I thought it might be useful to post this handbook here for anyone who is considering starting their own local support group. It provides lots of information and useful tips to take you through the process. From the Hep C Advocate website (pdf format)... [url]http://hcvadvocate.org/hepatitis/...
I have noticed that everywhere I go that I am always the only one in Tennessee. There are NO support groups of any kind here either. This is why I seek out forums on the internet.
Today I went to the hospital to find out where I stand with this illness. Well I am genotype 3, have moderate fibrosis and a fatty liver. I had an ultrasound scan two days ago, everything was checked and nothing is unusual....this made me happy as I was more worried about what might show up on the inside. S...
Hello all, my name is Liza, This is a long long introduction, it covers more than my hepc status, I am in crisis mode right now. I apologise if this is something I should not have posted, but I am in desparate straits and need to reach out to the larger community, as I am not finding the help I need in my loca...
ALL members please do this. It will be helpful for everyone if you create a signature with HCV related information specific to you so that it can be quickly viewed by other members at the bottom of each of your posts. This promotes more accurate and prompt reply's to your post by other members. In many c...
It's approved in Canada. How did this happen so fast? I called and he said the insurance companies should start approving in 1-3 months. Now to get my slow dum dum doctor to get on the ball and get me on the program. This stuff will work - I can feel it! http://goo.gl/CRh7Mb -- Edited by Gracie on Friday 24...
What are hep c people allowed to use as far as narcotics to treat chronic pain, long term? Has anyone experienced this situation? What do gastroenterologists say about using narcotics, and which ones if any do they approve? i appreciate any advice.
Hi everyone, Hope today is a good one for you. Thought I would check in as have been both too tired and lazy to focus on anything outside of work. I am pleased to report that my 24 wk vl came back und, especially good given I was dosing incorrectly for the first 4 months. My HB has climbed to 75, while tokenist...
I know nothing about insurance etc and don't know where to find an answer to this question. I've had limited luck finding out anything at the Medicaid office. I have Medicare that pays most (80% I think) of my Dr bills etc. and Envision Rx Plus for medicine, and Medicaid fits into the picture somehow, bu...
Hello everyone. I've been lurking here off and on for a long time. I opted to not treat after being diagnosed in 2007, biopsy of stage 0/1, grade 0/1. I'm not sure if the GI fired me or the other way around. She just couldn't believe I wouldn't ingest poison for 6 months, question her superior knowled...
I wanted to share this (again) especially for any treatment naïve 1a's that miss the train they want. There are other ways to get where you want to be, and they might even have a better success rate for your situation. http://www.realendpoi...
Now I went through Hep C treatment in 2011/12 successfully. Before treatment I was experiencing all over to the bone aches and tendon / muscle sore spots that I associated with the Hep C. The pain and stiffness escalated after treatment and just this week I was diagnosed with fibromyalgia. I was so o...
OK, I have the lab report HCV log 10- 7,37 Hep C Geno 1 a with I think it is RT? after the geno type so 1 a rt.. I have a whole page of results for the blood test, so I don't know what else to include. Let me know and I will post everything. I don't have a scanner I guess I got the jack pot. 1a is the most diffi...
I am quite concerned. I had my eot labs done yesterday and while I remain undetected, my ALT is 46 and my AST 172. What does all of this mean? Any wisdom?
Hello friends, I was reading somewhere (may be here on this forum) that someone did a therapy with sofosbuvir & daclatasvir or sofosbuvir & simeprevir.(I dont remember exactly)He/She had very low VL on week 4 ( less than 15 IU) . But the problem was he/she had the same VL on week 6 ( less than 1...
Just received a call from my doctor to schedule an appointment this week as the new treatment Harvoni ((Ledipasivir/Sofosbuvir in 1 pill) is to be approved on Oct 10 and they believe I am a candidate. As a 2 time non-responder, geno 1A with Q8k morph, and chirrotic liver, I am overwhelmed with digesti...
So... In my endless search to feel better, I was just at my Doctors. She stopped lactulose 30ml. x's2 daily, like 10 days ago. More labs were done friday. My ammonia lvl is higher then it's ever been, and on top of it all my doctor told me I needed to follow up with my G.I. Well my G.I. is keeping me on the back b...
Hi all,I must admit that I'm confused about the message Gilead is sending to the Genotype 3's. In the Prescribing Information for Harvoni, it states that Ledipasvir has reduced activity against Genotypes 2 and 3.However, the ongoing Electron2 Trial (Harvoni +/- Riba for 12 weeks), gives 100% SVR r...
Hi, just wondering if the process used to remove the caffiene is safe, I know some of the chemicals remain in levels that are thought to be safe. Safe for who? I read about the process, and Im on my was back to walmart to exchange for full caf , because I dont need even minute amounts of chemicals in my F4 live...
I was just wondering if they all did that or what? It was a nice surprise that they would actually pay me to go there. On top of free very expensive medication. I wonder if it is for some legal reason, like they are worried we might try to come back on them if all doesn't go well?
I'm starting this thread so we can all channel our collective forces to get the Grouper guy on the new tx and get him to SVR. So that said I'm calling on my God to bless this man and provide him with the tx he needs, and the support of all of us to get him to where so many of us have been fortunate to get to....The p...
hello everyone who is just finding this place..... you have stumbled upon the greatest hep C and all other things health site on the internet..... i found this place by chance on google while surfing around hep info .... Im glad God said hay look here ....i dont belive in chance or randomness :) any...
still numb the taste and smell of blood ... do not like hard upper denture took it out have a wet rag in my mouth catching blood .. may or may not go to work in 5 hours... took 1 vicoden and 2 ibuprofen 10 minuets ago.... this sucks but it is not the end of the world best that i try to ignore it as much as possible b...
Hi everyone, Like many others I've been a lurker, now joining in as I finally have some hope ahead of me. I was approved for FREE Sovaldi/Olysio and was feeling so blessed and excited. Then I went to look up some information and stumbled across some scary posts on another board. I went to a site called Adv...
I met with my liver dr today and we discussed my going on Harvoni. I had a lot of questions of course & expected to hear the worst. Here's the story he had for me: Apparently, after the FDA approved Harvoni, many if not all of the NYS insurance companies decided they were going to make it very difficul...
Just a few thoughts: If you don't have a doctor's appointment make one. If you do have a doctor's appointment wait for it. If you have seen your doctor and are awaiting tx approval give the process a reasonable amount of time. If your health can afford to wait until the Harvoni dust settles then wait a wh...
getting all my upper teeth or whats left of them ripd out tommorow... sounds like a good time... hope they are very generous with the novacane.... spose to not smoke for a day or 3 ... proably will anyway... itll take a good week or more to initialy heal then months to really heal... ima try to eat fish st...
Greetings all, Today I am celebrating - 1 year post liver transplant due to this terrible malady. By the time I was diagnosed with Hep C back in 2010, my liver was already at stage 4 sclerosis. I tried the dual & triple medication treatments, my body was in such bad condition, I ended up being hospit...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
