hey all, i am a non responder who finished my first round of treatment over 10 years ago. it didn't "take" and my latest liver biopsy, puts me at high stage 3 - stage 4. i am now waiting to start peg-interferon-telaprevir-ribavirin regimen. i am 53 now, in good shape and wondering how much...
well i confess, after reading round here, bout the virus coming back. (kim im so sorry) i am scared out of my brain waiting for these results. got friends saying, its zero, claim your healing, and all that positive stuff, but i just cant help being worried. waiting is something im hopeless at. jeez. on a...
Either that, or yes, there is life again after treatment. I was the Mad Hatter with my wife, Jen, as the Cheshire cat for last nights party. Happy Halloween! Dave
Hi everyone! Just thought i would get this section going with this. I thought it would be a good idea to have partners/supporters, and patients, to talk of their experiences. Basically, partners/supporters could tell of their experiences of Hep C/Tx and what helped ease the discomfort of it all. Co...
I am honestly almost to the point of wanting to just give up. I found out I had this in July, and mentally ready to get started. Month after month my doctor finds a reason for me to have to wait another month. Right now it is my iron levels. I have been taking iron for a month and they are higher, but not goo...
I am two weeeks done with incivek and starting to feel better. Alan you were right the butt is feeling much better and the irching is starting to go away. it feels goood to able to sleep through the nigt without scratching myself to death. I am not dizzy as i was. I still have a little dizziness but not as bad...
I told my daughter I am sick and have the beginnings of liver cancer and will be on chemo. I wasn't ready to say out loud I have Hep C. I also asked my daughter (who is college age) not to tell anyone.....well she did tell and now my friends and church knows. I was just planning to deal with this quietly, and...
Where did all this ENERGY come from?? And food-- it tastes SO GOOD! lol! The dark clouds of depression have parted, the brain fog is lifting...WOW, I'm remembering who I was when I began this journey. It's amazing how quickly all that energy came back to me. And my mood has improved so much, even j...
Hi everyone, got the news this morning that my husband's 12 week viral load has come back as undetected! Am so pleased for him. We are going away for the weekend to Canberra, so it's just going to be that bit more enjoyable. It feels like a milestone has been passed, even though we've got a way to go. C...
I have been having severe rectal pressure and pain. I drink the water, use medicated wipes, soft fatty diet. And a hydro cortizon insertable ointment My question is does anyone take pain meds. for this? I'm seriously thinking about getting a script of something strong. I can't take it anymore!... Br...
For all my fellow travelers, brothers and sisters, we are all trying to offer each other tips about getting through Hep_C treatment and living with the virus if that becomes the case. To further these endeavors I like to add another tool to your toolbox: Mindlessness !What is Mindlessness? It is a...
Hi everyone, I am new to this forum. I don't know where to start, but I feel like I need to get this off my chest. I have a father who is diagnosed with Hep C, the worst type. He went through almost 1.5 years of treatment and apparently his chances were good of getting rid of it (non detectable after some time)...
Still <43 NOT DETECTED. No declaration of SVR by my doctor, as he uses both 12 and 24 week tests, but don't see him til next month. All other blood work (CBC and Hepatic Function Panel) are normal for the first time in at least 15 years. ALT and AST at 21 and 15, down from 200 and 300. Generally feel pretty...
My white blood cells were low, (around 1.2) for the last 8 weeks or so, but 12 days ago they were high at 13.8. so we stopped the two neupogen shots each week and raised the pegassus up to 135 from 90. While my count was low my nurse kept telling me to let her know if I get a fever. Her office is closed for the...
I'm 28 was diagnosed at 18. Tried SOC for I think 9 months and my mothers insurance dropped me because I turned 19. My doctors cant find any viral load labs after i started .. So any who.. My viral load is 1.5 mil and log pcr is 6.18. I'm starting as soon as I get my meds and can get into an education clas...
Hi, I'm about to do my last shot on Sunday 10/27/12. I'vae been undetected for some time but just last week I was told I still had the virus but the numbers were to low to quantify. I'm glad I'm coming off the drugs; my doctor feels that it was good that I did it because we'll be able to keep close track and ss...
I just had a draw for my viral load and other stuff done. I hope To report good news Weds.
This is no fun. But from what I've been reading here I'm not alone.
show UND!! I just hope it stays that way, long after treatment has completed. I keep reading about people who've relapsed and it freaks me the f**k out! Trying to be happy about this but everything else in my life is making it difficult to enjoy the good news. And I'm having trouble feeling like eating...
I got my week 12 results yesterday and still showing 40 copies. RN says good result and continue on to week 24. I had been informed here that I needed to be UND at week 12 to continue on but the Merkk fact sheet says otherwise. My levels are below 100 IU/ml so therapy continues. Discontinuation of Dosing B...
Went to see my doc yesterday for the results of 3 month post tx blood test. The virus is back and viral count is over 1 million this time. Doc says viral load will likely come back down as time goes on. It felt like a kick in the teeth. We talked about the new tx that is coming, he thinks it will be 2 years before ...
It started a couple of nights ago. Last night didn't get a lot of sleep and today still feeling pain and irritation in the legs. Can't sit still and don't have the energy to move around. Any help or guidence appreciated. Mark
I'm a 27 year old woman who found out I had hep c when I was 18 years old. I was only with one man at the time and no drugs. 1 belly button ring. I also have a uncle with hep c. I did not know this until after I had it and I used his razors when I was younger. I didnt know any better.. I'm not blaming anyone but when you...
So it turns out that I have folliculitis, or an ingrown hair under my right arm. I noticed it on Friday, when moving my arm hurt like heck. I went to the ER to get it checked out, and they prescribed me an antibiotic called bactrim. The bactrim has been making me nauseous to the point that I can't take it a...
Hi folks, just a reminder that using an extra large font size in our posts is not necessary and is not good net etiquette. The same goes for excessive use of capital letters. We all like to get our point across at times but it`s perfectly possible to do that without making it look as though we`re...SHOU...
Two months ago I had episodes of severe R eye pain. I saw my Opthalmologist who checked my eyes, pressures etc and said they all looked normal. I'm worried about optic nerve neuritis which may be an interferon Sx. He said it could be a wierd migraine and to come back. Sure enough, for the last two nights, s...
Phone call from Doc office late yesterday afternoon... 4 week labs < 5 ! so I assume and that's makes it under a 1000 , thus this would be considered UND? My brain is not firing all on all cylinders.. God I hope so because this has been a rocky road.. peace and love MJ May we all slay this beast once a...
Hi everyone! I haven't been on here in a while. I'm 5 weeks post treatment!! And I'm feeling better and better every week... getting a little more energy every day!! It's so amazing to feel good again. Did anyone have any withdrawls after treatment? Or know of anyone that went through that?? Hope every...
Just finished week 12 and I am happier than a witch in a broom factory. I have a question, will there be any withdrawl symtems from finishing incrvik? Ken
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