Yikes!! I am glad it's almost over with!! Seems like these past few weeks have gotten worse. My eyes are blurring. no energy, cramping legs, out of breath and on and on...... Viral load is NEG. but red and white counts have been low. Also had thyroid problem about 2 months ago and had to drink the 'radioac...
Just wanted to let everyone know that there is a better life waiting after the incivek. I have not felt this good in years (really). My hope is its not just from the last twelve week shock of the Teleparvar..But for now im just going to be thankful. Merry Christmas! Happy Holidays! Brian
I'm in treatment week 16 with triple/Victrelis. I'm fortunate that I was UND at week 4 and have been ever since. The problem is that my blood chemicals are in the tank: I'm on Procrit for low red cells and my ribivirin has been reduced to 2x200mg tabs a day. As soon as it arrives, I'll be starting neupogen f...
Undetected at 8 weeks. But now my WBC too high, a day after nuelasta injection. But can't seem to be happy as I have lost one of my four legged best friends Sat. She has gone to the bridge and I miss her horribly.
If you read my other post, you know I am switching doctors and starting all over again. So I have no idea when I will be able to start treatment. We had planned a vacation in August thinking by then I would be done, but now that doesn't seem like the case. So has anyone gone on a trip during treatment? Our f...
Has anyone experienced extreme calf muscle pains? We're trying to figure out if this is another new sx or if it's the bananas he's been eating. thanks!
Hoping for some suggestions on dealing with pervasive itching I had prior to treatment and, again, post-treatment as the medication failed. My enzymes and viral load are very high. I get itching, worse at night, where I am scratching incessantly and causing lesions on my skin. There is no rash an...
I emailed my RN who forwarded the email to my MD.Due to my rash (and open lesions) they want me to stop the incivek now (2 weeks early). That is good news and bad news, isn't it?
My car broke and I cant fix it. A taxi would be up to 75.00 one way, plus 50.00 to the Dr and 25.00 to the lab. I have no income, ssi turned me down as well as medicaid for my state, so now I have a immune system problem. I have gross mini boils for a few months now under my eye lids, and giant white heads surrounded...
Just had my blood results for 8 week v/l. Its come back UND My consultant said he wants to see how it is at week 12 before making a decision to extend the riba and interferon to 48 weeks. He flagged this up as an option because I was still detected (albeit it just detectable at 12) at week 4. He said as I seem to b...
I found out 6 months ago I have Hep C and have been doing everything the doctor has told me to prepare for treatment. Last week I thought I was ready to go and today she called and said she can't start because of something she saw on my EKG (even though at the hospital when I took it they told me it was fine!). E...
2 failed hep c treatments. Last treatment ended in april. My new Dr @ loyola in Chicago (June Visit) said my Hep was causing my nose to get a little red. Now months later its super red. I mean dark red. Its been going on for two weeks. medicine did not help. Im getting nervous. Is this common? Thanks Rick
Hi guys, I have seen at least 4 posts where patients have been told they have cirrhosis, on the basis of a palpable spleen and portal hypertension ( PH ). This is without a biopsy or Fibroscan. I'll explain why this may be incorrect. Spleen come in all shapes and sizes. It is usually accepted that 12cms in...
Hi all, most of my symtoms are related to Rx induced anaemia. With the haemolysis of Riba, the bone marrow depression of Peg and both from the PI, it's no surprise that we get anaemic. The reduction of Hb should be at least 3gms/cc, and the aim is to get down to ~10 . Below that, many Hepatologists will star...
so week one is in the books and i went for my first blood draw this morning. i have to say that i feel blessed, as other than being a little more tired than usual, i have had no other adverse reactions. been going to the gym, and doing the same workouts, but i have lowered the weight, just increased the repi...
I'm sure the sbject line brings back horrible memories for some of you. I am near the end of week #10 and this rash is driving me nuts!! When I finish the incevik, will it go away? It is on my FACE(!!) chest, arms, legs, back and shoulders. The anti-itch cream seems to be doing an ok job but it is not 100%. I als...
Great news today! My VL is UND at 6 months treatment meaning the Invicek
Worked! I know this increases my chances!
I am in awe the medicine working this time as It did not work for me 11 years ago.
Incivek was tough but it worked and my blood work looks good too.
Week 26 of 42! Here we go!
PTL! I will do wha...
Had my 6 monthly Ultrasound today. No change so I don't have to worry about HCC for another 6 months. I've had an annoying cough since week 30 (10 weeks). I explained it as a Ribavirin cough to my wife, but she insisted I get a Chest XR as well. It was normal so she's happy. The question about followup imagin...
hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my lateset liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how muc...
Picked up the anti-itch cream my doc prescribed. The compound is "Triamcinolone 0.1% crm in cetaphil. Apply to rash three times daily" I used it 2x yesterday and 1x so far today. Seems to be helping as the injection site reactions on my thighs do not look so angry. I have also been taking oatm...
One of the newest medications used to treatchronic hepatitis C virus (HCV) infection is Incivek(telaprevir). Incivek is a protease inhibitor, takenwith peginterferon and ribavirin, and used forHCV patients with genotype 1. A common sideeffect of Incivek is anorectal discomfort, includinga...
I don't know if anyone here in the UK is becoming increasedly frustrated at the prosect of all these new drugs with hardly any trials here. I understand that there is not that much money around at the moment but surely it's cheaper than liver transplants and cancer treatments. I had to fight for retr...
the protease inhibitor after 32 weeks of triple/combo treatment can i never ever do the protease inibitor ever again? if not what pipeline drugs do i need to track. i have been on riba/interferon twice & the the interferon/riba/incivik once.. lots of toxic crap put in my body.. thanks for any in...
Well they kinda got it sorted out so as of tommoro I will be back on 600 rib the 12 vict and on monday go for blood then the eprex and peg shot. Haveing a week off and told to go back on treatmnet is or was questionable but heck I use to play in traffic down town at rush hour so I am back with use again. Hemo only m...
Here is my conversation w/the Clinical Research Coordinator for the Abbott Lab trial. The purpose of the study is to monitor the development and mutation of the Hep C virus. Participates will be notified immediately if the virus becomes resistant. They will do an APRI blood test in lieu of a liver...
Just received an email from my doctor asking for my genotype...he is considering me for Gilead's new trail. He was not clear on exactly which one...when I view Gilead's website there are currently 4 in phase II and 2 in phase I. Does anyone have any idea which trial this might be? Anyone else being ask...
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