Hi there all Its been a very long time since I posted...... Im now in week 48 and on Monday I took my 48 INF shot which was then rammed into the yellow box with the other partners in crime and the lid shut firmly.... the Riba finishes at 1800 hrs on Sunday so a little bit more to go...its been a tough journey, mo...
I take meds 3x per day (9am,3pm,9pm) and I use the alarm on my cell phone mostly as a reminder, but also have 2 alarm clocks and use notes on my TV remote, car keys, and fridge. But yesterday I was napping at 3pm and my cell phone had a shirt covering it and the 2 alarm clocks are set for 9am,9pm only. So I was abo...
I started triple therapy with Sovaldi/Pegintron/Rebetol on 15th August. On 28th September I took HCV RNA test and got result <15 UI/mL. The report says: No measurable signal - no HCV RNA detected! I am so happy the treatment is working on me, but I was wondering if this is considered RVR with respec...
I went to the dentist today and they have me fill out that disclosure form. You know the one where you're to list each and every disease you've had since birth. I don't know why this annoys me so much; maybe it has something to do with privacy concerns. I mean the dentist doesn't have to disclose to me the di...
The Hepatitis C Mentor and Support Group, Inc.The Hepatitis C Mentor and Support Group was founded to address a lack of supportive services for people living with Hepatitis C. Support groups and patient mentoring services have been shown to be important elements of successful and cost effect...
If you would like to add your Support Group details or list any websites relevant to HCV, please PM Minerva, greenqueen or Cinnamon Girl. Love Steff xx-- Edited by Minerva on Monday 6th of February 2012 01:59:48 PM
So the Hep C nurse told me yesterday that the Fibroscan facility on site will no longer be available for their use. Apparently they will be using ultrasound but with some new additional sensor. Can't be good and sounds like cost cutting.
Hi My husband was diagnosed with hcv in 1999 has never treated. He had a genotype test in 2008 that show he is 1b. He is seeing a new hepatologist and she order labs in order to start treatment on the new tx coming out Oct 10th. We picked up copy of the labs today the genotype results have me confused , what do...
Abbvie has in tandem with their latest television advertising program, developed/sponsored a new patient assistance website. It's designed to help people understand and provide individual help on treatment possibilities. I thought those that have missed it or haven't seen the on air and onlin...
Hi all, I was somehow able to get my medication extended for 24 weeks instead of the 12. I had read that there were higher SVR rates at 24 weeks. Anyway, I am at around 16 weeks and got a call from the nurse from my doctors office. She was just checking in and wanted to make an appointment for me when the treat...
And the telaprevirans too ! Had a discussion with my nurse today during which she informed me that she was ditching her old DAAs and commencing Simeprvir. Sometime next month apparently. So had I known when I started Victrelis triple I could have waited and had a tx duration of 24 weeks rather than 48...
Howdy cyber friends. Just wanted to let you know. Dr. ordered EOT 24 but I just couldn't wait that long so I took Isiscat's advice and had my PCP do it last week. Got results today. ALT 18, AST 14, all numbers are normal. Got to feelin crappy EOT +14 and started to worry. Headaches returned. I had hoped they...
FYI: The clinical trial, called ION-2, that Gilead conducted for a small number of tx experienced cirrhotics using the Sovaldi/Ledipasvir combo showed that including Riba did not yield better results. Comments? The results were as follows: 12 weeks: Sovaldi/Ledipasvir: 86% SVR Sovaldi/Le...
Please see the document below. It says I'm still detected but it is below the quantification range which is 15 to 100,000,000. What the heck does that mean? Did the technician see a few of the devils floating around but could not accurately count them? Or does it mean something entirely different. The...
I am starting to feel better and know that my bloods have improved. I need to reduce my Child-Pugh level from 7 as this is too high. I haave been signed off work until next January which gives me time to build up my strength. As I teach in a college the likehood of catching a bug which escalates to somethi...
Dear All, I had a cbc done today. Platelets have fallen to 1.23. They were at 1.48 two weeks ago on September 8th. My treatment ended on June 17th. Two weeks after the treatment they were comfortably over 1.5. I am wondering if this is a sign of relapse. My Haemoglobin is also at a higher normal 15.7. Tw...
Spain´s health ministry has reach an agreement with the drug company to be able to offer Sovaldi to some patients. The new is really good, but don´t think that we can all get it. It will be offer to patients in one of those conditions: - They have a liver transplant and they are reinfected - They are on th...
On September 24th the AASLD added new guidelines for monitoring HCV patients who are starting tx, on tx, or have completed tx. Here it is: http://www.hcvguidelines.org/node/92
In a little over 5 weeks the AASLD will be holding its annual liver meeting in Boston. This conference will be well attended by Hepatologists and all of the major pharmas will be presenting -- probably some new HCV tx data. This is good news for HCV patients as our docs will acquire, or at least have acce...
There is a rumor going around that the Abbvie combo, which was scheduled for FDA review in December of 2014, is no longer on the approval review calendar for this year. I checked the FDA review calendar and it appears to be true. Anybody know anything about this? A significant development if true.
NICE consults on draft guidance on the drug simeprevir (Olysio) for treating hepatitis C17 Sept 2014 - In draft guidance published today healthcare guidance body NICE has recommended simeprevir (Olysio, Janssen) as a treatment option for some people with chronic hepatitis C. The draft guidance...
European CHMP Adopts Positive Opinion for Gilead's Harvoni® (Ledipasvir/Sofosbuvir) for the Treatment of Chronic Hepatitis C Infection in Adults FOSTER CITY, Calif., Sep 26, 2014 (BUSINESS WIRE) -- Gilead Sciences, Inc.GILD, +0.97% today announced that the Committee for Medicinal Produ...
While looking for other information on study results, I came across this report and wasn't sure if it had be shared here on the forum yet. To avoid losing it I will post it for everyone's review. It has a wealth of additional reference sites, etc. and think some of you will find it worthy of a bookmark! New...
Mice treated with the antibody genetic code resisted becoming infected with hepatitis C when they were exposed to the virus, the researchers reported in the Sept. 17 issue of the journal Science Translational Medicine. The researchers also gave the antibodies to mice that already were infected a...
I received blood work results like 3 days ago... Ive made new appointments with my digestive doc to go over them, but when I try and look up the acronyms online... I get crazy jargon like computer code or some such non-sense. Can a knowledgeable person or three please help me to understand these acros -...
I am hoping to start tx soon and was wondering when I should stop taking my supplements. I know it is best not to take them (with the possible exception of vitamin D for those who need it) during tx and I expect the amount of time it takes to rid the body of them varies. I thought this might be an interesting...
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