Hi , does anyone else get annoyed when people say ," But you dont look sick." There was a time when strangers would walk up to me and ask are u ok ; I was really sick before I was Dx back in early 2000s. Now after having gotten to the F4 mark, my friends and family all say, but u dont look sick and ex...
Hi everyone.. I just got my test results in from 6 month hep c test and its HEP C PCR, QUANTUndetected, Undetected - See Below IU/mLUndetected I have cirrhosis, compensated so hopefully i will get better. Heres blood test results from 4 months post treatment which are better then my previous test res...
On May 7, 2014 the manufacturer of Olysio (Janssen) submitted a supplemental new drug application to use Olysio in combination with Sovaldi. Up until now the use of S/O has been off-label. I just got an email update from the FDA that indicates the FDA has approved the S/O combo. It states in pertinen...
ANYBODY HAVE THIS INSURANCE UNITED HEALTH CARE ? WAS IT APPROVED WHEN YOU ARE TREATED ON HORVANI I FOUND AN ARTICLE THAT AS OF OCTOBER 15 2014 UHC HAS APPROVED WITH CERTAIN CRITERIA - ANYBODY KNOW ANYTHING ON THIS?
I have just been screened for the phase 3 sofosbuvir/gs5816 for 12 weeks or sofos and riba for 24 weeks for geno 3. i will know in the next 2 weeks when my blood work is back if I am accepted or not. i was told be the doctor that gilead does not want our viral load disclosed until 12 weeks into the trial, does an...
Hi everyone! Well,Good News! I'm 4 months post treatment now and undetected! Hep C Free!!! 48 wks was pretty rough. But, I knew it was only temporary, so that got me through. I didn't need any adjustments to my med's. My hemoglobin got to a low of 90, but I persevered, knowing it was almost over and that it...
While I was thinking about starting treatment last night, and what I could do to make sure I took my meds, I got to thinking - hmm, I wonder if there is a free good medication reminder app out there? I downloaded one called Medisafe for my android phone, and it's pretty cool. You can enter times, dosages...
A recent article written by a doctor that is well worth the read: Delivering on the Promise: Maximizing SVR in the Real WorldJordan J. Feld, MD, MPH - 10/6/2014 More from this authorWith the promise of curing up to 75% of patients infected with genotype 1 HCV, the approval of the first-generatio...
got results from post 12 week test.. virus undetectable.. medl score 7. is that an ok number for cirrhosis? i'll keep doing a 6 month scan. so I don't go back til January.. God. Now to get the attorney general to look at my dad's case of my sis swhwindling him out of a million or more bucks.. so pray for that t...
Hi everyone, I`ve been in contact with Duane (Dzdayscomin) and he would like me to let you all know that he is taking a break from the forum and so has deleted his membership account with us. As many of you are aware, Duane is struggling with serious health problems at the moment and although he`s very th...
The 65th Annual AASLD meeting will be underway soon. For docs who are unable to attend in person there is webcast option for a 2 hour presentation on HCV tx. Just thought the agenda might be of interest to us patients as well. I especially like the presentation about "Showing Interferon the Do...
Hello all, So I felt I needed to join and try to get some answers as I am very scared and having a tough time. So after thinking i was tested for HCV over 9 years ago when I first got sober, I looked back into my medical records and we did not see any testing. After seeing my Dr recently for a lump in my sternum are...
Finally 12 weeks has passed and I must say for me a struggle to say the least hopefully will start feelin a bit normal . still very fatigued and lazy but am struggling through some work will have viral load results in 2 weeks I will upload when I receive them with fingers crossed i have attached my last bl...
This thread will clarify the Forum's position on various Guidelines and Etiquette Because we all have the right to form our own opinions on all things that effect our lives, sometimes that can lead to disagreements with others that don't share the same viewpoint. With that in mind for the forum's ben...
Hi everyone, I haven't posted in a while, but I thought I'd give an update on my treatment to give hope to all those out there that are starting out on this journey. As you can see from my signature, I started treatment (interferon + ribavirin) on June 3rd, 2014, and am due to finish a 24 week course on Novem...
Thanks for having me, everyone. My name is John Shutts fron Corpus Christi, Tx. I am calling my insurance today on my harvini appeal. I am going to tell them all of the severe symptoms I am having because of my chronic hep c disease. Just because I am between stage 1 and 2, with a little bit of scarring, do...
The Specialty Pharmacy called and told me that my first 30 days of Harvoni will be here on Nov 5th. I am quite excited to be rid of this thing that haunts my life and threatens my health. I am hoping for the best and will let you know how it goes as time goes on. I'm not a big talker but I watch here and read I w...
I'm ecstatic to report that at EOT + 4 weeks I'm Undetected!! My energy is still really good. I'm again, cautiously optimistic that in the months to follow I'll remain undetected. Thanks to all of you for your support. You are a great group of people and it has been an honor to trudge the road with yo...
Have not been able to find anyone taking Solvadi and Daclatasvir combo on the forum but my question is more towards the Solvadi side effects I think. The last 4 mornings about an hour after I take my pills (which include the 2 pills for HepC treatment and, right now, 15mg of Prednisone (down from 20mg las...
So it appears there are going to be delays, denials, and problems in Harvoni approvals. Having already been denied an approval after relapsing on S/O I understand the frustrations folks are having to deal with. I thought this thread might be a good place to discuss things we could do to give supp...
Hi all,I'm a bit ashamed of the Forum lately. Most posts are about personal problems accessing Harvoni. I can understand this is difficult in these early days after approval, but don't forget this is an International Forum. There are non-US members out there, struggling through treatment, and nee...
Well finally all my test results are back and they look pretty good. I am not really sure what they all mean (I can barely count to ten...thank god for my fingers!) Anyway, here they are....Fibroscan 7.6kpaIQR 1.1, 83% success rateALT 52AST 31AFP 12Viral load 1000,...
Abbvie is going to be presenting data on their three drug combo in early November. They filed at the same time that Gilead filed Harvoni for approval. Does anyone have an opinion on the relative efficacy of the two combos. Abbvie's coho is three instead of two drugs!
I think that it is very narrow minded of the ins companies to base criteria for treatment on how damaged your liver is. (Taking nothing away from anyone who is this sick so please don't take this the wrong way) Altho I am lucky that I have maintained a pretty healthy liver since being diagnosed in 2004; I...
Last blood tests show Hep C virus as undetectable!! I am NOT complaining I just want to know if these are normal: -- It's been a week and a half and I'm more exhausted than when I was on treatment. -- The itching has reduced. -- I've noticed increased confusion and spaciness. -- I am not hungry (unusu...
The CEO of PBM Express Scripts has been very outspoken about Gilead's pricing. In the news (and on his blog) he is saying that Express Scripts may drop Harvoni from its formulary once Abbvie is approved assuming Abbvie is more reasonably priced. It appears the Insurance Cos and PBMs are sending a me...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
