I thought it might be a good idea to open a thread for the members to give a summary of 2016 and what happened during this past year now that we approach the end of it. Since I started this, I will go first. Feb 9th, start of 12 weeks on Harvoni with starting numbers of ALT 187, AST 114, VL 2.3 MMay 2nd, End of...
Please help us spread the word. The American Liver Foundation has guaranteed race entries to the NYC Half Marathon (March 19th). The fundraising commitment is low and achievable. Committing to running a half marathon while supporting a great cause is a great way to start the year. Register for...
Hello Everyone, I am 61 years old, male. I have had genotype 1 since the 1970s. I was diagnosed non-A non-B in 1981. In 2003 I took the 48 week Pegasys/ribavirin treatment. I did not respond. In 2006 I did a brutal "experimental" treatment which added B12 mega-doses to the Pegasys regimen. I lasted 12 w...
Just a non-HCV "general interest" article I came across, regarding a small, rare, but nasty disease outbreak in Wisconsin area, mostly in the average 77 year old age bracket (earlier this year). But serious outcomes for a high percentage of infected. Probably 63 cases. Possibly a 29% death rate. T...
I am a 66 year old woman wirh HCV for at least 30 years. I have cirrhosis and my genotype is 3b. My doctor has ordered the Baseline NS5A genotype 3 resistance blood test which I will have done next week. If I am resistant to treatment with Epclusa only, she will add Ribaviron. I do not have any supportive fri...
Hello all, I am fairly young but reaching the end of my fertile years. I am about to start Harvoni for 8 weeks. I am a little nervous because although the dr said there would be no problems with getting pregnant even right after treatment, I would like to hear some stories of people who have gotten pregnan...
Hi, my name's Chris, short for Christine. I was diagnosed in 2000 with Hep C bc I kept collapsing at work. I was told I had the flu but after collapsing a 3rd time, I demanded blood work was done until they found out what was wrong with me. I've done 4 different treatments which all brought my counts down but...
hi all, after 5 months they finally gave me my results from bloods taken in October 2016 saw consultant today and he has advised I wait It out for epclusa, likely to be available to me within 6 months and will give me good chance of beating the bugger. my liver score is good with 6.9 but I'm hoping you gurus c...
I am coming down with a doozy of a cold..babysat my granddaughter and now we both have the runny nose, harsh cough etc. Does anyone know if one can take an antihistamine (Benadryl) along with Harvoni? It is the weekend, and doctors not available except for emergencies..doing the saline sprays, ga...
More tidbits, starting to trickle out, about the new ALT levels, "Liver Tests" and other destined changes to guidelines: Medscape Medical NewsLiver Test Guidelines Updated by ACGVeronica Hackethal, MDJanuary 12, 2017The American College of Gastroenterology (ACG) has released updated gu...
4 years, 1 month, 30 days since I ENDED my hellish ride and quest to kill the Dragon and thus far it's still down for the count! :D (Nov 17, 2012) Just checking in with you all! I gained a ton of weight lol and now have Fibro (ugh) but! Lindsay and I FINALLY got married; when we picked our wedding date it then oc...
Hi all, Thought I'd drop in to say hi... Just got my one-year SVR (Woot!) and things are going pretty well. Riba symptoms are gone and, overall, I'm feeling pretty darn good Kind of a bummer that brain fog and aches and pains can't be blamed on it any more though--now it's strictly old age lol. Starte...
Just found an article and warning about some fake Harvoni dispensed at a Japanese pharmacy. This is something everyone should be conscious of, especially those dealing with generics. Buyer beware. We'll have to follow this. Article here: FAKE
Some continuing good news regarding Zepatier. "Zepatier treatment for 12 weeks, with or without ribavirin, was highly effective for induction of sustained virologic response in patients infected with hepatitis C genotypes 1, 4 or 6, who failed prior peg-interferon and ribavirin treatments...
Hello all i am approx 20 weeks post treatment. at my 12 week visit, I was RCV negative; the news in itself was miracle-like. unfortunately, I have never felt as unhealthy as I do now. apart from general fatigue, lack of appetite, arthralgia & interrupted sleep, I have developed an autoimmune cond...
Hi Everyone, Hi All, firstly just want to say that i am so grateful for all the support, guidance, knowledge and comfort you so generously showered me with during this journey. i feel guilty that I havent continued to return all you have given me to others. I guess, its just part of my emotional recovery...
Hello people, I had a bit of a palava with bloods and results, first my results weren't in by my appointment, then they lost them in transit, took them again and had to get them by voicemail as I was away on my holiday. Anyway, a long story long, I'm cured...... I really thought I'd failed as I had some pains...
I am on day 32 of my Harvoni treatment, gave blood day 22, and on July 1st, I talked with my doctor. My start of treatment VL of 1088513, has been reduced to a VL of 1.18 in three weeks. My doctor was not happy and did not present much hope that my Harvoni treatment was going to work for me. He told me that I...
Merry Christmas To Everyone! This is my first time actually posting on this forum, although I have been checking it out sometimes. I am a 41 year old woman who was first diagnosed approximately 8 years ago but I had no symptoms and no idea. Had surgery to fix a broken nose and woke up to "Hello ther...
Hello my old friends - I am still negative after Harvoni. My alt and ast have been rising a little, but at still within range (alt 51 ast 35) . Bilirubin normal. What is the most telling test for the liver? I forget...... been a while. I hope everyone is fine
Well another year gone by and still going strong.... damn it took this long to get back after that 48 week ride , my girls are13 know and former spouce is still former spouce... still living on the farm and enjoying life.... hope all are doing good and living a good life Hep C free... on a sadder note a form...
Bugger I missed a dose last night. I have a spreadsheet with everyday marked on it and I tick it off when I have the pill in my mouth. Just plain forgot last night. That was 14 hours ago. I will not take one to catch up as I've read that two is considered an overdose. I should be ok? I'm on week 16 seeing speciali...
hi, I am a new member, I was diagnosed in 92 and am a 2b. There is so much to tell you all. But I'll start with: I am recently retired,widowed, and am finally in a happy place with my life. I live in Wisconsin. Yahhhh, you would think snow here for Christmas, Not the case. . Maybe next year. I really look for...
Hi all, i just recieved an email with my eot+4 results which came back UNDETECTED must admit i was scared to open it and wallowed in aphrehension for a wee while... great result although i got my liver panel back in the week which gave me a good indication on todays news as alt and ast had dropped a few more n...
1.HealioGUIDELINESNew ACG guideline on liver chemistries lowers normal ALT levelKwo PY.Am J Gastroenterol.2016;doi:10.1038/ajg.2016.517.December 21, 2016The American College of Gastroenterology has published the first new guideline in over 10 years on the evaluation of abnorm...
Greetings friends! Somedays I have a handle on Epclusa's sides, some days it has a handle on me. Just how it is. But I'm coming down to the last bottle. I'll pop it open next week, so naturally I'm wondering how long it takes for my body to get rid of the stuff? Assuming the sides (fatigue, muscle and joi...
So, it's the end of week 5 for the love of my life and most likely the end of TX as well. I can only imagine her mindset right now as I feel completely hopeless and distraught in not having done a better job helping her through this! She just doesn't have it in her to deal with the side effects. Her doctor downp...
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