There have been multiple new member registrations recently. I welcome each of you and we look forward to providing support and friendship. I would like to mention that before I activate any new membership, there must be a searchable and deliverable email address listed on your registration. You wi...
Hi everyone, I'm so glad I found this site. I was diagnosed in 2007, in 2013 I had a biopsy that showed F0 damage, only slight inflammation. Since I suffer from Panic Disorder and a drug phobia, I decided to forgo treatment, which at that time was Interferon and ribo. It is ironic that I used to misuse...
As I am a GT3a, I have been doing much reading (in many areas) about many aspects pertaining to the difficult of having and treating GT3's.GT3a "distinctions/idiosyncrasies" if you will. As some better drug treatments are now coming along for us 3's, who may have felt something like a minority or...
Please join me if you can. I just made a donation to the forum. It's sort of a year end gift to one another, a way of tipping my hat to us all. I have so much gratitude for this "place". Nobody else got me through my HepC ordeal better than the generous people here. I suppose it's not the best time to suggest m...
I am seeing TV ads for something called Mavyret (I believe) that promises a cure in 8 weeks, for any strain, and no other drugs required. Quite an improvement over my 2011 treatment consisting of Ribovirin, pegylated intergeron b, and Incivek, the big purple pill that made me want to die. What a differ...
My most recent labs were again perfect in every aspect. My dr said "you are CURED!" and told me no need to go back. She said no need for most tests for SVR proof and I was good to go on anything. Except tattoos and piecrings. She said don't put yourself at risk for getting it again. From what others say,...
Not that in North America we have seen Dacla (a NS5A) and Asunaprevir (a NS3/4A) being used as a double, but in Japan they have made use of this double. Multiple Japanese studies have fairly recently been coming out about the prevalent use of this combo and various notes they are making about it. This st...
Hi everyone, I just finished my 2 year post transplant scans, labs, and doctor visit. All is well . LABS: My labs are boring and have been unremarkable since they stabilized in the months after the transplant. Everything (EVERYTHING) is in range: Creatinine - 1.1 Bilirubin - 1.2 ...
My EOT date was October 18, my 12 week SVR blood draw will be January 2. I would really love to resume taking supplements, especially ALA-ALCAR (acetyl l-carnitine plus alpha lipoic acid acid) for chronic fatigue, and S-adenosyl-L-methionine (SAMe) for joint pain and depression. What did your d...
I read that SVR patients still cannot donate blood? If someone is HCV negative after treatment and SVR, why can't they donate blood? Also, if someone is HCV negative after treatment and SVR, can they still give the virus to others through blood to blood contact? If so, why is this if someone is negati...
ok ive done my 3 months on epclusa .... now i have to wait for my 6 month bloods too see if it worked . my 4 week one came back fine so lets see the long term one ... ok anyways . during the meds i got a horriable itch ... like discussed during my time taking the meds . now i have finished i have found i shake in my han...
Hi im 65 yts old geno 3 , 21000000 VL copd emphasemia 26 pills left to go then finished i wanted to have VL checked At 4weeks to see if tx is working and im not damaging my immune system as i dont need a flu or cold atm breathlessmes is common with phasemia epclusa seems to make me exhausted ,depresion ,consti...
I found this recent article on our favorite topic, HCV. I found it to be a good description of it and the many issues that accompany it. It’s easy to understand and could be a good tool for us to present when asked about the disease. See what you think. I give it a 9 out of 10... Everything You Need to Know: HCV...
My name is Joe, from the great state of New Jersey and I've known I had HepC goin on 40 years now. I was 16 years old, on my bicycle riding with friends when I was struck by a car. (Really bad wreck - almost died - last rights read to me and all) Obviously blood I was given wasn't screened back in 1978 so I was give...
Hi all, i just tried to post this but apparently it didnt work. Im new to this group and extremely scared about going in to get my HCV checked out. Im a 32 year old male whose had hep for approx 14 years and has been a weekend drinker. Im very active (gym 3x - 4x a week, hiking, mtn biking on many other days) I wor...
hi everyone, I have never been a member on any board before so I am unclear on protocol but just wanted to say hello and express my gratitude for being here. i have had Hep C for well over 30years and waited until this summer to treat with HarvonI. Sadly I am in the minorty statistic of those who did not clear...
Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...
From "Contagion Live - Infectious Diseases Today": ARTICLEHepatitis C Treatment Time Could Be Cut in Half in Some Patients: A Proof of Concept StudyNOV 14, 2018 | EINAV KEETA personalized medicine technique may shorten the duration and reduce the cost of treatment for hepatitis C virus infecti...
Hello all This is an invitation for any member or spouse that will be treating or considering treating their HCV with Gilead's "Harvoni" (ledipasvir/sofosbuvir)Post your questions ,concerns and positive reports on this thread if you want to. Speak up about your experiences with your on going tr...
About RAV's - (not very layman-friendly info)Roughly from 2016, so, not very current, so of course, little mention of newer drugs that have just come to the fore or are coming to the fore, such as Glilead's Epclusa/Vosevi, Abb Vie's Maviret, Jansen products and Merck's newer combos - various good co...
Hi Everyone, We so often discuss the impact medications and/or supplements have on our liver health. This searchable website, courtesy of Livertox and the NIH, is very comprehensive and if I may say so myself, a great find and excellent resource for all of us dealing with HCV and the ongoing concerns...
This is a partial list of the payment assistance programs currently available. I will add and edit programs as I find them. Please let me know if you have one you would like listed and it will be included into the master list. Thanks! ABBVIE:http://www.abbviepaf.org/Viekira Pak Payment Assistanc...
HERE ARE FIVE SIGNS THAT YOUR LIVER MAY BE TOXIC AND IS MAKING YOU GAIN WEIGHT:1. BRAIN FOGBrain fog is a general term used to describe suboptimal cognitive function. Symptoms of brain fog often include: inability to concentrate, lack of awareness, memory problems and slow response times.Per the...
The AASLD and IDSA HCV Guidance Panel has released updated guidelines for the treatment of hepatitis C virus infection, according to newly published data in Hepatology. You will note that they continue to recommend the use of 12 weeks of Sovaldi/Peg Interferon/Ribavirin in GT 3's that are able to...
Sorry I haven't touched base for awhile but I am sure I have been and am in a depression. Anyway, got my first call today and after hearing the risk factors of the potential donor I said no. I am not sure but pretty sure most of my decision is based on fear. I have to get over the fear and anxiety of being away fr...
I have no idea at what point this happened but my bloodwork of last week came back virus undetected! My doc says finish up the pills and see you in 2 months for the last labs. I must say, that all in all, the Harvoni ride was pretty smooth. Woohoo!!!!!!!!!!!!
I'm a firm believer that taking milk thistle daily for over 20yrs has helped my liver cope with the Hep c. I'm starting on Harvoni TOMORROW!! Getting on that train. Dr. Andrew Weil suggests that everyone with liver problems should take it ESPECIALLY those us on treatment. Thoughts? Should I co...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
