New member, will have to learn all the terms, abbrev. and other hepc related stuff. Was diagnosed over 25 years ago and have seemed to manage it well enough, take milk thistle religiously, don't smoke or drink anymore and didn't really exhibit any extreme side-affects. Hard to explain, but I "f...
So on Wednesday of next week I go in for biopsy.... I know its a standard procedure and all but if its just a needle š then why the heavy sedation for up to 12 hours? Just has me worried is all... Can someone walk me through what happens.... Am I going to be awake? Called my gastroenterologists office and hav...
Well, it took some time, but I now have a very good Dr, I did my type, Viral load etc last week and I will have the results next appointment Nov 7..( I will get them from records before that ) My Dr is a highly regarded Gastro, and I like her. she is the one that fixed my bleeding ulcers. At least wit...
Here I was, so smug and happy all my ducks were in a row and the much sought after Harvoni would be delivered to my door any day now. So I called Walgreens specialty to see if they had any idea when it would get here. They said I was denied because my insurance(Regence) wasn't contracted with them and it was s...
So I found out a month ago that I have HCV, and I am not yet sick from this. My Dr is proposing Incivek triple therapy (he also said this doesn't necessarily need immediate treatment) and I am a 1a with a VL of 753,000. I don't know what stage of deterioration my liver is at yet, which may end up being a det...
WHEN AND IN WHOM TO INITIATE HCV THERAPYRecommendations for Testing, Managing, and Treating Hepatitis CThe introductory statement of When and In Whom to Initiate Therapy has been revised to reiterate that treatment will benefit almost all patients in all stages of chronic infection and that urg...
This is OLYSIO !Sunday, October 26, 2014Posted by HCV New DrugsFILE UNDERHCV NEWS, HCV WORLDWIDE,SIDE EFFECTS,SIMEPREVIR3 die after being administered hepatitis C drug The health ministry said Friday three people have died after taking the hepatitis C drug Sovriad, and it has ordered the dis...
I just finished sol rib and int a few days ago. I'm wondering if I'd get a vl soon and it'd be und if that would matter. How fast would it come back. I'm nervous sick right now.
Dear All, How are you all doing? Hope you are all fine. I took my LFT today. My Peginterferon/ Ribavarin treatment for GT 3 was over on 17th June 014. My bilrubin is high, AST and ALT are normal. What does this imply? I had taken Hepatitis B vaccine exactly a month back. Can that be the cause of the increase...
Went to the beach this morning, took a few iphone videos to tide me over, came home and took the first dose of S/O. Told old Snidely Whiplash his days were numbered. Checked my numbers in Skewed's groovy VL calculator. Felt really good about it. Two hours later saw the news that three people in Japan on Ol...
I took sovaldi over the summer with interferon and ribrivirin. I was undetected all the way through treatment but the dragon came right back. he thinks seeing I was exposed to sovaldi my "best best" might be the abvie. My other liver doc at kesier today she thinks mid november they will h...
My Keiser doctor is saying there is something else coming out any day now (abvie) so maybe I should wait seeing I had solvaldi over the summer. They don;t have it yet anyway. Booooo
I just gave myself an interferon injection. A week from today will be my last injection and the end of treatment. At 6 weeks or so my viral load was tested and it was zero. With hind sight it would have been better to wait for the new treatment that was approved on October 10. The combination of Pegasus an Ri...
I called my insurance company and Gilead about my appeal for harvoni. It looks like it is going to take a long time for my appeal, up to 30 days. My doctor faxed my appeal last Thurs. morning. Insurance company has not even put it in their system yet. It looks like the insurance is going to take their good ol...
I know some of the treatments are really rough and unbearable for a lot of us, but, we do want to be cured of this terrible disease, and start a fresh new life, am I right? Just think about the bright future a head of us. Our families and all of us certainly deservre it! I can say this with experience, just li...
It is amazing to me that my insurance is slow to provide Harvoni. In the past, FDA approved drug for an FDA approved indication where there are not any alternatives was a very simple situation. You could get the drug. There is no good reason for the availability to be stalled. However, in my case, th...
Finished three months of treatment 10/06/14 and hep c viral load is undetected. That is the good news. I was so looking forward to feeling better but I do not. My energy level sucks, I still hurt everywhere. Would like to hear from others post s /o treatment. How are others doing?
You all need read this article that posted today, at healthline.com, by David Heitz, great article. "Harvoni Takes the Sting Out of Hepatitis C Treatment." It is posted on the right side under most resent. I just want to be cured, just like a lot of us. So tired of waiting, when the great med...
Hi guys, I had my cardiologist to order a liver panel and everything came back within normal range except my ALT. The range for ALT at this lab is 13 - 69 and my ALT was flagged as low: ALT: 8 I'm not sure how to interpret that. My AST was 23 (that's because I'm taking Ativan--I hope) Anybody have any idea why i...
So my new Dr. is cool. Her name is Seyyad.... But she had a hunch of what might be my problem.... well, educated guess anyway.... She said after 10 or more years of I.V. drug use, she sees people with vascular problems due to scared veins. And I do have really scared veins... It takes a good blood tech to dra...
I thought it might be helpful to have a treatment outcome record on one thread. Tig suggested I start it in the post treatment section, so here it is. It would be easier to read results if each person uses pretty much the same format: what drugs they used for treatment, duration of treatment, liver stat...
I thought it might be useful to post this handbook here for anyone who is considering starting their own local support group. It provides lots of information and useful tips to take you through the process. From the Hep C Advocate website (pdf format)... [url]http://hcvadvocate.org/hepatitis/...
I have noticed that everywhere I go that I am always the only one in Tennessee. There are NO support groups of any kind here either. This is why I seek out forums on the internet.
Today I went to the hospital to find out where I stand with this illness. Well I am genotype 3, have moderate fibrosis and a fatty liver. I had an ultrasound scan two days ago, everything was checked and nothing is unusual....this made me happy as I was more worried about what might show up on the inside. S...
Hello all, my name is Liza, This is a long long introduction, it covers more than my hepc status, I am in crisis mode right now. I apologise if this is something I should not have posted, but I am in desparate straits and need to reach out to the larger community, as I am not finding the help I need in my loca...
ALL members please do this. It will be helpful for everyone if you create a signature with HCV related information specific to you so that it can be quickly viewed by other members at the bottom of each of your posts. This promotes more accurate and prompt reply's to your post by other members. In many c...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
