Thought it would be helpful to have all those taking the off-label treatment to be grouped together in some way. If you are on Sovaldi/Olysio either with or without Riba, would you mind posting here so that we can get a better idea of how many are on these protocols, the side effects, if any, with and wit...
Hi, I am new and waiting on treatment. I have genotype 2 and hope something in the near future comes out that isn't as harsh as the current treatment (ribavirin). Nice to meet everyone and I'm also here to learn as much as I can on how to take the best possible care of my health. I have learned a lot in the...
Just got blood test back after 8 weeks . Undetectable 3 weeks left now Treated a few years ago Incivek Riba and interferon cleared but came back crazy ride Hope this time it sticks. This drug seems to be the real deal
Hello. My first day on the forum and taking my first Harvoni tablet tonight at 8 PM Pacific time. From Wa. State. I have medicare with Kaiser Permanente. I'm looking forward to being "cured" from hep C. I'm in stage 3. I have been waiting for this day for a long time. I'm glad it is finally here....
I'm 21 weeks post treatment with Sovaldi/Olysio, reached SVR Oct. 23. My memory, both long and short term, is much worse since I finished treatment. I'm 63 years old and maybe this is age related rather than treatment related, but I wanted to ask if anyone else has experienced memory problems after S...
Just got my results back and I am clear of the Hep C virus 14 weeks after EOT. Happy dance! This was the Abbvie Topaz trial. 9 pills a day, including ribaviran, for 12 weeks. I feel so lucky to have been given this opportunity to be treated and cured. My very best wishes to all who are still fighting. The medi...
Hello everyone, just wanted to update on what has been going on with my husband Angelo. I had posted that during an MRI 3 tumors were found on his liver meausuring 5cm, 2.1cm, 1.9cm. Of the 3, the 1.9cm seems to be a nodule. The other two will be treated with RADIOEMBOLIZATION at Mt. Sinai Hospital in NY...
Dear All, I tested 51 weeks after EOT and HCV is undetectable. Thank you all for your winderful sipport. Would not have been able to complete this journey without your support.
NORTH CHICAGO, Ill., Jan. 16, 2015 -- AbbVie announced that the European Commission has granted marketing authorizations for its all-oral, short-course, interferon-free treatment of VIEKIRAX (ombitasvir/paritaprevir/ritonavir tablets) + EXVIERA (dasabuvir tablets).The treatment h...
NICE is consulting on draft guidance on a device that aims to diagnose and monitor liver damage, without the need for surgery. The provisional recommendations support using the device, Virtual Touch Quantification (VTq), in adults and children with chronic hepatitis B or C who need assessment o...
I got the fedex and took one immediately...pretty peach-colored quadrangle. I arranged them in a pill organizer by day and now I wait. It all seems a bit anitclimactic and silly, but that first pill was a very emotional experience. I am happy to be in the club! All I feel today is a headache. I'll take...
I scrolled and held my breath ast 15 alt 13. HVC <15 not detected. Its been a long wait for this seeing I started treatment back in July of 2013. I'll be going back to look at my labs all day.
I got a call on my phone from a specialty pharmacy by the name of BioPlus out of Florida ... they are the ones who will push my Oregon medicaid for Harvoni .... i give credit to my gastro who never talks to me but who made good on her word to get it up and running after the beginning of January..... im 90 perce...
I have been approved and begin 3 month treatment of Harvoni today. I am geno type 1b and did the Interferon nightmare bout 15 years ago. Very eager to get into this and a little scared at the same time. So begins the journey......
I started my Abbvie Topaz clinical trial on July 14, had my two weeks checkup on July 29 and on July 31 was told my VL was down from 4 million+ to undetectable (<15) My ALT went from 180 to 20 and my AST from 170 to 30. I was so happy I cried. Just had to share!
The NHS (National Health Serive) in England has taken the decision to delay the use of sofosbuvir because of the hight cost. The move by NHS England is unprecedented, because the NHS rationing body, Nice (the National Institute for Health and Care Excellence) has approved the drug. Nice says sofos...
tookm less then 5 days to Deny me :) awesome >JUST SAY NO speed there< specialty Farm and Gastro are running the bootleg option.... appeal.... gastro nurse said Brie said if by sum miracle after being denied the 2nd time.,.... you can apply for Support path... Which sounds pretty solid.... on t...
please be encouraged! I received my blood test results back today after 4 months after treatment with solvaldi ribivirn an peg pen of interferon an im hep c free!all praise to my Heavenly Father! He got me thru it ! to all my friends here when I was new here an scared you were all here for me an I thank you!f...
hi all hope everyone is tamming this toxic invader. at 24 weeks and half way through triple x im managing fairly well and most servere sides have settled or im becoming more in control and dealing with it easier. if anything which i am struggling with at times is a cloud of depression hovers over me round...
"There has been a substantial reduction in the net price of both of these drugs just in the past few weeks, so sometimes it pays not to go first," said Peter Wickersham, senior vice president of Integrated Care and Specialty, Prime. "It was clear that neither Gilead nor AbbVie wanted...
Hey All Thought it might be worhty to gain some insight on what previously relapsed members strategy has been on retreatment or what they currently are doing to enhance there odds for SVR. Its something that anyone who ever relapsed has thought about, some of our members have had multiple relapses an...
Just got the good news. I feel very, very blessed! Now, I have to change my signature :) -- Edited by skewedButNotBroken on Friday 9th of January 2015 09:50:47 PM
Hi guys and gals.... It's been a minute since I was on last. I do apologize, I have been moving around a ton. I went to Colorado in search of better health care and.... well... it didn't work out. So I moved to Iowa.... So, when I moved here 2 weeks ago I filed for my medicaid... This state... As in Iowa, is a st...
Hi all,The March meeting of the PBAC here, will be the busiest for some time. This will decide whether some DAA HepC treatments are made available to Australians. The drugs are:Sunvepra (Asunaprevir)Daklinza (Daclatasvir)Harvoni (Sovaldi/Ledipasvir)SovaldiA brief look at the Australian Fo...
Just got my 8 week results: ALT and AST - remain normal MCV , INR - now normal ALK PHOSPHATASE 174 (high) PT 14.5 (high) PLATELETS 103(low) SEGS 42 (low) ALBUMIN 3.1 (low) Feeling good, just aches and pains especially my left shoulder Cannot wait to be done.. 15 weeks t...
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