I post here infrequently but have described being turned down for Sovaldi several times by my insurer, the latest was a week ago. I made an appeal to the Calif. State Medical Review Board without success after the second denial. Yesterday I received a letter of authorization for 24 weeks of Harvoni. K...
Well another day has gone by and not a thing but a little nap at 4 today! I nodded out for about 20 minutes and woke up refreshed! All I can say is I hope this is all there is, I will keep a positive attitude about it too!
Hi all. Back again afater a few months. A few of you may remember that I was going to run across USA ( NY to LA). Well I succeeded in doing that in a ne wrecord ( masters) and have been back in NZ now for almost 3 weeks. Now to get started on trweatment - Drs were going to start me 3 months ago but talked them out of i...
DAA retreatment is a recurring topic here and for those who are interested, in addition to the study results that are slowly surfacing, there is language in the AASLD guidelines that provides support for retreatement. The guidelines clearly state that retreatment should be considered and the de...
Hi all I am having a problem with getting my current Hepatologist to return my requests via email and telephone messages. I must admit I never have had a issue of this sort before, but then I never had a serious health issue that required a long term relationship with a doctor, never had a doctor write a pr...
So it's all good news and I dont have Hepatic Encephalopathy (still cant spell it right ) my Fibrosis level is 1 I'd say yay but i cant receive treatment now so still on the search for my way elevated ammonia levels but im mass happy i dont have H.E.
HEPATITIS C TREATMENT Sofosbuvir/ledipasvir with ribavirin is highly effective for people with decompensated cirrhosisLiz HighleymanPublished: 12 November 2014Steven Flamm, speaking at the American Association for the Study of Liver Diseases (AASLD) Liver Meeting. Photo by Liz Highle...
Well, I've finished and have been undetectable since week 2. My ALT went down to 30. I am told that if those of us on Daclatsvir relapse after 12 weeks of treatment we get the 24 course. I am hoping that this will not be necessary. I'm also hoping to reduce my Child-Pugh score which is 7-9. To everyone...
Today found out as of November 7, 2014 I'm still undetected and thus deemed CURED! I am beyond grateful! There's a cure for us all finally! I've been living with this since I was a little girl and I'm now a happy mother who has a huge weight lifted off my shoulders! I'm so grateful to my doctor who took hi...
I am cirhotic but my doctor said the new guidelines are 12 weeks for cirhosis with ribravirin????? Should i wait for another doctor to give 24 without? Just opinions.
Go in for blood tests today and then the doctor will order it. Anyone know how long it takes after bloodtests for doctor to call int eh prescription? They couldn't give me an exact time. Any cirrhotics getting 12 weeks or is it all 24?
Hello All, Would I be correct in saying that people living with HCV are more susceptible to diabetes? Would it be fair to also say that treatment for HCV, particularly triple therapy (victrelis/ribavirin/peginterferon), elevates blood sugars? Finally, as I am SVR+24, in theory would it then foll...
As we know the AASLD guidelines established a basis for who and when to treat. Despite the AASLD's subsequent statement that the guidelines were not intended to be used to deny tx the guidelines do in fact clearly set forth a type of rationing system. If you are wondering how docs in clinical practic...
Got my two week labs back and my Eosinophils were 6% (0-4 normal) and Basophils 3% (0-3 normal) were high. Is this an allergy? Also my bilirubin went from .05 to 1.0 which is the highest normal value. I can't find this on either Sovaldi or Olysio's prescribing info and I don't know what it means. I've bee...
I was reading elsewhere that changing to new tooth brushs and razors and even nail clippers might not be a bad Idea. I might just do it anyways. so I don't reinfect myself somehow. Any thoughts on this? Jen
I'm a 61-year-old male who, two weeks ago, was diagnosed HepC positive/chronic (whatever that means). Never been diagnosed "positive" before so never treated. Then, yesterday I was told my viral load was <15/undetectable. A CT Scan of my liver showed no damage, blood test shows liv...
Hi All I haven't posted for a long time since I was busy getting registered for Sovaldi. Thanks fully I am done with the registration and awaiting the medicine to be received. I was asked to re-do certain tests and it showed improvements as follows: PCR test - Viral load decreased to 250k from 1.6 millio...
Hello everyone... It's been a while since I've signed in there's so many new faces. Very glad to see others have found this place. Yesterday was exactly 9 months since I started treatment and last Thursday was exactly 6 months since I ended treatment. So of course I was at the lab that day getting blood d...
This is a calculator that supposedly calculates the degree of fibrosis (and other things) using your standard liver blood tests. I am not sure how accurate it is. I entered my numbers and it said that I have severe fibrosis or mild cirrhosis--which is accurate. Just thought I'd share it. Is i...
Hey All AbbVie has been granted five US patents that specifically claim the use of Sofosbuvir and Ledipasvir, the drug combination that Gilead sales under the name of Harvoni. Check out the article Seeking alpha - http://www.seekingalpha.com/article/2674915 This will takes years of litigatio...
I talked to the person handling my request and was told they only received 4 pages of lab results, no clinicals or biopsy reports, ultra sounds or statement to the effect that I am F4. She had talked to Nell who gave her the rush on the phone. She told me, had Nell even said over the phone that I was F4 she c...
Hi, I am a 60 year old woman and have had Hep C for 32 years, supposedly from a blood transfusion in '82. Was diagnosed in 2001 after checking for Lyme Disease due to chronic neck pain. No Lyme, but they found HCV. Since then I have been monitored with regular biopsies and blood work. Moderate fibrosis...
Okay, for the mathematically inclined members you are right in thinking, "That does not compute!" Why? Because I stopped treatment at 6 weeks mainly because of the heart flutters. Before I started treatment I would have a flutter maybe once every 2 months. After the first 10 days of treat...
This makes for interesting reading about how and why Gilead operate the way they do.http://www.hepcoalition.org/news/article/gilead-s-license-on-hepatitis-c
Maybe when pigs fly! This link shows the names of all the big companies that flat refuse to lower prices on HCV drugs. Personally I think these boys have sorted out a deal between themselves and they are going to keep the prices sky high for as long as possible...this equals zero new treatment for most. I...
so im visiting with my FPN and i bring up thee fact that people who are F-4 are having difficulty acquiring sovaldi or havroni ... she goes ya you proably wont get it either they will start you on the cheapest TX they can find ... AND i think we all know what that means :) Interferon and Ribavarin ... ive h...
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