As you all know, this agent was FDA approved on Friday. Although I would have expected that it would be available immediately, it is not. When I spoke to the pharmacist who works at the specialty pharmacy, Mckesson a large distributor does not have it in stock and the insurance company does not have t...
Just got the results from last Friday which would was the completion of week #2 on treatment. I really cannot believe the results! In over 40 years I have never had normal range levels, YET here they are! Such a difference from labs drawn prior to start of treatment!! SGOT - 37 SGPT - 41 TOTAL BIL - .8...
Harvoni scripts were ~ 4,400 for last week in the USA. Averaged out that means only ~ 88 people per state were approved (and this was the highest week yet). That doesn't seem like many from a patient's point of view. BTW, I am beginning to HATE Pharma investors. They talk about these drugs as if they we...
well the plan set forth is she put in for 8wk course of Harvoni...... she says more then likely they will deny :) of course they will but she says if they deny you 2 times then you can go to Gillead on that support path thing and go that route...... she explained it very methodicly as to state that this how i...
My new doctor, Dr Li in New York wants to start me on a 12-week Harvoni medication. I hope my insurance give authorization. What I want to ask is information of getting copays covered by the drug company. Is there such a fund by the drug company that one can apply for. Wish me luck!
Hi all, I'm finally nearing the date of my gastroenterology appointment - at the end of this week (the doctor was booked solid even before Harvoni was approved). I am really excited to ask for Harvoni, but I am worried that I will be denied, because I am not sick enough. I guess there is not much use in worr...
Hi Everyone,My Gastro was waiting for Daclatasvir to be approved this month so he could get insurance approval for the Sovaldi and Daclatasvir combo treatment. I read that U.S. regulators have declined to approve Bristol-Myers Squibb's daclatasvir as part of a combination hepatitis C treat...
It's been 5 months since completing S/O/Rib Tx and for the most part I feel great. At least most of the Hep C symptoms have gone away. I started getting joint and muscle stiffness about 1 month after Tx and it hasn't gone away. I mentioned it to hep c clinic nurse and she said it is common with interferon tre...
I read so many happy accounts prior to starting treatment even though I was nervous, I thought it would be easier. I've been trying to stay positive but I'm kinda crumbling a little here. Not riba/peg crumbling but it's not easy either. Wondering now if my small stature is accounting for the unrelenti...
Not sure if this is the correct area but I posted here since it is related to the drug access problem that has been our forum's focus of late. For those of you shopping today who would like to help the Treatment Action Group to fight the insurance & pharmaceutical companies you can choose to shop on Am...
Bristol-Myers Squibb Receives Complete Response Letter from U.S. Food and Drug Administration for Daclatasvir, an Investigational Treatment for Hepatitis C "Despite the recent advances in the treatment of hepatitis C there remain significant areas of unmet high need in this disease are...
I finished my triple 12 week therapy with Sovaldi. I have taken my last pills on November 6th and had an RNA PCR test on the 24th of November. Awaiting for results. Doctor said I will take another PCR test 3 months later. I have a feeling that I have relapsed as I started having chills and fever, and some it...
please enjoy your turkey coma and leftovers... and if you live outside of the U.S i say eat sumthing and um give thanks for faily friends... things you like.. and give thanks for Hep C Discussion Forum my gastro appointment is monday iLL let you know what she intends to outline as far TX now that my six m...
It seems so many HCV sufferers are getting tunnel vision about Gilead and their wonderful(yet elusive)wares. They really are not the only player in the race for efficient HCV treatment. Aside from the other big names there are other companies doing good things. I stumbled across one such place call...
Has anyone had any smudged WBCs on their CBC with Diff? Commom with blood cancers with high WBCs, But we dont have high WBCs. Its when fragile cells break, but is it common for cirrhotics with low counts, caused by marrow failure. MIchaele Happy ThanksGiving Goggle Gobble, Who is that? A turkey...
What I've Gained & what I've Lost after all these years with HCVGenerally most people gain perspective over time regarding events that happen in their lives. We who have lived with HCV for many years, some of us for up to 40 years and beyond have learned many things about ourselves. We have learn...
Great article w/ lots of resources.How to Appeal a Health Insurance Denialhttp://guides.wsj.com/health/health-costs/how-to-appeal-a-health-insurance-denial/"Another key resource is the nonprofit Patient Advocate Foundation, which handles health-insurance appea...
Treatment for me has ended and I am "not detectable" after over four decades. I have NO after side effects, just feel good.the tired feeling I had for years even after a goodnights sleep is completely gone. Only been few days since I stopped meds, but, cheeks are already getting color bac...
Hi guys,I recently had my 12 month booster vaccination for Hep A and Hep B.After SVR, you may consider reviewing your antibody status for these two diseases. Previous vaccinations often do not confer lifelong immunity, and boosters may be required. I had Hep B vaccine in 1982, but when I was retested...
Considering Ledipasvir and Daclatasvir results for GT3 were pretty mediocre, new gen of NS5A inhibitor GS-5816 showed great results in Phase II (Astral 2) study. Could this be THE combo Sofosbuvir+GS-5816 for all genotypes? Phase III study for us GT3s soon to start, wish Gilead would provide prec...
I am working on my appeal for Harvoni and one of the 3 reasons for denial was: "the requested coverage for Harvoni for a member with hepatitis c is not available" So what the heck does that mean exactly? I'm not sure how to respond to that comment. Any suggestions?
Has anyone been on Fosamax - or been taken off it - when on Harvoni? Tomorrow I have a training appointment at my gastro's and then will start on 12 weeks of Harvoni. I have been taking Alendronate Sodium (Fosamax) 1x per week for osteoporosis which my PCP prescribed. I called the PCP today to ask...
I want to start a thread to talk about this because from what I am reading, there are a lot of people who probably aren't going to qualify for Harvoni (I hope that's wrong), and a lot of insurances are probably going to try to stall to see if they can go with a more affordable option. http://www.medpage...
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