Hey guys, it's been a week without meds. Some weird symptoms I've noticed. Friday, when my shot was usually due, I began having some residual aches and pains like after the shot? First few days, I felt really uncomfortable as in the beginning of my treatment, I've had a feeling that I'm missing somethi...
Just wanted to share with you guys how the recovery is going ten weeks after. Believe it or not, I still have occasional Incivek related butt issues. I fear I'll have to learn to live with it. Nothing as intense as during treatment, but not fully back to normal. But the tiredness, confusion, out-of-bre...
Ben went to his gastro yesterday, he so so tired of getting poked all the time. But, good news! He only has to do the 28 week treatment, so we are almost halfway done! It seems the meds are getting to him more now. He is so tired all the time, and coughing a lot.... but, it could be worse. He is off this wee...
Hey guys, this is almost it for me. Even though I felt pretty good throughout my treatment( except the Incivek months) I do look pale and sick. People comment on my appearance daily, it is noticeable. I try to cover up with with bronzers daily. Lost 80% of my hair, the most upsetting part. Lost weight, fr...
Hi people, my name is Ivan. I am 60yrs old and contracted hep c in 1985 from prison tattoo's. I have never had any treatment, as my vius is type 1 and i had almost no immune system. About 4 years ago my blood tests started showing up neg and special tests had to be done to find the virus. My most recent tests re...
I am in 17th week of tx, felt great after Incivek finished. Now I am experiencing a great deal of anxiety, that is becoming almost unbearable. Just wondering if anyone else has experienced this. I know depression is common with the tx, I am irritable,short tempered, and emotional just to name a few. Is...
Hi, I have been off all meds for a week now. I do feel somewhat better. The fog is lifting and my energy levels are returning slowly. I have not yet had post tx bloods done due to appointment mess ups. Will have them done this week and by next Friday I hope to have results. Thank you to all here for your suppor...
I'm 9 weeks post now, and in the past few days, less hair has been falling out. 3 days post tx, my hair started falling out like crazy, much worse than while I was on tx. I thought for certain I'd go completely bald. I think I'm actually starting to grow a little hair back now. I think.
I went thru pegasys/ribavarin treatment few years ago and got cleaned after having hcv for all my life (got it from a blood transfusion after my birth). Unfortunately due to labor complication with my son, he got it from me too. I have been monitoring his liver thru blood tests annually and they were pr...
Hi Peeps, I have been asked to take part in a clinical trial of a "New" Drug GS7977 with Riba. It will be over 24 weeks and is aimed at Type 3 non responders, like yours truly. The trouble is it is blind, You will be split into 4 groups, 3 will have the drugs, one will have Placebo's. I am unsure abou...
God bless all of you suffering with this disease, on tx , off tx , caregivers. After alot of thought Ive decided to delay treatment. Im not as strong or as brave as all of you , and I darn well know I would stop. So rather than ruin my chances for cure in the future by developing mutant strains, Ive decided to...
I have appoint with VA Doctor Oct 4, 2012 . I can barely walk or talk, don't drive so. Oh yea, I don't drink or smoke. The only thing I know is I am Genotype 1a. OK saw Doctor on Oct 4, he said my ALT scores in blood tests had come down far enough that I did not need the treatment right now, and he would test my blood...
Good morning eveeryone today i start week 12. YEAH. Still have good days and bad days. Red and white blood cells are a little low making me tired all the time. Dr. said might have to start with shots to get blood cell count up. I don't know if I want to. Drugs have bad side effects. I am thinking of doing more...
hello all.. i am new to this. i started my tx on friday 10/5, and while i've read about the treatment and all its develish side effects, nothing can compare to actually going through this. i'm looking for some positive feedback here. terrbible neasea, headaches, emotional, and worst of all my butt is o...
previously i was a double null. peg-intron. 2000 & 2003. second treatment almost died. i developed septicemia with excrutiating pain in my perineum. 106 peak fever and sustained 101.0 -103.0 temp. was in dallas med. city 9 days. i was treated for hep c 1b one year ago. six months since i stopped. i...
I don't qualify to post in the Post Treatment section, but with a numbers of members coming up, this is worth a thought. Those who are lucky enough to get the magic 'SVR' news, will rightly feel proud and optimistic about the future. The advice they get about followup will vary, and everyone will have an...
Renee has about 5 weeks left to go on treatment. We've already started having conversations about what it will be like post-treatment. We're looking forward to some of the positive effects: Renee feeling better physically and emotionally, being able to do more things together, resuming our reg...
Hi All Been a while since I last posted something here on the forums. I have since started treatment and just took injection number 4 I wanted to ask if anyone has tips for injection site bruising? My bruising / rashing has lasted some time. Weeks 1 and 3 made a nice red rash... well not so much a rash as jus...
Seasonal flu - why you definitely need to get vaccinated if you have hepatitis CBrand new research by the Health Protection Agency and by Health protection Scotland has shown that people with chronic liver disease are much, much more likely to develop severe complications if they get flu.Full arti...
At risk of being too graphic here, my Insivek fire poop went away when I finished that, but has been replaced with what feels like broken glass! What is up with that? I have serious pain from bleeding hemerroids too! Anyone?
Hi all, I've been doing a lot of research, but a simple read-through of the information that came with the Pegasys and with the Ribavirin was enough proof for me that the doctor may have made a mistake with my Pegasys dose. As I posted before, I was originally prescribed Pegintron, but the pharmacy ma...
One of the newest medications used to treatchronic hepatitis C virus (HCV) infection is Incivek(telaprevir). Incivek is a protease inhibitor, takenwith peginterferon and ribavirin, and used forHCV patients with genotype 1. A common sideeffect of Incivek is anorectal discomfort, includinga...
Ask my PA about taking flu shot during treatment - he said NO because he felt the virus they use could be a problem. Anyone else ask their Dr? Fajah -- Edited by Fajah on Tuesday 2nd of October 2012 06:54:37 PM
My treatment failed...the sad part is that I had no doubt it Ihep c) was gone due to treatment. I have geno type 2, 140,711 viral load when treatment started adn I cleared 5 weeks into treatment..well I was under 615 4 weeks into treatment and so I think one more shot put me "non detectable although...
Sitting down with hubby last night and my trusty alarm signals it's time to take my meds. Hobby's nibbling on a bowl of nuts, so I proceed to gather my colourful assortment of capsules and tabs and place them in my own little bowl and sit back down with my bottle of aqua. He looks at me and cracks up laughin...
My skin is tingling and burning very badly on lower arms
Feels like fire, any suggestions? Triple tx w/ Invicek 7 weeks.
Took third dose Of Invicek 30 minutes ago. No rash just burning
Thanks, JoAnne
Does anyone else have a distinct weekly pattern in their Sx? Since about week 10, I am rubbish on Monday, Tuesday and Wednesday. I improve somewhat on Thurs., Fri., and Sat. I presume this is Inter. related but not sure why ( we are supposed to have a fairly constant blood level). The severity of the Sx a...
Huh O how dumb is this Hope it's not too bad I'm sure i took the incivek too soon This afternoon I Incivek at 4:00 -4:10? i was just looking for my 11-11:30 dose So I mistakenly took it 4 hours early i ran late on my Ribv and took the evening dose about 8 and took the incivek also now about 2hrs i don't fe...
I just finished up my 12 week clinical trial Friday. My last shot was the week before, and my last 7977 and riba were Friday morning. I have no idea yet how my results are, and will probably not find out for a month or so, when all participants finish, but I have to say that this morning I fell the best I hav...
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