I talked to the person handling my request and was told they only received 4 pages of lab results, no clinicals or biopsy reports, ultra sounds or statement to the effect that I am F4. She had talked to Nell who gave her the rush on the phone. She told me, had Nell even said over the phone that I was F4 she c...
Hi, I am a 60 year old woman and have had Hep C for 32 years, supposedly from a blood transfusion in '82. Was diagnosed in 2001 after checking for Lyme Disease due to chronic neck pain. No Lyme, but they found HCV. Since then I have been monitored with regular biopsies and blood work. Moderate fibrosis...
Okay, for the mathematically inclined members you are right in thinking, "That does not compute!" Why? Because I stopped treatment at 6 weeks mainly because of the heart flutters. Before I started treatment I would have a flutter maybe once every 2 months. After the first 10 days of treat...
This makes for interesting reading about how and why Gilead operate the way they do.http://www.hepcoalition.org/news/article/gilead-s-license-on-hepatitis-c
Maybe when pigs fly! This link shows the names of all the big companies that flat refuse to lower prices on HCV drugs. Personally I think these boys have sorted out a deal between themselves and they are going to keep the prices sky high for as long as possible...this equals zero new treatment for most. I...
so im visiting with my FPN and i bring up thee fact that people who are F-4 are having difficulty acquiring sovaldi or havroni ... she goes ya you proably wont get it either they will start you on the cheapest TX they can find ... AND i think we all know what that means :) Interferon and Ribavarin ... ive h...
Okay so I'm kicking myself because I read an awesome article this morning about Gilead's new Triple (6 week regimen) and can't find it now. The nuts and bolts were that Gilead is in the early clinical stages to test Harvoni combined with another drug called "Vedroprevir" and a small sample...
Hello there! 23 days since last dose! And yes, feeling somewhat better (all in my mind?) I will admit that the 'heebie jeebies' i was feeling during treatment have subsided; but the restless legs that became unbearable during treatment (and only rarely before) are still present. And, although I th...
i started treatment 2 weeks ago. I was on my dads insurance until i turned 26 which was a couple weeks ago. Insurance told me they would cover costs until the end of treatment since I started before the policy officially ended. I went to refill my script and they told me they won't do it, and are no longer co...
So I got my latest Bloodwork tests back, and I'm unsure of what to think. Platelets seem low at 82 and AFP is high at 11. The rest looks ok. Any ideas of what might be going on? Isn't AFP a tumour marker And why is my liver profile normal? Isn't 82 quite low for platelets While off treatment for so long. Also h...
Australia's rejection of costly new treatment sofosbuvir a 'death sentence for Hepatitis C sufferers'By Deborah Cornwall Liver experts at a conference on the Gold Coast have been warned Australia is on the verge of a catastrophic death spiral from Hepatitis C. Dr Miriam Levy, the director of gas...
OK, called cigna today and Harvoni has been added to their formulary with pre-approval, she only said preapproval required degree of fibrosis, liver biopsy, and some other things, you have to meet certain criteria but it did not list the exact criteria or fibrosis level... she had no link for their d...
HOPEFULLY I WILL BE STARTING HORVANI SOON MY INSURANCE IS UHC AND MY DRUG PLAN IS EXPRESS SCRIPTS GOOD LUCK TO YOU ALL -- Edited by ss on Thursday 6th of November 2014 07:03:14 PM
So, let me begin by saying that YES A BIOPSY HURTS!!!! people said it will be fine, I believe I will. But, The pain involved with this is unreal. The Dr. went between my ribs? Not sure what's up with that but he did. So, I am having extreme Chest pains and when I cough I feel it in my Liver area. My liver area hu...
I just got my 12 week after treatment viral load results: SVR!!!!!! I'm cured!!!!! I'm crying as I type this. Gender:female genotype 1a compensated cirrhosis treatment: 12 weeks Sovaldi/Olysio VL at start 2 million Comments: blood platelets have been around 60 since last spring, they are up to...
Hi,This is Bashar from Dhaka, Bangladesh. This is about my wife as she got test results of anti HCV ab sample rate 2.69 & cutoff rate 1.00. It came out when I took her into a doctor for feeling a lump in he breast. The doctor refer her to a prof. of gastroliver. I take the appointment of that prof. I feel v...
Well hello all, long time since I posted a friend K reminded me so sorry not to have kept in touch, They said it would take a year and they were right everything back to normal, kidneys recovered and put a little weight back on. feeling fairly well. Almost finished with divorce she had walked out with 8 wee...
i took my ribiviron and sovaldi this morning, I don't think I ate enough because I became super sick and I think I threw up my meds, how bad is that? I didn't have an appetite so I tried forcing some cereal down but don't think it was enough. I still feel super nauseated
Hi , And now for the cherry on the psycho sundae , drum roll please. The cyst on my pancrea has grown and is now being referred to as a pancreatic mass. Going to referral on the 11th: review ultrasound to see if I need a biopsy again. And also going back to the GI on the12th. I got sort of pissed and asked the d...
Hi all,Yesterday, I had my final two implants fitted ( teeth 15 and 16). The older members may know I lost 5 teeth due to my 4 courses of Interferon treatment. These have now been replaced, so I can enjoy my steak again, smiling broadly. The last two were tricky as I needed bone grafts around the titanium s...
im doing ok took that blasted tape and bandages off... i did take it easy at work on thursady and friday i just sat in the chair in the office down stairs and playd games on my phone and read a book on my phone....... feeling like it never happened but the stitches on a wound with a diameter of your pinky wide...
i just started treatment 2 weeks ago w the interferon, ribiviron, sovaldi combo for genotype one. I've been experiencing awful aches. I'm hoping someone here can help w a question I have. Is anyone taking any pain medications with this same combo? Will opiate based meds interfEr with treatment?
So..... Idecided that coffee, whether pretty or not, just isn't for me. That first day..... Seemed like I couldn't fall asleep... Oh that's right it's cause I COULDN'T fall asleep... (lol) I stopped taking the barbiturate that was Rx. I figured if its blood thinning they want.... BAM!!!! You g...
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