I posted this in the Clinical Trial thread, maybe I should have started here? Abbvie Topaz II (This may be the first arm of this trial as I can not find any mention of it anywhere.) Took my first dose July 21. The regimen is: ABT-450/Ritonavir/2 ABT-267 75mg/50mg/12.5mg (2 per day) ABT-333 250 mg (2 per d...
Great news for our Japanese members! "Bristol-Myers Squibb announced in July that the Japanese Ministry of Health, Labor and Welfare approved daclatasvir, a potent, pan-genotypic NS5A replication complex inhibitor, and asunaprevir, an NS3/4A protease inhibitor, for patients with hep...
Hi everybody, I'm on day 17 of the Sovaldi/Olysio combo and experiencing a few side effects. Mainly dry mouth, not much appetite, mild joint and headaches and some insomnia. The side effects are nothing compared to the pega/riba that I went through 10 yrs ago but was curious as to what, if any side ef...
"The examples used in Stahls story tonight were a year or two old. But in my business we often think of the moment when a story hits 60 Minutes as peak hype. It might be time for drug industry executives to think out loud about how to decide what will limit cancer drug costs, and when costs should be...
I am on Day #7. I woke up with a significant rash on my chest this morning and itch a lot. I am thinking it is just the toxins. I also have really increased upper right quadrant pain. I know this is my liver, but I haven't had this much discomfort bordering on pain for quite a while. I would love some feedba...
The first few days were kind of tough adjusting but today I feel so much better. I made a healthy breakfast and lunch. My appetite for healthy foods had been kind of dulled. Yeah!!! Here's to SVR and great health and vitality. http://extremehealthwarrior.blogspot.com/
A couple of days ago I asked Dr. Paul Martin's nurse (Nabiha Sanchez) to ask the doctor if he would order a viral load test for me because I feel so much better. She said that he probably would not order it because BCBS had authorized a 4 week viral load test and they would not pay for it. I told her that since m...
Hi all,You may have heard about the Interleukin 28B ( IL28B) gene test. It is used as a predictor of response to treatment, particularly with interferon based regimes. The usual comments are that those with the CC allele do better than those with the CT or TT alleles.This is only partly true. There are...
http://www.theranos.com/test-menu?ref=our_solution Listed above is a menu of tests I believe you will be able to order yourself, for example an HCV RNA is $30.00 For those that don't have insurance or large copays this might be really helpful, and they will start going up in Walgreens across the...
Does anybody know of any reliable information about salt and liver disease? Some say salt is not recommended. Other articles I read say salt isn't an issue. Signed, A salt fan.
This website was emailed to me today and I thought it might prove interesting and informational to those just being introduced to this disease and it might help the veterans out there as well. Don't miss the drop down menu options at the top of the page too. Good basic information! Hep C and the Body Tig
This was done Wed 10-1-14 and it says the comparison is in reference to a CT scan I had 1-17-14, which I don't the printout of, yet. Also I included the MRI final report from 3 months ago 7-7-14, also compared to 1-17-14 abdominal ultrasound and CT abdomen. I won't see my hepatologist until Tues. I don't u...
Hi my name is Robin and I have had hep c for almost 20 years. I was a street kid growing up so the only life I had been exposed to was a tragic one. To be honest when I first contracted it I kind of laughed it off. Hell... the old man who lived under the bride next to us said he'd had it since the early 70's. He was a dr...
Hi all,This was on 'The 7.30 Report' last night, Australia's ABC television. This is the first time I have seen HepC mentioned on such a prestigious program.http://www.abc.net.au/7.30/content/2014/s4098645.htm
I have a great medical team and approaching this from a integrated treatment approach. My Tx is being handled by a third party pharmacy which delivers my meds and answers my questions about side effects. Prior to shipping my first month's meds, they called and went over every supplement I am on and was...
I haven't post on here in quite some time but still come to read the many stories that new people are posting. I can remember the start of my journey here and the state I was in and the fear we all have when we have be given the news about HCV. The great people on this site did their best to alleviate my fears and...
Hi All-- i was was diagnosed a year ago, but haven't seen a doctor since. I know, stupid right? I just kinda thought well there's no way I would take interferon from the stories I've heard so I just hid my head in the sand. Now I've seen articles about a new drug that is much easier and has a high cure rate...
I wrote a simple calculator that will show the base 10 log reduction given a starting viral load and an ending viral load Click Here for Log Reduction Calculator
Going into the trial center today for my last pill. This is the Merck C-Edge 1 pill, 2 drug combo. I have to say the whole thing has been a breeze with almost no side effects. I should know in a couple of weeks my VL. Cautiously optimistic.
I started Sovadi/Olysio combo Tuesday. I am so grateful to start this therapy. I have waited eight years and finally got it after 3rd appeal, so I am very grateful. This is my first treatment. I am genotype 1b with viral load of 3,358,000, slightly elevated liver enzymes and relatively good health...
Hi there all Its been a very long time since I posted...... Im now in week 48 and on Monday I took my 48 INF shot which was then rammed into the yellow box with the other partners in crime and the lid shut firmly.... the Riba finishes at 1800 hrs on Sunday so a little bit more to go...its been a tough journey, mo...
I take meds 3x per day (9am,3pm,9pm) and I use the alarm on my cell phone mostly as a reminder, but also have 2 alarm clocks and use notes on my TV remote, car keys, and fridge. But yesterday I was napping at 3pm and my cell phone had a shirt covering it and the 2 alarm clocks are set for 9am,9pm only. So I was abo...
I started triple therapy with Sovaldi/Pegintron/Rebetol on 15th August. On 28th September I took HCV RNA test and got result <15 UI/mL. The report says: No measurable signal - no HCV RNA detected! I am so happy the treatment is working on me, but I was wondering if this is considered RVR with respec...
I went to the dentist today and they have me fill out that disclosure form. You know the one where you're to list each and every disease you've had since birth. I don't know why this annoys me so much; maybe it has something to do with privacy concerns. I mean the dentist doesn't have to disclose to me the di...
The Hepatitis C Mentor and Support Group, Inc.The Hepatitis C Mentor and Support Group was founded to address a lack of supportive services for people living with Hepatitis C. Support groups and patient mentoring services have been shown to be important elements of successful and cost effect...
If you would like to add your Support Group details or list any websites relevant to HCV, please PM Minerva, greenqueen or Cinnamon Girl. Love Steff xx-- Edited by Minerva on Monday 6th of February 2012 01:59:48 PM
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