Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...
Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...
I have been diagnosed with HCV for 5 years, I had treatment 3 years ago and was a non responder to Type 1. I am now looking for work and would like to work for the railroad, the position is a critical safety position and after the interview the medical will be the last step before an offer. Does anyone know...
Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?
Hello Everyone, Hopefully some of you still remember me, and for those of you who do not I am sorry for being a stranger,and for those of you that I have not met yet, a sincere Hello. To begin with I was a regular here 2 plus years ago, was diagnosed with hep c 2b, chose to do tx after much research, mainly on m...
Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...
Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...
Unfortunately my test came back positive. For anyone undergoing tx please don't get discouraged, this is just me! Whatever happens it has given me some more time and there are new drugs coming. It's probably the cirrhosis but there is no way of telling. I'm lucky that I feel ok and have my pretx lif...
Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...
Hi guys, I haven't really been around this forum very much, but you may recall that I embarked on the treatment journey in February 2009. Genotype 1a, so 48 weeks of fun on the drugs. I seemed to respond fairly well to treatment right from the start. My viral load dropped from astronomically high before...
hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...
Hi everyone, Just checking in. I've got my 3 month results tomorrow morning and I am very nervous about it - I can't sleep and keep thinking 'what if'. This is silly really as there is nothing I can do if they are positive! It's just the waiting. On a lighter note I now walk into college 3 days a week (3.5 m...
I wanted to update you all...I was in the process of getting started on treatment when I had a real bad acute attack, at about 9 weeks post infection. Nausea, vomiting, slight jaundice, yada yada yada. My ALT went to 1900 and my AST went to 1300, yowzers!!! So my doc said to hold off cause this could be a si...
Hello all, Please answer this question as I have been worried and have been told a few different things on different forums. My question is in regards to contracting Hep C from the following exposure. I was at the gas station pumping gas after pumping I used hand sanitizer on my hands (As I always do) and...
Just got back my 1 yr post treatment viral load and I am still undetectable. Extremely happy!!! For all that are in the midst of treatment...keep up the fight if you can...It can and will be worth it!!! Thanks to everyone KAB
Sho-saiko-to (H0-9) is currently undergoing a phase II clinical trial in the U.S. specifically for hepatitis C. This trial is under the Investigative New Drug (IND) category from the FDA, is being conducted at both Memorial Sloan-Kettering Cancer Center in New York City and the Liver Center at the...
Hi Everyone. I'm new here. I completed my pegintron treatment three years ago. I couldn't continue after 2.5 months of the regimen because my thyroid function was destroyed. I no longer have the Hep C. But I have no thyroid and huge psoriasis plaques have developed. I'm a bit pissed because no one seem...
Wow! Ya know, one of the best things about blogging (for me) is that it's a bit like keeping a diary! As with a diary, when you need a little inspiration, you can look back over some of your old stuff and very often you can sometimes amaze yourself. And that has just happened to me. Like many people, a new yea...
Has anyone had a weird sensation of dead and painful hands after tx? I can't really straighten them and they feel as if I've been sitting on them for hours. My doc says it's because of the drugs but my nurse says no. I want to get it sorted asap as I am finding it difficult to write and type. Hope you are al...
I took old Jackson my 12 year old yellow lab to the Vet today. His liver is inflammed and she told me he has Hep via ultra sound. As we all know dogs don't get HCV. She said it was probably age related. Anyway I'm sure you can relate to the look on my face when she told me.
Hi Folks, For what seems like forever, I have been saying Once Im better, Ill be able to! What? Get back to normal? Carry on like nothing ever happened? Put it all behind me? Well, the first two of those (get back to normal & carry on like nothing ever happened!!!) will never happen. Its not that Ive le...
One year on, A Strange New World... (Hepatitis C / Liver Transplant (Hep C) HCV Blog) Monday, 27 December 2010 On this run up to the New Year and with Christmas just behind us, as with many people, it has prompted me to sit back and take stock of the year and to cast my mind back over the highs' and lows' of 201...
Hi Everybody i have been pretty quiet, just getting along the best i can. I spent christmas in Scarborough, house sitting my daughters apartment only minutes from the beach ...yum swimming... Great news ... i went to the hospital pharmacy just before christmas and as it turns out this is my last box as...
Celebrating all Those Who Reach SVRSomehow it came, we dont know quite when, Chances are from a stranger; perhaps from a friend. Often its hard to know who was the giver, Receiver, we know, is always the liver. Do the tests; get reports; slowly you learn Interferon and riba are cause for concern....
Hi. all my name is mehmood and i am resident of pakistan i have hcv positive since 1999 and hyperthyroidism since1998 after have both diseases i was hopeless and stopped taking any treatment now in 2010 i have contacted to the doctor gestroentralogist for interferon treatment but he refused and said...
Hi. all my name is mehmood and i am resident of pakistan i have hcv positive since 1999 and hyperthyroidism since1998 after have both diseases i was hopeless and stopped taking any treatment now in 2010 i have contacted to the doctor gestroentralogist for interferon treatment but he refused and said...
Went to clinic today, got to finally see the top guy, hooray!. Finally feel as though I am getting somewhere this afternoon, in a good mood now . I was told that I had genotype 2 but I don't, its 3a so basically the same, still only the 6 month treatment. Biopsy results were in, not too bad just band 1 scar...
Hi all got p***ed off being unable to find reply so un subscribed now calmed down so am resucribing. Finding things hard at moment .never mind move up and move on all the best eddie xx
I'm now 5 weeks post-tx, and generally feeling much better. I had my appointment with an eye doctor yesterday to find out more about the damage to my eyes almost certainly caused by the interferon. The doctor was very thorough and found the cause of the problem, which wasn't detected by the previous do...
It worked :) PCR <12 and liver function is really good. I think I'm in shock. I thought it had come back because before tx I had dry patches on hands and feet where the skin peeled off. During tx this stopped but started again after finishing tx. I want to thank all of you here for your support. With...
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