Two fulls jars of Ledihep, known in this country as HARVONI plus another jar minus the ten I took before I realized I was having an allergic reaction. $800. Costs $64,000 in this country. My gastro calls this the closest thing to magic medicine has ever come up with.
I have been advised that I can sue my Doctors as they have had so many chances to diagnose me ( especially as I have constantly asked if my Liver was ok ) for the past 25 years every time I took ill or prescribed meds....I don't really know what to do but solicitors say I have a case. I guess I feel guilty as I ha...
,,, and at the same time l kind of feel like slapping any so called clinician who would while, no doubt be overtly infected with dickeydoo disease, but regardless of his disadvantage, there seems to me to be little excuse for such a statement; "The question of whether and when to treat patients with hep...
Hello everyone! I hope you're all doing fine and I wish you courage and strength in battling the disease. I am really sorry to burden you with my worries, but the message is going to be long, I need to put it into writing because I am driving myself mad: I am a girl born in 1992 (24 yo). I have no history of dru...
FDA NEWSFDA grants 510(k) clearance to new ultrasound modes for liver, breast imagingNovember 22, 2016SuperSonic Imagine announced the FDA granted 510(k) clearance to add additional imaging probes - for liver disease and breast lesions - for use with its Aixplorer platform.Aixplorer (Super...
... I got a call. I thanked them very much and went on about my business. I got to thinking it had been some time since I bought her something new to wear. (That of course does not count the endless $$$ spent on cruise attire.) That would have to be another post entirely. No, in this case something special th...
Hi! It's been about 4 years since I checked in! I'm still doing good. Considered cured. I have cirrhosis from my he can my thyroid is thrashed from interferon but I'm glad I cleared virus. I get a ultrasound every 6 months, last month they found lesions on my left kidney. I have a cat Svan scheduled. Has an...
I,ve been on savadi and Daklinza for 2almost 3 wks at first it was really bad got on the forum and some great people recommended I drink more water which Im doing seems like it has helped but I,m starting to wake up in the middle of the night with the most horrible nerve pain in my legs thank god it only last...
... and I am very pleased. I have had a few treatments prior to this, the last was Telapravir which was horrible, finding out it hadn't worked was even worse. Now I have been offered Abbvie Regimen with Ribovirin, a nice Christmas present. Fingers crossed!
Hi friends, I am new here and found a link to this forum through another place. I was diagnosed two days ago and the initial shock was devastating. A physician, at the lab where I had gone for labwork, had called me in to discuss the results. He literally walked in and dumped the news on me. I sad there in sho...
Hello everyone, I was recently diagnosed with Hep C 1 B. The only reason that the doctor found it, was that I had so much pain in my right upper quadrant. I am waiting for the insurance company to approve Zepatier. Can youtell me who is or has taken it, and what side effects you may have or are having? I ha...
I am going to pick up my medicine, viekira pak and ribavirin tomorrow and I am scared to death to start it. I already have severe anxiety and panic attacks and rage issues and I have been anemic for 7 years. My doctor does not want me taking anything with the treatment including my iron pills for the anemia...
Following the recent approval by the US FDA, here is a link to the full prescribing information for Daklinza, to be used with sofosbuvir for the treatment of Gen 3.... http://packageinserts.bms.com/pi/pi_daklinza.pdf
Hello everyone I had hep c 28 years just found out I'm f4 fibroses my labs AST 36 ALT 82 platelet 210 bilirubin normal I feel pretty good no alchol since 1987 work out 5 days a week but I do have anxiety about to start harvoni and reading all the post on side affects makes me think I will have a bad experience an...
My (attached) post made it onto this Facebook site with over 3,000,000 members! Doing my part to spread Hep C awareness. But PLEASE, let's not talk about politics or election results in this thread. Emotions are too high right now.
Hello all, its been a while since I have posted here. Did Tx in 2012 with Victrelis, interferon and riba. Yikes! We called that the "Mind Scrub". To say I was nervous of starting a new treatment is an understatement and wasn't sure I was even going through with it until I popped the first pill in my mouth. I...
Hello Folks, New to this site, however, been reading info You Guys and Gals are full of great ideas and inspiration. Nice to know this is available. Epclusa approval a God send for sure for Cuddy1, I am his Lady. We are in it together. A few questions tho, if you please. He has been experiencin...
I found this organization and was encouraged to find all of the useful information and services offered. I recommend you spend some time to review it. HCV/HIV Project - TAG HCV Fact Sheet - pdf
The moderators of the forum have given me permission to post these videos. They have been produced by GP2U, an Australian online medical practice with experience treating Hep C patients. The first video is a 90 second overview of how to access the Hep C medication, what to expect during treatment an...
Hello everyone, sorry for not posting for a while. So let's catch up! As I am writing this post Angelo is at Mt. Sinai Hospital undergoing a Liver Transplantation. This was the second liver he was offered. The first was from a 43 yrs. old man who died from an Heroine Overdose. Needless to say we rejecte...
Hi I just found I've got type 3 hep c I've been told its one of the hardest to treat can anyone tell me about treatment options and do they work im worried about this
Hi Everyone, Well the day has finally arrived and I have just taken my first tablet of Harvoni washed down with a tub of Yoplait. This Dragon is in for a shock. Will keep you all posted. To all who are fighting this Dragon stay strong and well, and smash this beastie. To all who have been successful congrat...
I had a blood donation yesterday, the nurse who drew my blood wore gloves but while in the process of collecting blood she went off doing other things like packaging test tube boxes and input stuff on her computer. At the end of the blood draw she folded my gauze pad before withdrew the needle, my worry is...
I saw this and couldn't find reference to it here on the forum. Thought I'd post it and if it's a repeat, my apologies. This is a very effective protocol. GILD- POLARIS TRIALS
hi all....I'm 52, had hep B at 18 years old and beat it. Turned my life around for the better and been straight 30 years...good job working for a charity, loving life ...and now this Hep c has suddenly appeared. I was well and healthy 3 months ago and was about to embark plane for a 10 day all inclusive holid...
Hi everyone, can I just whine for a bit?
Most days are good, some not so good. Maybe not all my woes are due to tx, but they are especially burdensome now. I feel just awful and cab barely get off the sofa. I lost a fingernail last night, the whole thing ripped off its bed and it really hurts. Other nails are p...
looking good hepc not dectected ALT 17 ALP 75 T.Billirubin 8 GGT 29 Albumin43 AFP 5 further US scan in few weeks then three month blood test in January 2017
Hi all, I am new here. This is the article I just saw. Hope to share it as a "Hello" Use of generic versions of direct-acting antivirals for hepatitis C resulted in very high cure rates for people who obtained the products through 3 buyers clubs, indicating that the generic products are effective, acco...
Well 18 months since I finished 12 months of triple therapy hell. Had blood done a couple of days back. First time in a year. ALT is 27. Happy. Mental function is pretty poor. Thinking is difficult and I have little patience. But I'm not complaining. Back into cycling pretty full on at high intensit...
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