Hi Everyone =) My names Maria and Im really glad to gave found a forum where there seems to be so many educated and experienced users. I just wanted to share a little background and recieve some advice. I just moved to Puerto Rico from Florida. In March I started using drugs IV for the first time. My ex int...
havent posted in awhile but i read everything........ all great posts and replys... would i be remissed if i said i thought we were missing sum people that usualy post ???? im just checkin if you spot whos gone who i think is gone too.... as far as everyone helping each other ... or saying how th...
I started waking up at 3-4 am after I finished my treatment. Interestingly I was very sleepy during treatment snd slept even after lunch. Now the opposite is happening? Is this one of post treatment side effects or should I relate this to something else?
Below is a list of some simple things that I found helpful through Tx. This is by no mean complete or official. It's just things I found helpful. Please feel free to add your own suggestions. OTC Stuff: Heating Pad Analgesic Creme/Ointment (painbusters, bengay, tiger balm etc) for soreness & cr...
My husband Angelo had an MRI and complete blood work done before starting Harvoni. His blood test was pretty good, his tumor level marker went from 55.6 to 31.6. His MRI however showed three tumors that did not show six months earlier. His doctor was very surprised so he had the CD read by two more ra...
Abbvie's Viekira PakDec 19 (Reuters) - U.S. health regulators on Friday approved AbbVie's all-oral treatment for hepatitis C, and the company said the drug would cost $83,319 for a typical 12-week plan. Some insurers and analysts had said that AbbVie might price its drug, which will be sold under t...
I am somewhat apprehensive to reveal my personal approach to HCV treatment,, but if sharing this can aid even just one person to achieve SVR I will consider it worthy. After 60 years of living as a human being and 7 years with the knowledge of living with HCV and trying to figure out how to remedy a cure for...
For the first time since I was diagnosed in 91 my alt is normal and ast is only 10 points away. Also my MRI came back: After one year her email was: It just came back now actually. Unchanged 1.7 cm liver lesionIs the fact that it has not changed in a year mean I am out of the HCC scare? Anyone?
I am undetected! First time in forever that I can remember that! Feeling fine! AST - 34 ALT - 29 BILI - 0.80 ALK PHOS -159. (High normal) Labs were drawn at 4 weeks Dec 5. I am on the 24 week ride... Positive thoughts go out to all! Ro
As some of you know, I had to stop my Sovaldi/Olysio treatment at 6 weeks due to numerous heart flutters. Now I have been off of treatment for 8 weeks and I'm still UND. I have to believe that this is great news. By the way, the heart flutters and chest pain are slowly going away.
I just got back from my hepa. She told me that Gilead definetly won't consider any discounts for Bosnia, since they do not consider Bosnia as an 3rd world country. I can't get that mindset. We got 44% unemployment rate. GDP PPP is round 8k$. We just had devastating floods that ruined half of the country a...
Hey guys, It has been a while since I have been here. I have since achieved SVR. Recieved the news on my birthday November 14th. Just a few days ago I fell ill. All of a sudden I got a stomach ache, chills, and no appetite. I slept for two days and feel better but the appetite is still gone and I have pale y...
Hi all, it's been a little while since I have posted last. I wanted to see if anyone else has had any similar pains that I am experiencing while on treatment or post. I am post treatment of a 24 week Sovaldi/Olysio protocol. I am at around week 6 EOT and since I have been off the medication, I have noticed tha...
A very useful guide to new HCV drugs in the pipeline and HCV medications approved by the FDA, from the HCV Advocate website. Updated Dec 2014. How to use the new HCV Advocate HCV Drug Pipeline: The Quick Reference Guidelists the drugs currently in Phase 2 and 3 clinical development. HCV Medications A...
Hi, Julia has started Harvoni treatment! We found a nice physician, Dr. Li, who speaks Mandarin, in New York. She got her first month's medication. Our insurance is paying for it completely. It's $3,000 a pill. I feel as if she's swallowing gold. The doctor thinks the treatment will be 12 weeks...
I found a small guide that lists approved HCV drugs and those currently in development. It offers some background info, dates and rates of success which are figures from the author, so additional confirmation of those numbers may be required. But the simplicity of the info made it interesting and wo...
Hi all. I feel like I know you already because I have been reading up on Hep C here nightly. Although I decided to come out of the shadows now because I just got the call that my Harvoni is ready to be picked up tomorrow at the pharmacy. It was a blessing/shocked/surprise since I only just saw the GI Liver...
Interesting article on the newest pan-genotypic protocol in development. Is this the answer? For those interested, there is a link at the bottom (of artiicle) to the Clinical trials website with info on the current "Astral 3" study underway. We have discussed this before but the new art...
http://depts.washington.edu/hepstudy/presentations/uploads/116/m5_l3_treatment_of_gt3.pdf-- Edited by inthewind on Sunday 14th of December 2014 11:26:03 PM
hi, Just finished my 3 rd week on the trials, I was not going to accept the trial but have bit the bullet and am going for it. My VL went from 1,700,000 to 110 in the first week and my alt and ast are normal for the first time in 20 years. I am starting to feel tired and having shortness of breath. Just wondering i...
I found this article that I believe helps explain why I failed to achieve SVR after 24 weeks of SVLD/RBVRN treatment. I have IR and Steatosis . At the present time I am working on getting my weight down to hopefully reduce my Steatosis and improve my IR. I am down from a high of 275 pounds a year and a 1/2 ago...
im at approx 17 weeks of treatment and finally feel i am in control . it was a struggle to get to here but as my specialist said today it is certanly well worth it We had a phone interview today she sounded very excited with my latest as liver enzyms were 270 about 2 years back and today we have 15 not real sure...
Had my MRI to check the lesion they found a year ago. It had not grown after 6 months so I am not too worried. No results yet!!!!!! Besides that I am speedy but good!
At age 63 it is often hard to know what is age related vs drug related. I have developed muscle and joint aches and pains that I do not consider "typical" for me. Has anyone else had this with Harvoni?
12/8/14 10/14/2014 AST 35 178 ALT 49 175 Alk Phos 113 159 My ALT and AST levels have been over 100 since 2000 I cannot believe this inflammation has dropped this much in just two weeks! No wonder i...
I had a follow-up appt. with my doc this morning. Due to changing doctors at the end of my treatment I haven't had blood work since just after completion the 48 week triple therapy. Completed therapy 11 months ago. UND! Cured! All liver functions normal and no advancing of the Cirrhosis. He congra...
I started at dinner time yesterday and I pray I won't be the first to fail this. I am not feeling well at all. I had a very rough night. My head is way fuzzy and dizzy. I don't like to feel disorientation of any kind, it makes me anxious. And sure enough I got up to use the bathroom at 2:00am and freaked out...
so im looking at my blood results and researching why things are low ... and i find through deduction my dear Watson that HEP C totaly beats the sh** out of your liver all be it slow.... but what is glossed over is the fact that it beats the ya u know :) out of your blood at a much faster rate... SO here i prese...
Hi all, I was diagnosed with Hep-C in Dec of 2008 but am pretty sure i contracted it back in the 80's while in the Air Force. I am Genotype 1b, although I have no idea how that is determined. My viral load is 11,000,000 ml, Biopsy results indicate Stage F0, no fibrosis, however Fibrospect II results score...
Hello all I'm new. GT3 believe I've had HCV since late 1970s from tattoo. Was diagnosed 2003 was told it was mild not to get treated. My Dr. was to monitor it with my yearly physical but it didn't happen was tested again in 2013 and went through SLVD/ Rbvrn 24 week treatment 03/2014 - 08/2014 post treatmen...
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