Hi all, i just tried to post this but apparently it didnt work. Im new to this group and extremely scared about going in to get my HCV checked out. Im a 32 year old male whose had hep for approx 14 years and has been a weekend drinker. Im very active (gym 3x - 4x a week, hiking, mtn biking on many other days) I wor...
hi everyone, I have never been a member on any board before so I am unclear on protocol but just wanted to say hello and express my gratitude for being here. i have had Hep C for well over 30years and waited until this summer to treat with HarvonI. Sadly I am in the minorty statistic of those who did not clear...
Hi all, i have been off Epclusa for 6 weeks and am experiencing some not so nice problems. I have developed bursitis in both shoulders, my arthritis is worse, achy muscles, tiredness and lack of energy and now have alergies i never had before. I have never been bothered with allergies before taking tre...
From "Contagion Live - Infectious Diseases Today": ARTICLEHepatitis C Treatment Time Could Be Cut in Half in Some Patients: A Proof of Concept StudyNOV 14, 2018 | EINAV KEETA personalized medicine technique may shorten the duration and reduce the cost of treatment for hepatitis C virus infecti...
Hello all This is an invitation for any member or spouse that will be treating or considering treating their HCV with Gilead's "Harvoni" (ledipasvir/sofosbuvir)Post your questions ,concerns and positive reports on this thread if you want to. Speak up about your experiences with your on going tr...
About RAV's - (not very layman-friendly info)Roughly from 2016, so, not very current, so of course, little mention of newer drugs that have just come to the fore or are coming to the fore, such as Glilead's Epclusa/Vosevi, Abb Vie's Maviret, Jansen products and Merck's newer combos - various good co...
Hi Everyone, We so often discuss the impact medications and/or supplements have on our liver health. This searchable website, courtesy of Livertox and the NIH, is very comprehensive and if I may say so myself, a great find and excellent resource for all of us dealing with HCV and the ongoing concerns...
This is a partial list of the payment assistance programs currently available. I will add and edit programs as I find them. Please let me know if you have one you would like listed and it will be included into the master list. Thanks! ABBVIE:http://www.abbviepaf.org/Viekira Pak Payment Assistanc...
HERE ARE FIVE SIGNS THAT YOUR LIVER MAY BE TOXIC AND IS MAKING YOU GAIN WEIGHT:1. BRAIN FOGBrain fog is a general term used to describe suboptimal cognitive function. Symptoms of brain fog often include: inability to concentrate, lack of awareness, memory problems and slow response times.Per the...
The AASLD and IDSA HCV Guidance Panel has released updated guidelines for the treatment of hepatitis C virus infection, according to newly published data in Hepatology. You will note that they continue to recommend the use of 12 weeks of Sovaldi/Peg Interferon/Ribavirin in GT 3's that are able to...
Sorry I haven't touched base for awhile but I am sure I have been and am in a depression. Anyway, got my first call today and after hearing the risk factors of the potential donor I said no. I am not sure but pretty sure most of my decision is based on fear. I have to get over the fear and anxiety of being away fr...
I have no idea at what point this happened but my bloodwork of last week came back virus undetected! My doc says finish up the pills and see you in 2 months for the last labs. I must say, that all in all, the Harvoni ride was pretty smooth. Woohoo!!!!!!!!!!!!
I'm a firm believer that taking milk thistle daily for over 20yrs has helped my liver cope with the Hep c. I'm starting on Harvoni TOMORROW!! Getting on that train. Dr. Andrew Weil suggests that everyone with liver problems should take it ESPECIALLY those us on treatment. Thoughts? Should I co...
So, this article/take-home message, about the study (and the study itself) I found interesting - and, oh of course, they just had to study the costs savings! The part that was interesting to me was that group of liver transplant people who were studied and followed between 1998 and 2015, who WERE tole...
Hello. I got diagnosed 12 years ago and am finally getting treatment. On my 3rd week and starting to feel better. I ran across this forum and wanted to join to have some insight from others going through the same thing I am. I am at stage 3, advanced fibrosis and am a genotype 1A or 1B (was 1B when first diagn...
A relatively "new?" NS5A - (formerly called PP1-668), now named Ravidasvir. Well, it's news to me anyway. Out of Egypt (where there are many GT4's to trial it on), but reading other articles about it tonight, it IS being touted as pan, coupled with sof, with some impressive results, and more interest...
Well I will have my 5th anniversary tomorrow. All is going well with the exception of I am losing my hair at an alarming rate, got so desperate I started minoxidil (Rogaine) yesterday...scalp treatment. I have lost ~ 1/3 of my hair...ugh! I guess the Tac. can do that. Hopefully this is a temporary thing...
Hey, done 2 bottles of pills now, 28 pills to go. a bit tired but still working at a very strenuous job, so not bad. Nurse called yesterday to see how i was doing and if i was on any new meds etc. she said i would have to wait 12 more weeks after treatment ends to get blood work done. bit of a wait but not a problem,...
I usually post for myself but this is for a friend who does not have a computer. I know that this group has so many answers. Q He has hep c and is on methadone. He says his program wants him to go for testing. How do I guide him? He is on medicaid. Is there a drug that works well with methadone? I am on...
If the DAA's are as I understand "direct antiviral agent" are there treatments for other viruses like Epstein-Barr syndrome or West Nile virus? Or rhino virus? Etc...etc... Can they be applied the same way as they have been to hep C? Bb, Iris
I seem to be continuing to improve, little by little, my 3 year battle with icky-gut-constipation-abdominal-liver-pain has nearly gone. All that's left is the expected aches and pains of being a 66 year old. I like it better. We went to Idaho, Montana, Wyoming for our usual Summer trout scaring tr...
I am a 55 yr. old white male. genotype 1A, who just started Viekira Pak+Ribavirin on March 5th. So far so good side effect wise although the Riba is a bit stimulating for me. There will probably be other side effects down the road but they should be manageable. I am a service-connected veteran and all tr...
It is with great pleasure and appreciation, that I announce our newest Moderator, long time member, Cheddy. She has been with us for years and has graciously accepted my request to take on the role of Forum Moderator. She has been a great friend to me and all of our members. I know she will be a helpful, ca...
Welcome to our forum! Sometimes we have newcomers to the forum who have questions about Hepatitis C but who are not familiar with posting on this type of forum. There are many different formats for message forums and other social media venues online these days so for anyone who is new here and wishes to...
Well today was a awesome day .Got 5 week blood work back and Doc says I am cured !!!Not sure how to post levels but my AST 15 ALT 21..Less than 5 copies...Woo Woo .Happy Happy !!
Saw my gastroenterologist after having an ultrasound and she says Im good to go for treatment. She saw some fatty liver but that's it: no cirrhosis or cancer. Now I wait for call back from Hep C nurse to start my meds. Am I really going to get better or am I just going to not get any worse?
I'm 3 days into 12 weeks of mavyret. I got hep C after a car accident in 1979. Five surgeries lots of blood kinda like unlucky lottery.I was diagnosed in 2000 but didn't go through treatment because of the side effects.Science has come a long way.and it's time.I feel like a little kid Christmas morning....
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
