still on one shot per week and 4 rib even though weight 240. Hemo is at 84 and doctor said not to start Victnelis until Hemo is at at least 90... normal range 139-189. Waiting for approval of injections of Eprex 2 per week on my own doing drops for Veggie's and B12. Sent me also for ECG as type 2 diabetic a...
Hi all, I feel like a deserter for not doing the Tx with all of you , but sometimes ya got to go with your gut, and the labs, too. I noticed some areas in my left palm that look callous. And also a small area on underside of finger. Well, it appears it may be Dupuytren's disease which can cause contracture of fi...
I've been M.I.A. from these boards for a few months now but wanted to pop back in and check on you guys. Also wanted to share my good news, Doc gave me the good news that i'm still undetectable and all liver fuctions are in normal range. I got my labs pulled last thursday and its been a rough week worrying abo...
"Rita,
NO VIRUS !! So you are on your way to cure. This is called ETR - end of treatment response. Please repeat labs in 3 months."
Wishing all of you guys thd same great news!
start of tx had high grade blah blah cells detected, followed up after six months. Gyno didn't see anything with coloscopy but did follow up pap any way. Rang today wants another follow up in 6 mths as test detected low grade cells. Not concerned as will do follow up and keep track of situation. Ponderin...
I know that many doctors are bad mouthing the herbal treatments for hep c. All that I can do in response is to tell you my experience with the treatment designed by Dr. Zhang. I had hep c for many years without it being diagnosed. The internist that I was seeing kept telling me that all of the pain that I w...
It's been really hard seeing how the side effect sxs are getting for Renee. Because of the Neupogen that she takes mid-week, she's lucky to have one or two good days a week, whereas before Neupogen, she could have 4 or 5. Even the interferon shots are hurting her and she's becoming symptomatic again f...
hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my latest liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how much...
well i confess, after reading round here, bout the virus coming back. (kim im so sorry) i am scared out of my brain waiting for these results. got friends saying, its zero, claim your healing, and all that positive stuff, but i just cant help being worried. waiting is something im hopeless at. jeez. on a...
Either that, or yes, there is life again after treatment. I was the Mad Hatter with my wife, Jen, as the Cheshire cat for last nights party. Happy Halloween! Dave
Hi everyone! Just thought i would get this section going with this. I thought it would be a good idea to have partners/supporters, and patients, to talk of their experiences. Basically, partners/supporters could tell of their experiences of Hep C/Tx and what helped ease the discomfort of it all. Co...
I am honestly almost to the point of wanting to just give up. I found out I had this in July, and mentally ready to get started. Month after month my doctor finds a reason for me to have to wait another month. Right now it is my iron levels. I have been taking iron for a month and they are higher, but not goo...
I am two weeeks done with incivek and starting to feel better. Alan you were right the butt is feeling much better and the irching is starting to go away. it feels goood to able to sleep through the nigt without scratching myself to death. I am not dizzy as i was. I still have a little dizziness but not as bad...
I told my daughter I am sick and have the beginnings of liver cancer and will be on chemo. I wasn't ready to say out loud I have Hep C. I also asked my daughter (who is college age) not to tell anyone.....well she did tell and now my friends and church knows. I was just planning to deal with this quietly, and...
Where did all this ENERGY come from?? And food-- it tastes SO GOOD! lol! The dark clouds of depression have parted, the brain fog is lifting...WOW, I'm remembering who I was when I began this journey. It's amazing how quickly all that energy came back to me. And my mood has improved so much, even j...
Hi everyone, got the news this morning that my husband's 12 week viral load has come back as undetected! Am so pleased for him. We are going away for the weekend to Canberra, so it's just going to be that bit more enjoyable. It feels like a milestone has been passed, even though we've got a way to go. C...
I have been having severe rectal pressure and pain. I drink the water, use medicated wipes, soft fatty diet. And a hydro cortizon insertable ointment My question is does anyone take pain meds. for this? I'm seriously thinking about getting a script of something strong. I can't take it anymore!... Br...
For all my fellow travelers, brothers and sisters, we are all trying to offer each other tips about getting through Hep_C treatment and living with the virus if that becomes the case. To further these endeavors I like to add another tool to your toolbox: Mindlessness !What is Mindlessness? It is a...
Hi everyone, I am new to this forum. I don't know where to start, but I feel like I need to get this off my chest. I have a father who is diagnosed with Hep C, the worst type. He went through almost 1.5 years of treatment and apparently his chances were good of getting rid of it (non detectable after some time)...
Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month. All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300. Generally feel pretty...
My white blood cells were low, (around 1.2) for the last 8 weeks or so, but 12 days ago they were high at 13.8. so we stopped the two neupogen shots each week and raised the pegassus up to 135 from 90. While my count was low my nurse kept telling me to let her know if I get a fever. Her office is closed for the...
I'm 28 was diagnosed at 18. Tried SOC for I think 9 months and my mothers insurance dropped me because I turned 19. My doctors cant find any viral load labs after i started .. So any who.. My viral load is 1.5 mil and log pcr is 6.18. I'm starting as soon as I get my meds and can get into an education clas...
Hi, I'm about to do my last shot on Sunday 10/27/12. I'vae been undetected for some time but just last week I was told I still had the virus but the numbers were to low to quantify. I'm glad I'm coming off the drugs; my doctor feels that it was good that I did it because we'll be able to keep close track and ss...
I just had a draw for my viral load and other stuff done. I hope To report good news Weds.
This is no fun. But from what I've been reading here I'm not alone.
show UND!! I just hope it stays that way, long after treatment has completed. I keep reading about people who've relapsed and it freaks me the f**k out! Trying to be happy about this but everything else in my life is making it difficult to enjoy the good news. And I'm having trouble feeling like eating...
I got my week 12 results yesterday and still showing 40 copies. RN says good result and continue on to week 24. I had been informed here that I needed to be UND at week 12 to continue on but the Merkk fact sheet says otherwise. My levels are below 100 IU/ml so therapy continues. Discontinuation of Dosing B...
Went to see my doc yesterday for the results of 3 month post tx blood test. The virus is back and viral count is over 1 million this time. Doc says viral load will likely come back down as time goes on. It felt like a kick in the teeth. We talked about the new tx that is coming, he thinks it will be 2 years before ...
It started a couple of nights ago. Last night didn't get a lot of sleep and today still feeling pain and irritation in the legs. Can't sit still and don't have the energy to move around. Any help or guidence appreciated. Mark
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