Hello. I got diagnosed 12 years ago and am finally getting treatment. On my 3rd week and starting to feel better. I ran across this forum and wanted to join to have some insight from others going through the same thing I am. I am at stage 3, advanced fibrosis and am a genotype 1A or 1B (was 1B when first diagn...
A relatively "new?" NS5A - (formerly called PP1-668), now named Ravidasvir. Well, it's news to me anyway. Out of Egypt (where there are many GT4's to trial it on), but reading other articles about it tonight, it IS being touted as pan, coupled with sof, with some impressive results, and more interest...
Well I will have my 5th anniversary tomorrow. All is going well with the exception of I am losing my hair at an alarming rate, got so desperate I started minoxidil (Rogaine) yesterday...scalp treatment. I have lost ~ 1/3 of my hair...ugh! I guess the Tac. can do that. Hopefully this is a temporary thing...
Hey, done 2 bottles of pills now, 28 pills to go. a bit tired but still working at a very strenuous job, so not bad. Nurse called yesterday to see how i was doing and if i was on any new meds etc. she said i would have to wait 12 more weeks after treatment ends to get blood work done. bit of a wait but not a problem,...
I usually post for myself but this is for a friend who does not have a computer. I know that this group has so many answers. Q He has hep c and is on methadone. He says his program wants him to go for testing. How do I guide him? He is on medicaid. Is there a drug that works well with methadone? I am on...
If the DAA's are as I understand "direct antiviral agent" are there treatments for other viruses like Epstein-Barr syndrome or West Nile virus? Or rhino virus? Etc...etc... Can they be applied the same way as they have been to hep C? Bb, Iris
I seem to be continuing to improve, little by little, my 3 year battle with icky-gut-constipation-abdominal-liver-pain has nearly gone. All that's left is the expected aches and pains of being a 66 year old. I like it better. We went to Idaho, Montana, Wyoming for our usual Summer trout scaring tr...
I am a 55 yr. old white male. genotype 1A, who just started Viekira Pak+Ribavirin on March 5th. So far so good side effect wise although the Riba is a bit stimulating for me. There will probably be other side effects down the road but they should be manageable. I am a service-connected veteran and all tr...
It is with great pleasure and appreciation, that I announce our newest Moderator, long time member, Cheddy. She has been with us for years and has graciously accepted my request to take on the role of Forum Moderator. She has been a great friend to me and all of our members. I know she will be a helpful, ca...
Welcome to our forum! Sometimes we have newcomers to the forum who have questions about Hepatitis C but who are not familiar with posting on this type of forum. There are many different formats for message forums and other social media venues online these days so for anyone who is new here and wishes to...
Well today was a awesome day .Got 5 week blood work back and Doc says I am cured !!!Not sure how to post levels but my AST 15 ALT 21..Less than 5 copies...Woo Woo .Happy Happy !!
Saw my gastroenterologist after having an ultrasound and she says Im good to go for treatment. She saw some fatty liver but that's it: no cirrhosis or cancer. Now I wait for call back from Hep C nurse to start my meds. Am I really going to get better or am I just going to not get any worse?
I'm 3 days into 12 weeks of mavyret. I got hep C after a car accident in 1979. Five surgeries lots of blood kinda like unlucky lottery.I was diagnosed in 2000 but didn't go through treatment because of the side effects.Science has come a long way.and it's time.I feel like a little kid Christmas morning....
http://hcvadvocate.org/hepatitis/factsheets_pdf/genotype.pdf_____________________________________________________________________________________________________________ExcerptAre There Different Types of Hepatitis C (Genotype...
Hi guys.Long time since I posted.Now 5 years post SVR and virus free. LFT's are normal. Still have followup Ultrasounds every 9 months. All good- no HCC, and my cirrhosis is becoming hard to see.Apart from a major heart attack just over a year ago, no complaints. I've recovered well, stopped smoking a...
Well, not me, my son this time. I was a devoted follower of this forum during my treatment for GT1 with Victrelis in 2011-2012. Tested last year and still clear. He is GT3 with an initial virus load of 7.8 million, AST 472, and ALT 883. FibroTest and ActiTest scores are 0.56 (F2/F3) and 0.91 (A3). Ultraso...
Hey guys, I'm freaking myself out right now. I was real careful about changing out my razor and toothbrush a couple times during treatment, but tonight without thinking I used my water pic with the bristle attachment. It's the only attachment I use on it. But i haven't used it for the whole time of Tx. S...
So I'm kinda chunky. Actually very chunky. I've been reading about people GAINING weight on Harvoni and I am NOT about to do that. In fact I need to lose some. 2 weeks ago I started on Nutrisystem and lost about 4 lbs so far. I figured the meals are nutritious and easy to prepare so I can relax and not worry...
Dear all,
So my girlfriend is a nurse. 10 days ago, while she was doing some works, she got some infected blood on her face (hcv+).. She was wearing glasses (for sights reasons not for protection) but some blood may have end up in her eye(dripping).
I am worried some blood may have end up in the mouth as w...
hi guys im nearly on my second bottle of EPCLUSA . i've had a dream of a medication streak , i could not complain about this medication at all ... only thing i hate is it has given me some kind of skin rash that comes about 5 hours after i take my pill and im scratching like i have flees lol. on my 4 week blood t...
Hi everyone I have just recently joined up as I needed some support and decided I should speak to people who share my burden.
Im from Scotland and I reckon I have had hep c since I was 21, I am now 32, I am genotype 3.
I finished 8 weeks of treatment with mavyret 5 weeks ago today. My Fiboscan score before t...
So I have had success and then not, I wonder if it has to do with the device I am posting from. I will try one here from the tablet first, a little ditty, "All among the Barley" perfect for the season, [video=https://m.youtube.com/watch?v=ka6LZbLdAek] It doesn't want to embed.
Side effects have only been more energy.No headaches no naseau.I pray to God this virus will be cured after this treatment.I will keep y'all posted on this new treatment.
Hi, I'm new here. 65 yr old female with genotype 1a since I was in my early 20s. So basically I've been living with this monster all my adult life. First there was no treatment available, then it was awful like chemo. And expensive. I chose not to get treated as I need to be able to work full time. Still do, i...
A shortened version - a look at why (in part) in 2014 certain people were not getting treated in North America. Gee, is it because they are not sick enough? Some things are are changing ... but too slowly. C.Disparate Access to Treatment Regimens in Chronic Hepatitis C PatientsData From the TRIO N...
I don't get it, I was doing so well for several weeks now, getting more energy and feeing a bit better physically as well as mentally. I swear the Hep C made me super depressed all the time. I was so tired and tied of hearing "pull myself by the boot straps". Well my straps broke a looooong time ago, but recen...
Hi all, My Dr.'s office just called and ask how things were going.I told them all is well except for some stress.He gave me a prescription for Ativan,but I don't know if I ever want to take it.I don't want to take anything but the Mavyret.Any thoughts would be appreciated.
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
