmnet is or was questionable but heck I use to play in traffic down town at rush hour so I am back with use again. Hemo only m...
Here is my conversation w/the Clinical Research Coordinator for the Abbott Lab trial. The purpose of the study is to monitor the development and mutation of the Hep C virus. Participates will be notified immediately if the virus becomes resistant. They will do an APRI blood test in lieu of a liver...
Just received an email from my doctor asking for my genotype...he is considering me for Gilead's new trail. He was not clear on exactly which one...when I view Gilead's website there are currently 4 in phase II and 2 in phase I. Does anyone have any idea which trial this might be? Anyone else being ask...
Delivery method, breastfeeding did not impact mother-to-infant HCV transmission risk Results from a recent systematic review indicate no clear associations between the risk for mother-to-infant HCV transmission and breastfeeding practices, labor management or method of delivery.Read ar...
I am really surprised that one of the hardest things about this tripple tx, for me anyway, is choking down 20 grams of fat at 6am and 10pm. I manage to fix a fried egg, bacon, and toast with butter and force feed myself at 5:45 so that I can take my meds, but I still get so hungry thoughout the morning and crave...
Need to know if your liver gets a rest from the virus attack, while you are on treatment. If you don't respond to treatment, then does your viral load go up??
I've just entered 8 th week of tx. I now officially have the rash, Its on my arms, legs back of neck, I've takin oat meal baths,soaked myself with Aveeno,script of 2.5 hydrocortisone and a script of Hydroxyzine HCL 10 mg. I've been through the ringer with treatment. I have resorted to Xanax at night. The...
I have just started weekk #9 on tx and got to wondering about those out there who have done drug therapy more than 1x.Have you guys been on tx multiple times (or mono or double)? Do you get any sort of break between therapies? I am not sure if I could do another round. What was your motivation? Just wonderin...
These two workbooks are designed for patients to keep on hand throughout their treatment course with triple therapy--pegylated interferon, ribavirin and one of the two new drugs: boceprevir or telaprevir. You can download either one in PDF format from this link. http://www.hepatitis.va.gov/...
Hi Gang, I am really having a hard time telling others what is going on with me. I am afraid I will scare people away by telling the truth. I dont want people to think I do not trust them as friends. I would almost rather people think I have liver cancer which would explain the chemo therapy. Since my job re...
Anyone on forum have DET at 4 wk on Invicek??
I was UND 2 wk, DET 4, UND 12, 24.
According to the Invicek company website
I should have been taken off all meds at 4 wk!
Since doctors are still learning about these
Treatments, I think it's important to be aware
And ask your doc tor questions.
I am previ...
so i started tx today. interferon, ribavirin plus my first dose of incivek....went to the gym and worked out, feel a little "coldy", but so far so good. let's hope it stays that way!
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