Hi All, Even us old timers have moments of anxiety, and that has been the case with me. I went in last week for my EOT +1 year viral load and chem profile. The odds are well in our favor that once we achieve SVR at EOT +12 weeks, it will stay that way. But, we're human and the anxiety builds while waiting for th...
Once a prescription goes in for 24 weeks is it in stone or can the doctor rip the rug out after 12 and say it is enough? Just curious and paranoid seeing I am undetected at week 2.
Gilead responded to my email about it's clinical trial (http://clinicaltrials.gov/ct2/show/NCT01962441). 3 arms (Sof+Riba 16w, Sof+Riba 24w, Sof+Riba+Peg 12w) are strictly randomised, so i can apply, but if i end up in interferon arm, then it's a no go for me :( I need to be for the full duration...
Any suggestions? One of the medical assistants just called me and said my doctor will not give me an extra 12 weeks of Sovaldi and Olysio. I complete my original 12 weeks on December 17 but was not undetected until week 8. They are saying that my chances at SVR are 93% and when I told the MA that's not correc...
After 8 weeks EOT still free of virus - I wish the same to everyone and will continue to campaign that everyone gets this treatment. I know that I still have a bit of a way to go 40 years or so of having this but we have a lovely home and life so really I can't complain. All the best. Nxxx
Hello! I finished treatment 1 month ago and would like to know if I can celebrate with a glass of champagne. I was on sovaldi/ribo pack for 24 weeks. What is the effect of alcohol after treatment? Thank you.
Bilirubin up everything else down in a good way. Platelests at 4.6! On third week - racy mind but getting alot done - manic anyone? Still waiting for virus count - started at 2.8 million so hoping it is undetectable - - how is everyone on the train?
Can someone please tell me exactly what Hep C treatment entails? I mean do they give a an Rx to fill, shots, cut your legs off, what exactly do they do. Please tell me EXACTLY what they do, how many times a month do you have to see a specialistst, how is medication administered, how much does it cost, does...
Can someone please tell me what this may mean? I am blearey eyed from trying to decipher it with the help of the great google and my follow up isnt until the 18th.. Here is exactly how it reads: QuestOnly- HEPATITIS C VIRUL RNA, PCR QUANTITATIVE Test Resul...
Snapshots from AASLD 2014, by Lucinda K. Porter, RNLots of interesting reading here, for anyone interested. "December`s Snapshots typically features abstracts presented at the recent Liver Meeting. The research presented here was gathered from conference posters, presentations and abstr...
So far no side effects with Harvoni. I have had fatigue, muscle and joint pain, etc. but this is "normal" over the years of Hep C and possibly aging. I do feel good mostly and re-started working out this morning without much trouble. Take the med at 9 or so in the evening. Being a light sleeper I...
I recently recieved a prescription for Sovaldi and Ribapak. Since receiving them my treatment has been changed to the new drug Harvoni so the others are excess to me. Any one need or know where I can donate these drugs? The Sovaldi is 400 MG, 28 Tabs. The Ribapak is 3, 28 day 2 a day dosepaks 600 MG e...
Hello, I just finished 12 weeks of Solvadi/Pegasys/Ribavirin treatment and found this forum when looking for info on how long it will take to start feeling better. As you all probably know, this treatment was a real bear. I've never had such depression in all my life and my energy levels are practical...
Greetings! I've been a member(lurker) here for a few months, but i believe it's about time i post something. I am a vertical transfer, and was diagnosed at 13. When i was 22 i took and failed my first treatment(tx), a Peg/Rib tx. When i was 24, i tired again, a stronger dosage, but again no effect. At 25 i to...
Considering treatment with Harvoni. Have applied for Support Path but not eligible because I am on Medicare Part B and D. Out of pocket will be over 12k, can't afford. If anyone has any suggestions of can refer me to a group discussing this topic let me know. Angie
Hi All, I just checked to see if my HCV RNA Results from Friday were in and guess what..? The results are in and I'm on Cloud 9 as I'm now SVR 12! I had to look multiple times to make sure the (HCV RNA Not Detected, <15) was really there on MY medical records. This is the best day I've had in many months....
Hi everyone, hope your all as happy as I am at this monent. My Harvoni is being delivered tomorrow by FedX overnite shipping . I requested a signature requirement . As soon as I have meds in hand, I can call for appt to start meds. So hopefully I'll be aboard next week. Michaele I can hardly believe its...
I can't explain it really. I just feel different. Like clear. Not tired or foggy all the time. I felt confident at the 4 week mark I was und and at the 8 week mark. I hope it stays und. When I relapse w victrelis. I felt like I wasn't surprised. Like I could tell I still didn't feel good.
Hi all newbie here, I have recently been diagnosed with Hep C (last week) so this is all new to me. I would just like to run through my story and get your opinions if that's OK? I'll try to keep it brief and to the point. In 1996 I became very ill, after a couple of years of extensive tests I received a diagnosis...
ya i enjoy your guys pictures of yourselfs.. your pets and places youve visted.. as well as other novelty pictures of things we all like .... i see a picture and to myself inner voice in head say wow thats a great picture ..... lol iLL change mine here soon
My insurance company has my urgent appeal for harvoni, It was mailed last Thursday by priority mail. I was told that it had to be mailed, not faxed? They received it Tuesday, and in put it in their system yesterday. They told me yesterday, that they will make a decision today or tomorrow. I will make a lo...
The long-awaited new Hepatitis C drug (Sovaldi) will be available on Spain`s national health system shortly, but only for certain patients. According to Dr María Londoño from the Hospital Clínic in Barcelona, a member of the Spanish Agency for Medication and Healthcare Products, the drug Sovald...
Hi, I got my results and its almost funny. The Drs assistant asked, "Why are you here, you've had this for over five yrs and its hardly grown, you have no S&S of pancreatic Ca. " All I could say is someone at the ECU family pratice didnt read the Hx and didnt ask questions." They jus...
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