Haven't posted in a while... was kinda of scolded by trial coordinator for posting/sharing too much. Coming to the end of 48 weeks of Sofosbuvir (400mg x 1 a day) and Ribavirin (200mg 3 x am, 3 x pm). 9 days left. Undetectable from day 3 on. This stuff works for me. Sad to hear it now costs a grand a pill. S...
I finally received my lab results from just prior to starting on Harvoni, came back with a viral load of 3.4 million IU/ml and a Log IU/ml of 6.5. All of my other lab including LFT's were well within normal. The only thing out of whack was my Hgb/Hct of 17.6/51.8 and even though I live at 9000' my PCP seems to...
I am new to the forum so I will introduce myself. I am a 53 year old male diagnosed with Hepatitis C (1b) in 2001, almost certainly the result of numerous blood transfusions in 1982. I was a null responder to Interferon/Ribavirin in 2001 and have been waiting for better treatment options.I have compen...
Have most people on this site had one or the other? Just curious as all I ever had a number of years ago was a ultra sound of liver. Also did some of those fibrospect blood tests back when. I was told that some insurance require them.just curious. I did have blood work regularly for many years though si...
Benitec Advances Hepatitis C Clinical TrialSYDNEY, Jan. 7, 2015 /PRNewswire/ -- Benitec Biopharma Limited (ASX: BLT, OTC: BTEBY) is pleased to advise that the third patient in its Phase I/IIa clinical trial of TT-034 for hepatitis C was dosed earlier today at the Duke Clinical Research Unit (USA)...
While on board the Harvoni Train yesterday an emergency stop was made at my doctors office. The doctors nurse wanted to tell me something and this is what she had to say "Congratulations! You virus is undetectable!" I wanted to cry so bad. I have been on Harvoni for just a little over a month a...
Hi everyone, I`d just like to mention that we now have `printer friendly` options for all threads and comments. You`ll see the option buttons at the top of each thread and in the drop down menus for comments. Thanks, Jill
Registration required, but it is straightforward and free. Questions can be submitted during registration process: https://www.regonline.com/register/checkin.aspx?EventId=1661952&MethodId=0&EventSessionId=&startnewreg=1 ----------------------...
Hi all, Hope this message finds everyone well , in good spirit, and completing their own treatment with success. I am very sad to report that we just received Tom's latest blood work results from Mt Sinai and the treatment didn't work. His hep C has returned. Although his cancer has not returned th...
just got back from my doctor's and it's official. SVR now just labs and ultrasound every August. Best holiday gift ever. Thank you so much for keeping me sane and on my meds. Feel so awesome and grateful. gigi
Had my EGD done this week - esophagus normal - mild portal hypertensive gastropathy in the gastric body - stomach was biopsied - duodenum normal - no visualized esophageal or gastric varices. Considering my F4 cirrhosis dx, I'm very relieved as this is the first EGD I've had in years. A friendly remin...
My clinic nurse just called me. UND 24 weeks post TX!
I found this forum because my Dr had suggest it was time for treatment. Things were getting grim and postponing was a bad idea. I started all the testing poking prodding and bloodletting as well as MRIs ultrasounds fibroscans and then somewhere in t...
Hi All, New member here, introduced to the forum by a friend Rubye! Here's my story... On a beautiful spring day in 2014, I worked all day, jumped on a train, and headed for a conference. When I got to the city, I walked to the hotel, which was about a mile from the station. It was a beautiful evening, so a...
I was going to skip the EOT viral load test and just do the 12 week post treatment to save $$. My Yoda-like reasoning - it is, or is not. My family wants me to get it and suggested since I'm in the states already, to just get it now, 19 days prior to EOT as it might cost less here. I thought I was fine skipping it, b...
Hey All Was looking for real world insight on how the Harvoni or other HCV drugs prescription Coupons are being processed. Question # 1 - Are most Insurance company considering the Gilead /Harvoni /Sovaldi coupon the same as out of pocket expense toward the deductible threshold? Question # 2 - Does t...
Hey guys, I've been forewarned that I'm in for a battle to get approved for Harvoni for 8 weeks. Mr. Dr. suggested Abbvie's Viekira Pak, which I would take for 12 weeks, no ribavirin. He said its 99% effective for gt 1b's. At first I was disappointed because I had been waiting a long time for Harvoni, k...
Hello, I have my first visit with my new Gastro Dr tomorrow morning. The physician's assistant who ordered all my tests and blood work has informed me that she does not believe that I will be afforded treatment because my tests show no liver damage and it is not enlarged as she thought when she exam...
Hepatitis C RNA, Quant, NAAT - Final result (12/22/2014 1024 PST) " HCV RNA, Quant PCR Result: <15 international units/ml Comment: This test is performed using the FDA-cleared COBAS AmpliPrep/COBAS TaqMan HCV Test, v2.0. HCV RNA linear range of detection is 15 to 100,000,000 IU/mL. The C...
My viral load was 1.8 million... on week two virus was barely detected... waiting for week 4 results... all blood tests normal.. at two weeks alt and ast in normal range.. first time in 18 years... so I am a little worried about only doing 8 weeks, that is all my insurance will pay for.. I could push it and g...
New to the forum and have had HCV for at least 14 years that I know of, probably came from a dirty needle stick that occured in 1977 when working in an ICU. I spent 37 years working as a Critical Care RN and in the early years we never used any precautions like gloves in dealing with patients, so the number of t...
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