Well 18 months since I finished 12 months of triple therapy hell. Had blood done a couple of days back. First time in a year. ALT is 27. Happy. Mental function is pretty poor. Thinking is difficult and I have little patience. But I'm not complaining. Back into cycling pretty full on at high intensit...
A bit dated (2012), but this article provides a wealth of current information as well. This is directed at the USA disability programs, SSI and SSA. It's a lengthy guide but a worthwhile read for those considering a disability application. Tig http://hcvadvocate.org/hepatitis/factsheets_pdf...
ooops on that hijack... Thank you for catching me Tig. Im not to savy with chatting. Matter of fact, this is my first time as well as Cuddys in any Chat type situation. We have alot to learn, lol. Cuddy did speak to an attorney, or might I say the attorney spoke at him. Cuddy said he couldnt get a wo...
Although it's a bit embarrasing to post these horrific photos of the ulcers on my face, this condition is not an uncommon complication of HCV. Yet there's not much info on the Internet about it. It's more common to see ulcers like this on the legs, but they can occur anywhere. If you see any "moon craters...
Hi guys I just got back from the fibro scan. The girl said she couldn't read the results but I saw a number coming up on the screen, near the bottom of the machine that changed slightly from 1.25 to about 1.67 ...I presume that was the score, and if so looks to be near similar to the blood test. Which was betwe...
I hope I spelled it right! The first of the good news is that I had my fibroscan, and I am at stage 0. Yay! Next good news: I was approved for treatment and got my first month of Sovaldi/Daklinza. Because of my CIGNA coverage and the copay coupon my pharmacy arranged, here is the grand total of my out-of-poc...
Hi seven days have pasted now but still feeling the side affects. But feels like im coming into land from a hell of a storm.Now got to have a further scan to check liver and bloods in three months.And then fibro scan and further blood test in a years time cant praised my GP and liver nurse enough guess we are...
Hi everyone! Treatment is going really well. I was scared for a bit around day 3; I started getting joint and muscle aches, particularly my back, knees, and thighs. One day 4, I got out of bed and my legs practically collapsed. My back was hurting like a mother, and the pain was traveling up my neck and spa...
I 'm one pill away from done. I went for EOT bloodwork today. ALT - 18 AST - 18 Platelets - low - 103 Lymphocytes - low - 1.3 Monocytes - High - 0.9 It will take a couple of weeks to get the rest of the results. Now I can resume the lymphoma battle. I am winning.....bigly :) I am sure. Results should come in on...
MRI bests ultrasound for early detection of HCC - September 28, 2016Lim SY, et al. JAMA Oncol. 2016:doi:10.1001/jamaoncol.2016.3147.Magnetic resonance imaging - as opposed to ultrasound - offers a significantly greater chance of detecting hepatocellular carcinoma early, according to...
18 months after EOT, I am still UND; this news never gets old! We are all going to get better, feel better, live better. Kindly disregard all the nasty things that I have ever said about Gilead. I now forgive them
Greetings my sister to The North. I want to take a moment to say you are my true idea of someone who cares. Cares for the folks that are setting out on the path we have traveled side by side. To be UND and here to help speaks volumes of the fantastic woman you are. There may here be no such thing, but if there wer...
It takes some Australians (who are now wisely spending a billion dollars for good accessible HCV treatment for their population), to point out, that Canadians "aren't doing it right" - and, those nice wise Australians were being VERY polite about it too, imho, in their assessments and suggestio...
Hi friends, I am waiting for results from my 3 month EOT blood test. I haven't really given it much thought because I feel so good now. I couldn't have done this without the comfort and reassuring posts on this forum especially dealing with RIBA, the rage, the inertia, the sadness - blah state. Happy to...
At the risk of shamelessly plagiarizing from our older and wiser brother-thread "Harvoni," here is an invitation to share any questions, concerns and reports for HCV treatment with AbbVie's "Viekira Pak." As with the "Harvoni" thread, feel free to speak up about your experiences with treatment...
I`m posting this as it`s such an important issue for anyone in England who is currently waiting for treatment with the new DAA medicines. The Hep C Trust is a well respected charity and advocate for HCV, and they are asking for support to fight NHS England`s decision through the courts...The Hepatit...
hi, i am new to the forum and am learning about my condition. i have type 2 hep-c /fibrosis score is high at 0.98 and necroinflammat grade score a-3 severe activity and f4-stage cirrhosis (high?). i haven't been treated before so don't know what all to expect .. on day 8 of sovaldi/ribavirin treatment a...
Hi Everyone,New treatment - 2nd. round: Sofosbuvir, Velpatasvir, GS-9857. 1 pill a day with food. I'm in the Deferred Treatment Substudy. This will be the one for all genotypes that will hit the market later this year or early next year I assume.Its been 10 days and no side effects whatsoever. Vieira...
Hi there Friends, I'm new here - just diagnosed 2 weeks ago while trying to get into a clinical trial for advanced melanoma treatment. Needless to say this new news disqualified me from the trial and has made me look for less than optimal melanoma treatment. But never mind, I have a plan: 1) kick hep c bu...
A rough night is at your door. Please keep us updated and know you are in our thoughts and prayers. JimmyK -- Edited by JimmyK on Wednesday 5th of October 2016 09:09:55 PM
I have a specialist doctor visit scheduled in a few days and I realized that now I have to disclose to every single doctor I go to that I have HCV. This made me curious. Are there any legal ramifications if HCV is not disclosed? It's not even clear when is it appropriate to do so. For instance, while getting...
Hi Everyone, It's with great sadness and disappointment that I must announce the resignation of our friend and moderator Linuxter (Dave). Unfortunate circumstances have arose that have brought him to the decision that leaving is his best option. We're going to miss his "unhinged" moments and gre...
HI Last Year I was diagnosed with Hepatitis C.I had gone through Pegintron+RBV based treatment for 6 months and i was successfully able to clear virus during and at the end of treatment.So I waited for 6 months to see if i have achived SVR or not.Today i got my PCR and that is also negative.I have issue is t...
My doc said yesterday that my cryoglobulinemia is not severe enough to require independent treatment, so there is no reason for me not to start my 12 weeks of Sovaldi/Daklinza. So starting at 9am PST, I am on the road to recovery! Here's my current, trivial, stupid concern. I HATE drinking water unles...
VIRAL LOAD - "LOG" CONVERSIONWhen the lowest limit of detection used is <12 IU/mL = 1.08 log When the lowest limit of detection used is <15 IU/mL = 1.18 log (as described below, 15 to 100 million)This assay has a result range of 15 to 100,000,000 IU/mL (1.18 log to 8.00 log IU/mL) for quantifi...
Hello everyone. I am new to this forum and have many questions. I was approved for the drug and received it in the mail yesterday. Which is how I found this site. My Dr. never spoke to me about how or when to start. I'd like to know about how others began can its possible effects on any upcoming events I ha...
I have had a few PM's about the difficulty in treating cirrhotics. This has been discussed before, but I'll make this a 'Sticky'.Firstly, only 20-30% of HCV patients will develop cirrhosis, and it usually takes 20-40 years. There are some predisposing factors, such as Genotype 3, obesity, diabete...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
