Hep C Discussion Forum

I haven't posted in awhile, treatment made me pretty sick & was quite a rollercoaster ride! I was on triple therapy with victrelis & the doc stopped my treatment yesterday. I have an artificial eye and it keeps bleeding--like bloody tears when I blink, my lab results are just getting worse...

I was just wondering how members and the medical community will look back on the current SOC's. Will we look back on them as the lifesavers they appear to be or will we look back on them as some form of barbaric medieval torture that was rushed into production to satisfy the stockholders of Big Pharma...

Well it's been 27 weeks since tx, I have been checking in from time to time but had nothing to update. My labs on 11/12/12 were wbc 7.2 rbc4.77 hgb 15.7 plt 205 sgot 11 sgpt 34 total bilirubin 0.5 Viral load UND!! Was also Und at week 6 and 16 post tx. Still not feeling as well as I had hoped but getting the...

My husband took his last Riba pill tonight. It is over!!! I hope he starts feeling better it has been a tough road. This forum has been a source of strength. Thanks.

Hey guys, just checking in after going through a bad week or so with hubby. He's coping the best he can at the moment, but is suffering with fatigue, sickness, loads of hair loss and the general yuckiness that goes with treatment. I feel upset seeing him like this. He told me today that he can see a mas...

Nail salons should be regulated to help prevent the spread of infections: report Link to article... http://hcvadvocate.blogspot.ca/2012/11/nail-salons-should-be-regulated-to-help.html

I reported a side effect to my Drs office today . what a mistake Instead of just making a note and asking how I was doing, they said go to the ER, they wont see me until 10 days after my4 week blood which I done earlier today before I called my Drs office. So off to the ER, who is having the busiest day theyve...

I recently had both a HCV fibrosure and ASH fibrosure done. The ASH test came back with a Fibrosis score of .46(borderline F1/F2) and a Steatosis score of 0.66-moderate Steatosis. The HCV test resulted in a 0.46(F1/F2) Fibrosis score and a Necroinflammat Activity score of 0.21(A0/A1). When I went...

Well my blood count is all messed up. I am going to the hospital on Friday to get some blood. I was told it will take about 10 hours. Hope they hane a tv in the room. If i need a second pint I will have to stay over night. They say I will feel like a million dollars when I am done. Ken

So Today is my LAST SHOT!

Lindsay and I are having our friend over; Joanie who is a love :) and she was present for my first shot so we thought it only right to complete the circle

Linds and I are working on cleaning up lol, when Joanie gets here we are going to le...

I have found a good way to remember the difference between the two Q tests: Quantatative:" the quantity" the amount of virus being replicated in your liver Qualitative: "the qualifier" the test done to see if you have the C virus I.D. (is this correct Malcolm? please feel free...

I was on incivek w/interferon and riba for 48 weeks 12 weeks with incivek. Since week 3 and1/2 less than 43 udetected all the way till last blood test maybe 8 weeks ago. Took blood test last week after 2 weeks of finishing therapy results less than 43 but detected. Doctor said lets wait for another blo...

I am on my 19th week of TX (triple with vic). Since approximately week 5 I have really bad taste in my mount but from what I read here on this forum it is common. Some days it was worst and some it was better. However, in the last 3 weeks I am walking with a taste that feels like someone dumped a nuclear waste int...

I took my 12-week post-treatment blood test last Friday (Oct 26). I was tempted to tell the doctor not to give me the results on the basis that, emotionally, no news would be better than bad news. I was afraid to even hope for success, lest I be so very disappointed yet again. What I dislike most about H...

As a veteran of the Incivek 20-grams-of-fat wars, I know all too well the misery of gagging down that quantity of vile substances not once but THREE times a day for twelve weeks. But those of you who are mid-battle are in luck! 'Tis the season for eggnog! -- my all time favorite secret fat weapon. A sin...

Been on triple therapy since October 19th, ribavarin, peg interferon and incivo. Am due to collect next months medication this week. Discovered tonight I should have been taking 600 mg of ribavarin. have only been taking 200mg. Thought I had been given too much ribavarin, realised tonight that the...

I recently started a new job in the biotech field and durring me prospecting for new clients I came across Monogram Biosciences. They recently developed an assay (test) for resistance to boceprevir and telapravir. Have any of you had this? I didnt...I had my IL28B tested but not this test...I don...

I have ben treated for Hep C 5 times in 8 years with failure.My last treatment of Pegatron ended in Jan 2007.Since then my life has taken a drastic fall.I have lost all energy,ringing in one ear constantly,stomach pain,depression,fibromyalgia,can't take the cold, major brain fog and much,much mor...

Hello everyone! I feel groggy and tired all the time due to the hep..and im about to start tx....after treatment is all said and done, does the tiredness and fatigue from the hep go completely away?? thanks! none of my doctors have been able to give me an answer so far lol

Hi everyone! I'll be starting tx in a few weeks. I know most things about the disease but don't know much about the tx. Im 25 and have geno 1a..my vl is 50,000 and so far my biopsy said there is no liver damage. I was diagnosed at 17 with hep. Being young and stupid and influence of an older sibling I used pill...

Went in for 8:30 a.m., they did the cross reference blood work and set me with a choice either a chair or bed. I took the chair, as I have other injuries and need to move sometimes. Blood was O + started units in my left hand. Ended at around 2:30 p.m. color came back and so did my breath. No longer doing t...

I recently started a new job in the biotech field and durring me prospecting for new clients I came across Monogram Biosciences. They recently developed an assay (test) for resistance to boceprevir and telapravir. Have any of you had this? I didnt...I had my IL28B tested but not this test...I don...

I haven't posted here for several months. I had responded well to triple therapy being undetectable at week 8 and all through treatment. Kaiser called last week to give me the results of the 6 months post treatment blood test. Hep C is back with the same VL (4,745,986)I had the start of treatment. Haven...

I just took my last 2 little riba pills and now I have finished tx! I did the 24 weeks, triple with Incivek. So many side effects along the way: itching, major fatigue(anemia), dizzyness, naseua, stomach pains, feeling like I have the flu, hair loss, fire in the hole, shards of glass, and some others. T...

Cannot really sleep, nurse got blood results and with the two shots of Eprex Hemo not going up but comming down still. Down to 70 so the set up a transfusssion for am at 8:30 said will take 6 to 8 hours depending how doctor wrote it up, I guess they are giving me two bags. I started out on 7 pink pills and was d...

I noticed when my Hep C was raging I tended to grab a sweet treat....a lot. Also when depression hit same deal. It was comfort or so I thought. Now a bit more mindful, off the meds and on the mend I'm trying to use fruit and water for my "reward" fix. I know a lot of us turned to drugs before our recov...

I think there is too much early reporting in the media, of each stage of the multiple trials of the multiple new drugs. I can understand the DrugCo's want to keep Hepatologists informed of progress. Really, do we care about a Phase 2 trial reporting 100% SVR 4? (Gilead). It might be good for the share p...

So, I'm currently in week 7 of treatment... a few days ago I got the results from my week 4 blood counts, and I'm happy to report VL showed UND :) Regarding SX until now, I think I can consider me one of the lucky ones. Still no rash or itching from Incivek. Anal burning was only there the first two weeks, then...

I had a blood clot in my ankle 26 yrs ago. I've been on treatment now for 7 wks. I sometimes wear a compression stocking to help with the swelling. The past couple of days I've had unusual pain and swelling in the area where I've had trouble in the past. Will Tx make worst old injuries or bring forth old troub...

Hey! I am feeling great after treatment, have my energy back, gained some weight back (muscle), and my hair is growing back. My husband teases me and calls it "crazy hair"...the hair growing back on the top of my head stands up and looks like a mohawk so I have been wearing it in a pony tail, h...

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