I haven't posted here for several months. I had responded well to triple therapy being undetectable at week 8 and all through treatment. Kaiser called last week to give me the results of the 6 months post treatment blood test. Hep C is back with the same VL (4,745,986)I had the start of treatment. Haven...
I just took my last 2 little riba pills and now I have finished tx! I did the 24 weeks, triple with Incivek. So many side effects along the way: itching, major fatigue(anemia), dizzyness, naseua, stomach pains, feeling like I have the flu, hair loss, fire in the hole, shards of glass, and some others. T...
Cannot really sleep, nurse got blood results and with the two shots of Eprex Hemo not going up but comming down still. Down to 70 so the set up a transfusssion for am at 8:30 said will take 6 to 8 hours depending how doctor wrote it up, I guess they are giving me two bags. I started out on 7 pink pills and was d...
I noticed when my Hep C was raging I tended to grab a sweet treat....a lot. Also when depression hit same deal. It was comfort or so I thought. Now a bit more mindful, off the meds and on the mend I'm trying to use fruit and water for my "reward" fix. I know a lot of us turned to drugs before our recov...
I think there is too much early reporting in the media, of each stage of the multiple trials of the multiple new drugs. I can understand the DrugCo's want to keep Hepatologists informed of progress. Really, do we care about a Phase 2 trial reporting 100% SVR 4? (Gilead). It might be good for the share p...
So, I'm currently in week 7 of treatment... a few days ago I got the results from my week 4 blood counts, and I'm happy to report VL showed UND :) Regarding SX until now, I think I can consider me one of the lucky ones. Still no rash or itching from Incivek. Anal burning was only there the first two weeks, then...
I had a blood clot in my ankle 26 yrs ago. I've been on treatment now for 7 wks. I sometimes wear a compression stocking to help with the swelling. The past couple of days I've had unusual pain and swelling in the area where I've had trouble in the past. Will Tx make worst old injuries or bring forth old troub...
Hey! I am feeling great after treatment, have my energy back, gained some weight back (muscle), and my hair is growing back. My husband teases me and calls it "crazy hair"...the hair growing back on the top of my head stands up and looks like a mohawk so I have been wearing it in a pony tail, h...
Well it seems at times I forget I ever had hcv lol. Days go by super fast and I'm rarely tired at all anymore.I work all day long and still am not tired till late at night. Its amazin to feel this way, I know this is what i was supposed to feel like in my 20's however hcv was changing how I was for 10 years. My energ...
Hi all, hope your all tolerating Tx well , breaks by heart to read of all the pain and misery some are going through: all are HEROs. I just received a Rx toothpaste which is 1.1% sodium fluoride, comes with warning about use in people on low sodium or no sodium diets. 1 gram paste contains 11gm sodium , any...
It's back. I just wrapped up 36 weeks of triple therapy....and 3 weeks later I have a VL of 217,000. Really didn't think this was going to happen to me. Everything went so well throughout tx, I responded fast and it looked like a textbook case that I was headed for SVR. ugh.
Got my results from 12-week-post today and it's no longer Und. I now have a viral load of 1.4 million. I know a few of us have had the same news, lately. (Also, I was only able to complete 23 weeks of tx, and was supposed to go 48 but body shut down.) Sure I'm disappointed as that tx was the most difficult t...
I was all excited to start my tx and found out just got peg and rib it'd be 1300 a month co pay not including victrelis. Thats over half of what I make and I'm a single mother. How the heck do people afford this? I thought i had good insurance too! I can't do it now because there is no way I can afford that....
Hi all. I wanted to post a message to let you know that i have decided to step down from the forum. Over the past couple of years there have been many changes in my life such as a new relationship, moving home, and now twin grandchildren due in the Spring. These things (and some ongoing health issues) m...
Hi Everyone,Mallani (Malcolm) has kindly agreed to join our Team and we'd like to say a big thanks to him for all the support and valuable info that he takes the time to share with us all From all the Team xx
The Hemoglobin level that they use here for normal range is 139 to 179. Does anyone know at what reading is it necessary for a blood transfussion. If it drops to 80, 60 etc. no need for other information about reduceing pill, eprex etc just if anybody has needed a transfussion and what was their level a...
Hi - I accidentally stored my Ribasphere tablets in the refrigerator for a week. The box says it should be between 59-86 F for "excursions", and normally at 77 F. No pharmacist at the mail order pharmacy today. Anyone to assuage my fear until tomorrow? Thanks!
Good morning! New here, hoping someone has an experience with this Redipen similar to mine, I can't get any info from the manufacturer. A little background, diagnosed in 1995 with Hep C, Genotype 1A. Back then, they tried straight Interferon... I believe I was the first case this particular docto...
Well, I finished my 48 weeks on August 10, and on October 22 was still UND!! From 69 million plus to in just 48 weeks! I feel pretty confident that I'll stay this way, and so does my doctor. I think my vision is somewhat worse than before treatment, but I'm older too, of course. I have the joint and muscle pa...
Just a quick one. I've been asked a few times about whether mutations will show up in our VL tests. The answer is 'YES' , for all Roche PCR tests. The 'target' used is a stable strand of RNA transcripted to DNA , present in all genotypes and in all viral mutations.
Hi, I got the labs for the first two weeks today. I noticed that bilirubin has been rising. Pre tx 10, after first shot 23, after second shot 31. Does anyone know if this is normal? And what does this indicate? ALT and AST had gone down. CC
FRIDAY, NOVEMBER 2, 2012 FDA Hepatitis Update - Victrelis (boceprevir) labeling updateOn November 2, 2012, the Victrelis (boceprevir) package insert and Medication Guide was updated to include postmarketing information about serious acute hypersensitivity reactions observed during bo...
Since starting triple tx in May my tongue hurts!
And I am on shot 25 of 48!
Any suggestions? I use sensitive toothpaste
And doc prescribe mouth wash too. Is this staying till I stop tx?
I have slept all day after my 25th shot too. To think some stop at 24
Oh I just need to focus and be thankful for any chan...
This may be a silly question but...I received all my meds (triple therapy) and was wondering if I can put the Incivek and Ribaviran tablets in the same pill box container? This is my first time on the treatment and am a little overwhelmed with it all. I take alot of other meds so trying to get oranized is tu...
I wasnt sure where to put this so I started new topic. I went 8 weeks into triple tx and got off because of severe side fx. I went from.12 mill to und. At 8 weeks, when I got 30 post labs I was all the way up to 17 mill v.l. Anyways the abdominal pain in liver area is intense and constant. Dr says its just stretchin...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
