Yesterday was to be a day of celebration. After 24 weeks on Sovaldi and Ribavirin, I took my last dose at 9am in the Charleston Int Airport on my way to NYC. What joy I felt to have completed the treatment and that now I would not have to be on that 9am regimine anymore. However, as the plane took off, my stoma...
New to this forum - not sure how to post, ask questions, etc... Maybe I'm doing it right? Would like some input on what I'm in for, questions to ask Dr., I guess everything right now.
We all need a good laugh once in a while! I was reading my labs late one night When my eyes beheld an eerie sight For red dots from my skin began to rise And then suddenly to my surprise I had the rash I had the riba rash The riba rash It makes me want to smoke hash I had the riba rash It covered me in a flash I had the r...
Hello all, New to this forum to try and gain information about Hep C that I have. I recently had blood work done and the test results are Hepatitis C Quantitation 3,566,240 IU/mL 01 HCV log10 6.552 log10 IU/mL Is there anyone that understands these levels? Thanks!
I am wondering if it is leaving via our poo, urine, or if it self destructs inside us when the medicines beat up on it? I've been flipping off every flush just in case. -- Edited by LC on Sunday 19th of October 2014 12:27:56 AM
So I have been kicking around the idea of retiring early......being I have primary liver cancer I believe I qualify for the Compassionate Allowance with the SSDI I have a substantial 401k balance and wondering if anyone knows what obstacles I would run into? I believe I may be able to take distributio...
Finally finished up 48 week with teleprevir, riba and interferon. Ahh am so happy to be over that. Looks good though, one week eot, and test shows undetected, all blood work back in normal ranges except for platelets. Been undetected for 9 months so,...... hopefully that's a good sign for svr. Good l...
I may very well order these to go along with a nutriblast to juice this stuff A vast majority of natural components or dietary components are capable of modulating mitogenic signals, cell cycle regulation, angiogenesis, apoptosis and metastasis4. Few of the plant derived dietary components ha...
Hello Guys, Tomorrow will be my last dose of the 6 month Sovaldi & Ribavirin. Praise the Lord. I am planning on having a flu shot on Monday. Is this okay? I'm pretty sure that it will be okay, but I don't want to mess anything up at this juncture. Opinions and experience please. Thanks!
The "old" SOC's continue to benefit and hold hope for the co-infected!"Adding telaprevir to pegylated interferon and ribavirin for the treatment of acute genotype 1 hepatitis C infection in HIV-positive men reduced the duration of hepatitis C therapy by half for most patients a...
I have the opportunity to change my insurance from BlueCross Blue Shield to Aetna. Has anyone had either one of these companies deny thier treatment? Any thought on high deductable vs low deductable? Also both companies use Expressscripts for perscritpions - so does the healtcare company pay for t...
I got a call from my doctor with EOT +26 week results (I had to cancel my 24 week appt.) and I'm still UND-all lab values in the normal range. He used the c word for the first time, "cured". Hooray!!! We were chatting about the Harvoni release and its impact on treatment. The doctor said that if I...
Hello Everyone! It's great to be part of this group. I hope this post doesn't violate any forum rules, but it is extremely beneficial for the community. I'm a CNN producer on the show, Inside Man, looking to tell a story about Hepatitis C treatment. We would like to speak with patients who are in stage 3 o...
I am totally thrilled and psyched. I have been set up for another VL in 12 weeks and then an annual VL after that. The treatment was a walk in the park. I started to feel better within weeks and had my energy back after about a month. The difference was night and day! I still get fatigued now and again (I have...
For more than a year, I have a deep pain in my right armpit that comes on for several days at a time then goes away for awhile. Does anyone else have this symptom?
I talked to someone from the Abbvie company who is running the clinical trial I'm on, and asked her if there were any foods I should avoid while on treatment. She said not to eat grapefruit or drink grapefruit juice. My nurse told me now that I started treatment, to get a new toothbrush, nail clipper...
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I have done some poking around about this on the web but haven't found anything conclusive. I'm wondering if Malcolm or other knowledgeable folks on this site know the answer to this. I'm wondering what a person's lab results for all the typical tests one would get for HCV or other liver disease woul...
This will be a thread leading up to the first FDA approved all oral HCV treatment for GT-1'sHopefully it's contents will be the what, how, why, who and when of getting ready for treatment with Gilead's Sciences Sofosbuvir & Ledipasvir. Please join in as their is much to get ready for.matt-- Edit...
Hi all, Just reporting in. We went to Mt Sinai on Sept 11th for Tom's CT liver scan and he is still cancer free. It was also one month to the day that he started the ribo and solvaldi combo. Dr in city was happy to hear that Tom started the hep c treatment but was surprised his gastro didn't wait for new tr...
"While Gilead has contended that the total price for a course of treatment with a Sovaldi-containing regimen was a modest increase compared with previous standards of care, this is an invalid argument based on the incorrect premise that these regimens were appropriately priced to begin wit...
i havent drank since 6-4-14 next Gastro apointment is December 1st.... thats 6 months... at that point you can apply for DAA.... if denied obviously i will challenge or say sumthing like If my liver isnt damaged enough i will get it there it may take 10 or 20 years but it will get done.... beating Hep C i...
Is anyone else here on or has been on the Ledipisvir trail? I am on the Led/sofo trial without riba for 12 weeks..5 days in. Im looking for info please on how you felt on it..side effects. I have headaches, a bit dizzy. I feel like I am here but not here...feel weird...does this make sense? Thank you for a...
Hello I'm new to this site, hope I've posted in the right place.. I'm starting the Merck C-Edge trial on Monday. I'm also on a methadone program. I know I'm lucky to have a chance on the trial, but I haven't been on any other medication for the hep c. So I'm worried about the unknown of being on a trial and the...
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I've been flipping off every flush just in case. -- Edited by LC on Sunday 19th of October 2014 12:27:56 AM