Hello to all, as you may have seen - over the coming months, I have been just too busy to log in much. After starting the forum with Greenqueen(Steff) and Minerva(Heather), my time has just gotten too busy to allow me to attend to the Forum on a regular basis. The Forum ownership will now be passing over to...
just checking in..not feeling good at all at the moment.. my liver really hurts, have headaches and sore muscles all day and havent started treatment yet!...got my 1st hiep c appointment next week should know then what is going to happen treatment wise..really down right now how come i feel like crap...
Greg and I made, and continue to make, every effort to be informed about this strange, strange circumstance And it's good to know what is going on But it isn't It's really very frightening to know what is going on inside him A war between gut feeling and intellect My gut feeling is that what he's doing is w...
im 7 yrs informed of my hepc it seems to not matter to the drs. they discount my viral load 50million , im sure with the imune system this low. i should be taken seriously, in dec 21 2010 i was addmitted in the hospital with strep pnuemoina . i spent over a year asking for a strep test to 4 different drs. this ho...
Dear Moderator - can this be deleted? I can't find a way to do it ... sorry -- Edited by Catie on Tuesday 8th of February 2011 09:31:28 PM-- Edited by Catie on Tuesday 8th of February 2011 09:32:02 PM-- Edited by Catie on Tuesday 8th of February 2011 09:32:50 PM
Hi all, I am really proud of what you are doing and how well you are coping,however i need to say that 12 days clean off chemicals after a life time of abuse and i think i am going nuts not really sleeping at moment so i suggest you disregard what i say (or have said) in future correspondence because...
I was led to believe my interferon treatment was going to last every bit 0f 52 weeks. (i'm g1) On max dose per body weight. My wife looked at my blood draw schedule and came to the conclusion that its 48 weeks, which makes 1 more week of this nightmare instead of 5. My doctors office is proving to be over wor...
Greg is pretty scared about starting his interferon this evening ... Im scared for him, I love nim, Im proud of him, Im here for him Unexpectedly and wonderfully the ribavirin has had little to no effect that he is aware of - a slight breathlessness is all hes mentioned He told his top boss what his treatm...
For reasons that I won't go into here, I informed my department head exactly what I will be treated for. Why would I do this?. It became clear to me during our conversations over the past few weeks that she had no idea of the side effects I might be facing while on treatment. My main concern was the mood swi...
I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...
Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...
Well... It just aint been happening for me at the moment folks, which is damn frustrating!If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week.As I said on my vid, I was due to go in on Tuesday - Fant...
Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...
Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...
I have been diagnosed with HCV for 5 years, I had treatment 3 years ago and was a non responder to Type 1. I am now looking for work and would like to work for the railroad, the position is a critical safety position and after the interview the medical will be the last step before an offer. Does anyone know...
Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?
Hello Everyone, Hopefully some of you still remember me, and for those of you who do not I am sorry for being a stranger,and for those of you that I have not met yet, a sincere Hello. To begin with I was a regular here 2 plus years ago, was diagnosed with hep c 2b, chose to do tx after much research, mainly on m...
Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...
Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...
Unfortunately my test came back positive. For anyone undergoing tx please don't get discouraged, this is just me! Whatever happens it has given me some more time and there are new drugs coming. It's probably the cirrhosis but there is no way of telling. I'm lucky that I feel ok and have my pretx lif...
Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...
Hi guys, I haven't really been around this forum very much, but you may recall that I embarked on the treatment journey in February 2009. Genotype 1a, so 48 weeks of fun on the drugs. I seemed to respond fairly well to treatment right from the start. My viral load dropped from astronomically high before...
hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...
Hi everyone, Just checking in. I've got my 3 month results tomorrow morning and I am very nervous about it - I can't sleep and keep thinking 'what if'. This is silly really as there is nothing I can do if they are positive! It's just the waiting. On a lighter note I now walk into college 3 days a week (3.5 m...
I wanted to update you all...I was in the process of getting started on treatment when I had a real bad acute attack, at about 9 weeks post infection. Nausea, vomiting, slight jaundice, yada yada yada. My ALT went to 1900 and my AST went to 1300, yowzers!!! So my doc said to hold off cause this could be a si...
Hello all, Please answer this question as I have been worried and have been told a few different things on different forums. My question is in regards to contracting Hep C from the following exposure. I was at the gas station pumping gas after pumping I used hand sanitizer on my hands (As I always do) and...
Just got back my 1 yr post treatment viral load and I am still undetectable. Extremely happy!!! For all that are in the midst of treatment...keep up the fight if you can...It can and will be worth it!!! Thanks to everyone KAB
Sho-saiko-to (H0-9) is currently undergoing a phase II clinical trial in the U.S. specifically for hepatitis C. This trial is under the Investigative New Drug (IND) category from the FDA, is being conducted at both Memorial Sloan-Kettering Cancer Center in New York City and the Liver Center at the...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
