I think there is too much early reporting in the media, of each stage of the multiple trials of the multiple new drugs. I can understand the DrugCo's want to keep Hepatologists informed of progress. Really, do we care about a Phase 2 trial reporting 100% SVR 4? (Gilead). It might be good for the share p...
So, I'm currently in week 7 of treatment... a few days ago I got the results from my week 4 blood counts, and I'm happy to report VL showed UND :) Regarding SX until now, I think I can consider me one of the lucky ones. Still no rash or itching from Incivek. Anal burning was only there the first two weeks, then...
I had a blood clot in my ankle 26 yrs ago. I've been on treatment now for 7 wks. I sometimes wear a compression stocking to help with the swelling. The past couple of days I've had unusual pain and swelling in the area where I've had trouble in the past. Will Tx make worst old injuries or bring forth old troub...
Hey! I am feeling great after treatment, have my energy back, gained some weight back (muscle), and my hair is growing back. My husband teases me and calls it "crazy hair"...the hair growing back on the top of my head stands up and looks like a mohawk so I have been wearing it in a pony tail, h...
Well it seems at times I forget I ever had hcv lol. Days go by super fast and I'm rarely tired at all anymore.I work all day long and still am not tired till late at night. Its amazin to feel this way, I know this is what i was supposed to feel like in my 20's however hcv was changing how I was for 10 years. My energ...
Hi all, hope your all tolerating Tx well , breaks by heart to read of all the pain and misery some are going through: all are HEROs. I just received a Rx toothpaste which is 1.1% sodium fluoride, comes with warning about use in people on low sodium or no sodium diets. 1 gram paste contains 11gm sodium , any...
It's back. I just wrapped up 36 weeks of triple therapy....and 3 weeks later I have a VL of 217,000. Really didn't think this was going to happen to me. Everything went so well throughout tx, I responded fast and it looked like a textbook case that I was headed for SVR. ugh.
Got my results from 12-week-post today and it's no longer Und. I now have a viral load of 1.4 million. I know a few of us have had the same news, lately. (Also, I was only able to complete 23 weeks of tx, and was supposed to go 48 but body shut down.) Sure I'm disappointed as that tx was the most difficult t...
I was all excited to start my tx and found out just got peg and rib it'd be 1300 a month co pay not including victrelis. Thats over half of what I make and I'm a single mother. How the heck do people afford this? I thought i had good insurance too! I can't do it now because there is no way I can afford that....
Hi all. I wanted to post a message to let you know that i have decided to step down from the forum. Over the past couple of years there have been many changes in my life such as a new relationship, moving home, and now twin grandchildren due in the Spring. These things (and some ongoing health issues) m...
Hi Everyone,Mallani (Malcolm) has kindly agreed to join our Team and we'd like to say a big thanks to him for all the support and valuable info that he takes the time to share with us all From all the Team xx
The Hemoglobin level that they use here for normal range is 139 to 179. Does anyone know at what reading is it necessary for a blood transfussion. If it drops to 80, 60 etc. no need for other information about reduceing pill, eprex etc just if anybody has needed a transfussion and what was their level a...
Hi - I accidentally stored my Ribasphere tablets in the refrigerator for a week. The box says it should be between 59-86 F for "excursions", and normally at 77 F. No pharmacist at the mail order pharmacy today. Anyone to assuage my fear until tomorrow? Thanks!
Good morning! New here, hoping someone has an experience with this Redipen similar to mine, I can't get any info from the manufacturer. A little background, diagnosed in 1995 with Hep C, Genotype 1A. Back then, they tried straight Interferon... I believe I was the first case this particular docto...
Well, I finished my 48 weeks on August 10, and on October 22 was still UND!! From 69 million plus to in just 48 weeks! I feel pretty confident that I'll stay this way, and so does my doctor. I think my vision is somewhat worse than before treatment, but I'm older too, of course. I have the joint and muscle pa...
Just a quick one. I've been asked a few times about whether mutations will show up in our VL tests. The answer is 'YES' , for all Roche PCR tests. The 'target' used is a stable strand of RNA transcripted to DNA , present in all genotypes and in all viral mutations.
Hi, I got the labs for the first two weeks today. I noticed that bilirubin has been rising. Pre tx 10, after first shot 23, after second shot 31. Does anyone know if this is normal? And what does this indicate? ALT and AST had gone down. CC
FRIDAY, NOVEMBER 2, 2012 FDA Hepatitis Update - Victrelis (boceprevir) labeling updateOn November 2, 2012, the Victrelis (boceprevir) package insert and Medication Guide was updated to include postmarketing information about serious acute hypersensitivity reactions observed during bo...
Since starting triple tx in May my tongue hurts!
And I am on shot 25 of 48!
Any suggestions? I use sensitive toothpaste
And doc prescribe mouth wash too. Is this staying till I stop tx?
I have slept all day after my 25th shot too. To think some stop at 24
Oh I just need to focus and be thankful for any chan...
This may be a silly question but...I received all my meds (triple therapy) and was wondering if I can put the Incivek and Ribaviran tablets in the same pill box container? This is my first time on the treatment and am a little overwhelmed with it all. I take alot of other meds so trying to get oranized is tu...
I wasnt sure where to put this so I started new topic. I went 8 weeks into triple tx and got off because of severe side fx. I went from.12 mill to und. At 8 weeks, when I got 30 post labs I was all the way up to 17 mill v.l. Anyways the abdominal pain in liver area is intense and constant. Dr says its just stretchin...
My stomach is hurting and having nausea.
I haven't had these symptoms in 24 weeks on tx.
Stomach bothering me and feeling extra tired.
Any one had this happen after months on medicine?
I have to go 48 weeks and small rashes on stomach too.
JoAnne
still on one shot per week and 4 rib even though weight 240. Hemo is at 84 and doctor said not to start Victnelis until Hemo is at at least 90... normal range 139-189. Waiting for approval of injections of Eprex 2 per week on my own doing drops for Veggie's and B12. Sent me also for ECG as type 2 diabetic a...
Hi all, I feel like a deserter for not doing the Tx with all of you , but sometimes ya got to go with your gut, and the labs, too. I noticed some areas in my left palm that look callous. And also a small area on underside of finger. Well, it appears it may be Dupuytren's disease which can cause contracture of fi...
I've been M.I.A. from these boards for a few months now but wanted to pop back in and check on you guys. Also wanted to share my good news, Doc gave me the good news that i'm still undetectable and all liver fuctions are in normal range. I got my labs pulled last thursday and its been a rough week worrying abo...
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