These two workbooks are designed for patients to keep on hand throughout their treatment course with triple therapy--pegylated interferon, ribavirin and one of the two new drugs: boceprevir or telaprevir. You can download either one in PDF format from this link. http://www.hepatitis.va.gov/...
Hi Gang, I am really having a hard time telling others what is going on with me. I am afraid I will scare people away by telling the truth. I dont want people to think I do not trust them as friends. I would almost rather people think I have liver cancer which would explain the chemo therapy. Since my job re...
Anyone on forum have DET at 4 wk on Invicek??
I was UND 2 wk, DET 4, UND 12, 24.
According to the Invicek company website
I should have been taken off all meds at 4 wk!
Since doctors are still learning about these
Treatments, I think it's important to be aware
And ask your doc tor questions.
I am previ...
so i started tx today. interferon, ribavirin plus my first dose of incivek....went to the gym and worked out, feel a little "coldy", but so far so good. let's hope it stays that way!
As you can see from the subject line, I am und. If I werent so flippin' tired, I would actually jump up and down. I am in the middle of week 9 so that means only 3 more to go on the nasty incivek. My other blood work came back with low platelets, wbc, hcb and I am slightly anemic. They are reducing my interferon t...
Are we the Liver in Room 111, Gastric Bypass in 112 or Gallbladder in 114. With all the physical distress the Rx puts us thorough; we are more than our HepC. I too yearn to learn more about C. Yet Im more and more convinced that where I need to be is seeking my spiritual side. When I worked at the big Haze, we ta...
I'm into week 6 now and thought I'd share a few things that have helped me. Sort of a "favorite things" list for side effects. Would love to read other people's favorites too. 1) Rash and Itching: Aveeno oatmeal bath, benadryl topical cream (extra strength), claritin oral (for those...
i have a question, im new to the forum and i was wondering if gastric problems are common with hepc? also is it normal to have pain in the upper right stomach with hepc?
TSP aims to improve the well-being of people affected by viral hepatitis. Trained peer counselors will provide emotional support, health information, and relevant referrals, working with callers to set health-related goals related to all stages of living with hepatitis C -- from risk assessme...
you know, standart treatment period is 24weeks at triple therapy if you succeed rapid response.. i got UND at 23rd day, my last test was at 12th week and it was UND also.. now i am at week 17... but at last meeting my doctor told me that he wanted to extend tx 8 more weeks to guarantee SVR because i tolorate tx...
Started triple therapy treatment Sept 2011 (Peg, Riba and Incivik). At all key labs (12, 24, 36, 48 week) undetectable. Then at week 60 came the smack in the face... Viral Load 10,300,000. Made for a depressing Thanksgiving. Thought we had it beat. Doc's gonna try to get me into another trial study...
Anyone one else seeing this? Side effect of Rx? BP 178/65 Pulse 40. Seems that this week instead of getting a little dizzy when I stand up, now it can occur while sitting. All labs seem to be stable. I've been accused of being thickheaded, thick-skinned but never lightheaded (LOL). (Well, for full-di...
On October 5th I finished up a 12 week clinical trial with Pegasys, Ribavirin, and GS 7977 from Gilead. Since they won't release the results to us until all the participants are done, I had the VA run new viral load tests for me. Took 2 weeks to get the results back, but both test came back "target u...
I'm brand new to any chat discussions and support I'm not new to hep C I may have been infected 25 + yrs I'm Geno type 1 I have cirrhosis stage 3 I can see there are some people here that sound the same as me 2008 tired ribv and intf cut off in 12 weeks non responder Aug 2010 started a trial / study DEB025 th...
I emailed my Rn this morning and received a reply. My ?? was that since my vl at week 4 was 98 and not und, am I still in the running for a 24 course of treatment. Instead of finishing in April, I will now finish in Sept. Bummed out = yes. Devastated = no. But bummed out does = yes.
Well got the call to stop the 3x treatment and waiting to see if can still do eprex to bring up hemoglobine. Seending me for blood work Monday and then to an Nephrologist seems they and I guess I should be worried about kidney failure. Creat jumped to 217. Could be my own fault since started Vict last Fr...
Hello everyone, Is it normal not to have any major side effects while on the following meds (incivek, riba and interferon)? The only side effects that I had was some achyness in my legs, and I felt like I had a really bad head cold. That was on the same day that I took my shot. I am just hoping that I am taking...
I woke up this morning with a stuffy nose and am concerned that I may be getting a cold. Since my last blood draw I have tried to be very careful because my WBC is low (3.3). Can I take any OTC meds in case what I THINK maybe turning into a cold actually does?
I am on week 28 of 48, I am now sleeping a lot
Like I did in the
Beginning w Invicek, Is this the norm?
I can only do so much and declining
Get together a lot. Watching TV and reading w
Some housework seems to
Be
What I can do.....is this the
Norm
This morning I went to see a doctor for my never ending cough. She told me that Tylenol that I am taking for pain management is very bad because acetaminophens are processed by liver. She said I should take Aleve (naproxen) because Aleve is processed by kidneys. The doctor who told me this was not my hep...
Just had my first V/L results back. On starting triple therapy my V/L was to the power of 6 (6 million). My first V/L result was 11. My nurse said this is not great news, as she was hoping it would come back as UND, however she did say it was a significant reduction. I have only been on the proper ribavarin dos...
It has been 4 weeks now. I had my first blood draw Tuesday. And will find out results next week. I have had a few side effects but nothing i couldn't handle. Knock on wood. Mostly have just gone about my daily routine. I am thinking I will start exercising again. As my joint pain has subsided. I so...
Tuesday, November 27, 2012Sexual transmission of HCV among monogamous heterosexual couples: The HCV partners study. The efficiency of hepatitis C virus (HCV) transmission by sexual activity remains controversial. We conducted a cross-sectional study of HCV-positive persons and their part...
Well, it had to happen! After 37 weeks of not being even 5 minutes late for a dose, I forgot my 3pm Victrelis. I have 2 alarms for the 7am and 11pm, but have got a bit casual about the 3pm. I discovered the error at 6pm and had sheer panic and disbelief! After gulping them down, I had to work out how to get back on...
Well seen doctor and as of 2:00 p.m. I have started the Vict. 12 per day. Hemo was at 100 and he hopes with eprex can keep me at least around 85, still low but still only treatment mood left. only doing 3 rib per day and shot. Doctor figures the Vict will hammer my hemo, but what I have been reading the hemo i...
#18 6 To Go. I have been in a study, where I have been negative since week 1.Heres a salute to all that are doing this treatment for extended amounts of time.I have been a angry untouchable person. I find the only relief is to hide myself away. It also provides grand relief for my family !! LOL
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
